enlarged lymph nodes - worried!

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

  • Hi Nicci,

    Sorry you're feeling worried again.  I think its totally natural that you would, although I'm sure it'll all be fine.  At least its all being thoroughly investigated and will be dealt with very soon if any problems found.  Hope you are okay.

  • Hi again all, 

    sorry to hear of your worries nicci, but very positive that there is a benign nodule! I have everything crossed you receive the news you’re hoping for. 

    As I had previously commented, at a private scan, a benign 3cm cyst and a complex 1cm cyst were found on my thyroid. I was advised to get a 6month check up US via NHS. I have just received my letter from NHS for an US on 17th May. I know I’ve already been for a scan privately, but my neck discomfort is worsening as well as lots of pain in my collar bone. Still feeling very fatigued. My family think I should just go to the scan but I don’t want to waste anyone’s time as I’ve been privately now. I don’t know what to do. The extra reassurance would be great, but I know all too well how stretched the service is. 

    Hope everyone is well xx

  •  

    Hi Scotland,

    It doesn't sound as if you are convinced that your previous US was clear. If things are still worsening, it might be a good idea to keep the appointment for 17th May. If you need the reassurance, you might as well go, as you may find out more about the complex cyst.

    Kind regards,

    Jolamine xx

  • Hi Scotland

    I thought I would say hi! If I was you I would still go for the scan if you feel unsure from your last appointment, I have had swollen lymph nodes in my neck since last year in March.I’ve had several ultrasounds and always told they were reactive nothing to worry about,but I just  never felt like it was nothing,my neck always aches on that side like a pulling/ throbbing feeling around my jaw.., my biggest one ( under my jaw)stayed at 1.5cm until February this year where it started to get bigger it’s now 2.5cm long  x 1.7cm , long story short after changing drs (3 times)and being referred to a different ENT they have told me even though it looks benign on ultrasound it is too big and they will take it out  and biopsy if the antibiotics they gave me doesn’t help... ( which they haven’t it’s still the same if not slightly bigger again) I am back next week on Thursday for a follow up ultrasound and I guess finally it will get taken out, I’m absolutely terrified as I can’t think of anything else other then cancer as I have not been sick besides the odd cold here and there and for it to have been in my neck for over a year I’m scared it’s also going to be in other places...So for peace of mind probably a good idea to go to your appointment! 

    I wish you all the best  and hope you can feel more relaxed about everything soon!

    take care

    Miks xx

  • Hi there 

    [@Jolamine]‍ I guess you are right! I don’t feel too reassured from my last US, and still very apprehensive about the 1cm complex nodule. I just don’t know how much will have changed (if anything) in such a short space of time. I suppose I just needed some advice as I know if I go and nothing has changed I will feel awful for not cancelling! Xx 

     

    [@Miks77]‍ hi there! Sorry to hear about your ongoing struggles!! I have had a lump in my neck for around a year (the 3cm thyroid cyst) which I am confused about as, although benign, is causing me lots of discomfort but I’ve been told nothing will be done until it affects my swallow/breathing. It’s the little complex sucker I am more worried about. At my last scan she said she would’ve thought the GP would want to refer me to ENT, but I’ve not had the best time with my GP and they’ve not thought that’s an option for now. I was kind of hoping if I went to this scan they’d maybe advise ENT referral as the nodule is too small for FNA, but ENT could maybe have a closer look at it. 

    Thats good news that it’s finally being biopsied! But I totally get the anxiety around it all, it really is awful. I think when you’ve been suffering with it for so long your mind just ends up going to worst case scenario and staying there until definitively told otherwise! I really hope you get positive news, please keep me updated! 

    Well wishes to you both! Sorry if it was a silly question. 

    Katie xx

  • Hi Katie,

    When medical procedures are offered, I’d advise to grasp them with both hands. In my opinion, a confirmatory US reaching the same verdict will make the probability of misdiagnosis very low indeed. Don’t feel apologetic about it, see it as a welcome bonus! Go for it.

    Dave

  • Your peace of mind is very important so please do go. You paid for your private one and you need some more reassurance so go and get that or whatever they tell you, follow it and you probably will feel better. 

  • [@DaveW1970][@PositiveJ]‍ 

     

    Hi there, thank you both for your replies. I think you’re all right, I am just going to go. Confirmation that there is nothing to worry about is better than “what if”. I know how hard it is to be listened to, so I should probably take all I can get while it’s on offer. 

     

    Best wishes to you both. Hope you are both doing okay? 

     

    Katie xx

  • I agree with the others and think that you should definitely attend the appointment if you're still worried.  I don't think you're wasting anyone's time by doing so, but really I wouldn't worry about that anyway - sometimes you need to be a little selfish and put your needs first.  Hopefully it will give you extra reassurance and you can then feel more comfortable.

  • Hi there,

    some of you may have seen my posts over the last few weeks regarding a 2cm suspicious nodule that was found  in the right lobe of my thyroid, it was classed as u4 on the scan but the biopsy was inconclusive so they have taken it out. 

    I first went to the doctors because I could feel the lymph nodes in my cervical chain behind my ears were noticeable - on scan these were to be revealed as non suspicious on 2 occasions, small and superficial. 

    Nothing else suspicious was found on the 3 scans I had overall, except the one nodule - however when my surgeon opened me up on Friday she was shocked to see that alongside the nodule there was a strange piece of tissue hanging from my thyroid and there was another large lump behind my left thyroid lobe, and she’s had to take out multiple lymph nodes from level 6 and 7. All of which wasn’t shown on 3 scans.

    i am now really worried, especially because of these extra bits and lymph node removal, which were not apparent on the scans, it now makes me worry about the ones they deemed as normal. I have to wait 2 weeks for results and she has said it’s less likely for it to come back as not a cancer now because of all the extra bits. Well of course I am beside myself, a had a few weeks to get my head around it being contained to one lobe, no lymph involvement and a good prognosis to now feel like I am being left in limbo, especially as she couldn’t identify some of the tissue because it wasn’t normal part of thyroid or neck anatomy. 

    Really scared and worried, does anyone know about lymph node spread prognosis? X