Polycythemia advice

Hi

Im looking for advice from.anyone with polycythemia. 

These are blood test results from last june & last week. Polycythemia has been mentioned & I wondered what you thought. Do these results look like yours? Thankyou

                     Jun17 & Jan18

Haemoglobin 154 & 154 (120-150)
Haematocrit .466 & .455 (0.36-0.46)
Mean cell vol  83.4 & 82.4  (83-101)
Red cell count 5.59 & 5.52  (3.8-4.8)

 

Parents
  • I was diagnosed with polycythemia over 8 years ago when I was 61 after a blood test following an insect bite that turned nasty. I was referred to the hospital and was told that I had this condition, although my blood cell levels were just over the normal for red,white and platelets. The consultant said she thought I had had this condition for a very long time. I was given hydroxycarbomide tablets to take. She said that I should not be frightened that these tablets are usually given for lukemia but does the job of killing off excess cells. I do take aspirin (Loss doseage) as recommended by her. Before taking the tablets I had noticed itchiness after showering on my legs and I had since I was 14 suffered with migraine symptoms on a regular basis. Since being on the medication I have completely stopped having migraines (an absolute blessing) and certainly no itchiness. I have regular 4 monthly blood tests by teleclinic (so no vists to the hospital) which are always within the normal range. I asked if taking the tablets I would get any side effects and she said, none except be careful in the sun. Of course, I do wonder what the long term effect of taking hydroxycarbimide is but the hospital does keep an eye on things.  Hope this reassures.

  • Recently been diagnosed. Being told you have incurable blood cancer is scary. Your post is really encouraging, thank you for sharing your experience.

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