Worried about lymphoma

Hi guys! I'm new to this forum so I hope I've posted this in the right place! 

Basically I've been to the doctors regularly for the past five or six months desperately trying to figure out why I feel so crap. It began with tiredness and aches  as if I was at the end of a virus and I just couldn't shake it. Since then it's gotten progressively worse and now my once productive and active lifestyle has completely gone and I can barely function day to day with exhaustion. I've had numerous blood tests which are all fine apart from iron deficiency, I've had a colonoscopy and endoscopy In case the iron deficiency and aches were caused by inflammatory bowel disease but they were clear. I also had a CT scan which was clear.

I mentioned to my doctor that the lymph nodes on either side of my neck (the two main ones I don't know what they're called), have been slightly swollen since glandular fever four or five years ago which I assumed was normal, but in the last six months they've been significantly more raised. They seem to flare up and go back down, never smaller than maybe the size of a large grape. I also have a slightly smaller harder lymph node on the back of my neck and a small hard one on my jaw line. My doctor arranged a neck ultrasound for the following day, and the radiologist doctor  was really dismissive. The radiologist did the ultrasound and then went to get the doctor who came in and did it again, he then said something along the line so of "we could do am FNA or just leave it and see if they go down they seem reactive and they haven't become larger recently" ignoring the fact I said that they had gotten larger recently.

i went back to my GP who said that whilst the Doctor has assumed they'd be reactive, she felt that since they have been noticeably larger for the last six months and the two largest are almost 3cm long she'd rather I'd have an FNA just to be sure. We've been working to find what I feel so exhausted and weak and it's getting really bad and completely interrupting my life as a stay at home mum All other tests have shown nothing and I'm starting to lose hope, but I'm really scared it could be lymphoma. Apart from the lymph nodes and exhaustion I've also had a lot of random aches and pains, especially lower back pain when I lay down, and some itching on my arms and chest with no rash and seemingly no reason. I'm not sure if I've had any weight loss since I've been eaten less and exercise to deliberately lose weight so I wouldn't know. Ive got an FNA on Monday and I'm so scared!

anybody been in a similar situation? Thanks guys!

  • Best of luck! At least that makes things move a little quicker for you!

    i get my FNA results tomorrow morning and have an abdominal ultrasound for possibly enlarged spleen and swollen lymph nodes on Friday. Scary times!

  • Hey [@Meg96]‍ would love to know how everything's turned out for you? I hope you're clear 

  • Hi Meg96

    It was reassuring to read your post. Iv just shook myself together after a damn good cry when I came back from an abdominal ultrasound which was 'normal'. Iv had many tests n seen ENT consultant and everything is normal. Like you I feel like a crazy person, and so frustrated that I feel so ill, but no test will point to what is wrong. I too hav tender swollen lymph everywhere, some in my groin were looked at with ultrasound, but although a little bigger, not enough to be of concern, but to me it's not normal, they are tender n I can feel them. With no sign of any inflammation or infection in my blood  I'd like to know why. My voice is hoarse, my tongue burns, Iv pains in my stomache, more when I eat. In fact, it feels horrible to eat.  The sonographer today said ultrasound won't be able to show stomache, which is annoying as I think that is where my problem lies.

    I feel defeated and I'm fed up of medical professionals treating me like I'm a hypochondriac, do I continue to press my GP to get to the bottom of this?