enlarged lymph nodes - worried!

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

  •  

    Hi Scotland,

    I fully agree with Littleoldme and Dave. You have come this far, don't give up now. You are better knowing exactly what your problem is and dealing with it.

    Do please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, 

    Youre totally right. I will let you know it goes! thank you so much xxx

  • Hi guys,

    Thought I would give an update as I have been for my scan. I have a 2cm cyst on my thyroid on the right hand side which she said looks non suspicious. She also found a nodule on the left hand side which is only 1cm and so she said that’s non suspicious due to the size. She said she took lots of pictures of the left side (I presume to have a further look before writing the report to my GP). She said I may be referred to ENT for further reassurance /checks of the left hand side, I may be asked to get scanned again in a years time, or I may be told no further investigation is needed. I’m guessing my GP will contact me with the outcome of that in due course. 

    Feeling reassured (I think). Just wish they’d found nothing but I’m happy she’s saying nothing looks sinister on her first impressions! 

    Thank you to everyone, this thread has really been a saving grace for me. Xxx

  •  

    Hi Scotland,

    This is fantastic news. If you are referred to ENT, please attend your appointment to totally rule out anything sinister.

    I am absolutely sure that your family will be equally delighted that all is good and, will in no way at all begrudge the money spent on your scan.

    Do please keep us updated if you have any further news.

    Kind regards,

    Jolamine xx

  • Hi Scotland, 

    I'm so pleased to see your good news! I'm so glad you went along and got some reassurance x 

  • Thank you both!! 

    Yes I will definitely attend ENT if I am referred.  I almost want to be referred as I read that anything 2cm or over should be investigated further? I also have questions about what the results means and if I can do anything to shrink the cyst as it looks blooming awful!! 

    Will the GP contact me once the report has been sent to them from the private consultant?  I just haven't had very good experiences with my GP (he initially refused to pass my referral on privately eventhough I had already been referred for an ultrasound through the NHS), so I fear he will just not follow it up as I presume she is going to say a follow up isn't 100% necessary?

    Looking back I wish I had asked more questions.  I was just a bit overwhelmed with relief and now I am confused.

    Hope all is well for you both xx

  • Hello little old me. 

    I have been reading the posts and I was waiting for the diagnosis. 

    If it's 2 cm and the person who did the ultrasound is not concerned I would take that as it has been investigated already. 

    If she refers you to ENT doctor that's better because you will be checked but trust me there is not point on thinking more than that. 

    2 cm is smallish.... Do you have any fillings in that side? Any dental problem? Because that could be one reason. 

    Keep on top of your appointments because that will mean that if there is ever anything there they will see it. 

    I have a lump under my jaw that I see massive and when she measured it it was 11mm so not that big.... She said she is not even going to send me for biopsy so I try to trust them because they know what they are doing.

    A few months back I had an ultrasound in my abdomen and she saw something suspicious and send me straight away to the urologist. It was a tumour in my kidney that was cancer. 

    So if they would have seen something suspicious it flags up straight away. 

     

    Be positive and let us know!!!

  • Hi PositiveJ, 

    Yes you’re right, the lady was a consultant radiographer who scanned me and she didn’t seem concerned at all so I am reassured! 

    The cyst is in my thyroid so I don’t know if that would be due to dental work as it’s nowhere near my jaw? But I did have dental problems so maybe it is linked! 

    I’m glad I went as I now have a baseline just incase anything does change, and I will definitely attend any follow up appointments if need be! 

    I’m sorry to hear of your recent diagnosis, it definitely puts my situation into perspective. 

    Sending you lots of positive thoughts! X

  • Hi all, I hope you don't mind me joinging you.  I've got a lot of swollen lymph nodes all over (neck,jaw,collar bone and groin) and notice that a few of you here also have widespread lymph node swelling - have any of you had any conclusive answers as to the casue?

      I noticed the lumps about 8 weeks ago, although they could have been there for longer. I saw my GP a while ago who told me to return in 4 weeks if they were still raised, so I'll be seeing her next week.  Just feeling very anxoius that whatever this is could be quite advanced due to how widespread it is.  Not sure what I'm really hoping to acheive by posting here, but would just be nice to chat to others going through similar.

  • Hi Becky,

    Sorry to hear you have widespread lymph node swelling. Are they fairly small lumps?

    I also had the exact same, in all the same areas as you, but its about a year now since I first underwent the initial investigations and posted this post! I hope it may give you some reassurance to know I still have all the same lumps in the same places over a year on from when they appeared and they were thought to be fine after very thorough investigation. It is a very worrying time though when you are faced with the unknown. When is your gp appointment next week? She will likely send you off for some tests but when/if this happens try to remember it doesn’t necessarily mean they think you have cancer, but its important they are 100% sure. 

    I too was worried about widespread disease, in lymphomas they say that the “stage” of the cancer isnt as important however as its not solid tumors that form as it is a blood cancer. This means that even in widespread cases it is often treated successfully. 

    Let us know how you get on with your GP and make sure to ask them as many questions as you need!! xx