One tonsil enlarged - definitely cancer??

Hi everyone,

First of all I've tried to make this as short as possible and I know only a doctor can tell us for certain, but I really want some reassurance that it might not be cancer so I don't completely breakdown everday over the next two weeks. 

My husband has had issues with a painless lump in his throat since before we met (nearly six years ago). He said it gets better and worse sometimes, but never completely goes away. Twice it has become so large it effected his breathing and he went to the doctor, and both times he was prescribed some antibiotics that made things better but it would always come back. He was also told one tonsil was larger than the other, but that it wasn't worrying. 

Fast forward to now. He has had some issues since we've been together with the lump making him cough at lot beacuse it's irritating his throat (his words!), but in general it has been pushed to the back of my mind. However, a few months ago I noticed my husband was sort of wheezing when he breathed out (breathing in is fine, as is eating) and I have been begging him to go to the doctor about it. He was relutant at first becuase he siad it had been worse than this before, but he finally agreed and we went to the doctor yesterday. 

The doctor commented that, again, one tonsil was much larger than the other and he wasn't sure what it was. He didn't think it was anything to be worried about because of how long he had had it and he wasn't really in an 'at risk' group (he's in his early 40's, no family history and doesn't smoke or drink heavily), but he gave him an urgent referral to an ENT. I panicked when I heard that, but my husband said it wasn't because he was overly concernced and it was just so we wouldn't have to wait months to be seen. He should have a throat scan (? sorry, don't know the correct word!) within two weeks. 

I am so so scared. I have had awful issues with health anxiety in the past and would use Dr Google for everything (I know I shouldn't) - I'm pretty sure I ended up diagnosing myself and my husband with every type of cancer out there! It got really bad and I was barely sleeping so I completely banned myself from Googling anything, which made things a lot better. However, last night I couldn't help myself and every single post about one tonsil being englarged (without pain) said it was tonsil cancer.

I can usualy talk myself out of panicking, but at the moment my conversations are just going: 

"The doctor said it was almost certainly nothing" - "But then why give an urgernt referral" - "To save us waiting months to be seen, he was a great doctor" - "But one tonsil larger than the other without pain is always cancer, he was just being nice and trying to stop you worrying becuase he knows in two weeks he'll be diagnosed with cancer" - "Even if it is cancer it can be treated, remember all the stories online about people who got better" - "Well it's been over six years, it's clearly going to have spread everywhere by now" - ect...

I'm sorry for going on so much. I know only the doctors can tell us for certain what it is, but does it HAVE to be cancer? I can't find anything else other than cancer for his symptoms and I just can't stop worrying. Is there anything else this could be? If it's cancer we'll deal with it, but these next two weeks are going to destory me if I don't have a tiny ray of hope that it might be something less serious. 

Thanks for reading :( 

Parents
  • hi SSH, just wanted to ask how's everything going now? Are you doing fine now and did the doctors find out what the issue was?

  • Hi! I was surprised to get an email about a reply on this post almost two years later :)

     

    My husband had the MRI and it didn't look like anything sinister, but the doctor offered to remove the tonsils to biopsy to double check and to allow my husband to be able to breathe normally again. We said yes to that and about a year later he had them out. The biopsy came back as 'reactive lymphoid tissue', which wasn't dangerous. Besides a heamorrage leading to ambulance ride and a stay in resus, everything is fine now. I'm glad he had them out as he can breathe again and we know it is nothing to worry over anymore. 
     

    Hoping anyone coming across this will find some comfort in that!

  • Thank you so much for the reassurance. Hoping for the best! 

  • Hi, how did you get on with this? Having similar symptoms..

  • Hi there,

    Ive been reading this thread for an understanding as I have an ENT appointment on Tues 12th for my left tonsil being massive. I'm not sure how long it's been like this. The only reason I noticed it was because I had a massive ulcer which appeared on the soft palate near the big tonsil. The ulcer didn't heal after 2 weeks so my GP surgery popped me on a week of penicillin and prednisone gargles. That managed to sort the ulcer but my tonsil is still massive. The ENT appointment is a 2 week cancer referral which then led me to read Dr. Google and then prepare for the worst.

    Since the ulcer has pretty much gone, I get no pain in the throat now. I can't feel any swollen lymph nodes (but also I'm not a doctor ). So the main symptom is my massive tonsil friend and bad breath as the tonsil now sits on my tongue and stuff gets trapped no matter how much I try and clean.

    It's reassuring that a lot of posters on here got the all clear but I battle with health anxiety and this has taken me over the edge I think. I'm slowly regaining control and telling myself that one can overcome anything but it's a tricky one.

    I'm 38, male, in generally fine health. I don't smoke, don't really drink to excess and not too bad weight wise (I've lost a lot this year). I know the big C is indiscriminate however.

    I'll update this thread once I finished the first ENT appointment. Sending love to anyone else going through a similar time and thanks to everyone who's taken the time so far to post their experiences on here - it's reassuring to hear all sides of the story.

    Cheers, TC.

     

  • Hi all, just to update this post. I had my 2 week referral appointment with the ENT doctor on Tuesday. I'm not really sure if it gave me any answers to be honest.

    The doctor had a look with the camera down the nose and although he noted the left tonsil was indeed large he wasn't bothered by it and told me to leave it as is unless it gets any bigger. I'm glad that he didn't think it was worth investing so it must of looked ok but I'm still unsure why it's swollen. I tried to ask leading questions such as if it's medically ok for it to be permanently swollen and he said it's ok as it is.

    He said that they had to balance risk with a tonsillectomy as that would be the only way to properly biopsy the thing and he said my risk wasn't weighted enough to recommend surgery.

    I'm relieved he felt it was ok but there's a niggle I'm trying to shake which is my conscience telling me "what if it is that thing we dread, and now you are just a ticking time bomb waiting to go off".

    would be interested to hear if anyone had this result?

    Cheers, TC.

  • I started this thread several years ago now about my husband and since then he's been diagnosed with GERD (or acid reflux/heartburn to use more everyday terms!). His doctor thinks this is what caused his englared tonsil to begin with as the acid from his stomach came up and damaged it as he slept (as it was on the side he sleeps on). 
     

    I'm glad your doctor thinks yours isn't anything sinister, but this might give you some idea about why it happened. 
     

    Good luck with everything!

  • Hi [@SSH]‍ - thanks for taking the time to reply.  :happy:

    I'm glad your other half got a diagnosis. Would you mind if I ask, is his tonsil still enlarged? I wondered if it ever went down?

    The rationale may also work for me as I'm on Lanzoprezole once a day for heartbearn/indigestion too.

    Kind Regards, TC.

  • He ended up having both of his tonsils removed as it was restricting his airway so I can't answer that. Sorry!

  • Ah, I'm glad it got sorted and hope you and your husband are all doing fine!

    Many thanks SSH x

  • Hi Tony. I know this was last year but just wanted to ask if your tonsil ever went down? My story is almost the same as yours with the referral and the camera etc. Mine has been enlarged for around a year now with occasional sore throat so I'm interested to know if you ever got to the bottom of it.

    Tash x

  • Hi there,

    I've been reading this thread.. I have an enlarged right tonsil. Went to see ENT and they recommended I have an urgent MRI scan. I'm absolutely petrified and been having panic attacks thinking the worst. I'm 35 female, don't drink or smoke. I am overweight though. I had tonsillitis in February, not sure if that could be related to it. My throat is slightly sore but nothing major, I can feel the tonsil when I swallow and slight ear ache and jaw pain. I'm so scared xxx

Reply
  • Hi there,

    I've been reading this thread.. I have an enlarged right tonsil. Went to see ENT and they recommended I have an urgent MRI scan. I'm absolutely petrified and been having panic attacks thinking the worst. I'm 35 female, don't drink or smoke. I am overweight though. I had tonsillitis in February, not sure if that could be related to it. My throat is slightly sore but nothing major, I can feel the tonsil when I swallow and slight ear ache and jaw pain. I'm so scared xxx

Children
  • Hey!

    Ah I'm sorry you're going through similar to me...nothing worse than waiting and I completely understand the panic attacks as I also suffer with anxiety so if I go down too much of a rabbit hole or overthink everything then it sets them off.

    How long has it been enlarged if you don't mind me asking? I'm 34 so we are almost the same age and so it is rare that this kind of cancer would be found in people our age but I know that doesn't bring much comfort as I always have the 'well I could be the exception' mindset. 
     

    Please try not to stress about the MRI though, I think it's standard procedure for enlarged tonsils. 
     

    I've asked to be referred to ENT again as it is still swollen and I also have the mild soreness now and again. I've also got an enlarged lymph node in my neck again which I had when I first noticed my tonsil 18 months ago. 
     

    Please let me know how you get on, I'm always here if you need a chat xx

  • Hi hope your ok. How did things go? I'm going through something very similar. Hope all is well x

  • Hi, hope your mri went all ok? How did it go ?? X