hi Becks, I can't offer any advice but am sure others on here can but having read your post and seeing it was just minutes ago I wanted to say I am thinking of you and your family.  I too am a mam and my son is 12, I can't begin to even imagine how you're feeling or what you're going through.  Sending love, best wishes and all the luck I have.

Sam

Just sending you a vertual hug from one mum to another. ... wish I could find something to say to help ... hope you have someone close to you that can hold your hand at this time ... you may go through lots of different feelings , remember that's normal ... there's nurse helpline on here and McMillan have one too .. they can explain things and offer a listening ear too ... 

hold on in there and my thoughts are with you and your son , big hug Chrisie Xx

Hi Becks,

Welcome to Cancer Chat.

What a run-around you've had. It was just fortunate that you persisted that there was a problem. This is the news that no parent should have to hear. It sounds as if you have had most of the tests, so it's now a waiting game for the results. I know that this is always a worrying time. It shouldn't be much longer until you get to know exactly what you are dealing with and what treatment will entail.

Have you tried using the search engine on the blue band at the top of this page? If you pop in your key words, it should bring up previous posts about Ewing's Sarcoma. You may find this helpful to browse through while you are waiting.

Please keep in touch and let us know how he gets on. There is always someone here to talk to whenever you feel the need.

My thoughts and prayers are with you both.

Kind regards,

Jolamine xx

Don’t really know what to say. I am so sorry to hear about your son. How is he doing?My son has just been diagnosed with Ewing sarcoma or a Ewing- like sarcoma. They are carrying out further tests to see which one before they plan treatment. He’s 19 fit and active, complained of a sore leg 10 weeks ago. Went to the Drs and told to take painkillers as likely a football injury. On 30 th Dec I was took him to a and e and insisted on an X-ray, didn’t expect what happened next- we were referred to the fracture clinic the next day where he had a ct. A MRI was booked for Thursday and a meeting on Friday with the consultant  who told us he suspected bone cancer! A bone scan was done on the following Tuesday and a biopsy the following Wednesday. Took him and his girlfriend to Spain to distract us as we were told results could take 3 weeks. Got back 6 days after the biopsy and today told the results. The medical team at the local hospital and another hospital have worked so quickly, however I am upset that Drs didn’t respond quicker. It was only when I insisted on an out of hours emergency appointment and the dr there said to ask my gp for an X-ray that I made the decision to return to a and e and sit there until he had an X-ray.  I found it difficult to find other people as this is a very rare cancer. My son is being so brave. Tomorrow I have to tell the family - not sure how I will hold it together. 

Hi there ..

Bless ya .. it's every mothers worst nightmare ... and l know when my son who id almost lost a couple of times to server hypos from diabetes ... and he had to be tested for maybe colon cancer ... I fell apart .. and had a total "lost it" few days ... with help on here, I got myself back in the "Mum" saddle ...

We cope because we have no  choice ... it's what we do, even though we brake inside ... and one thing I've learned is just how brave these young ones are .. though they will always be our babies ...

It will be a hard road ... but hold on in there ... go with your emotions, they are better out then in ... share tears and hugs ... and don't be afraid to admit your all scared ... it's getting it all in balance ...but be kind to your self .. and give you permission to feel whatever it is .. then get back in this cancer ring .. hold his hand .. and take each problem as and when it comes up .. try not to look ahead .. live in the day ..

Sending you a big vertual hug from one mum to another ...  Chrissie xx

Hi Carebear,

I reiterate all that Chriss has said. I cannot imagine anything worse than hearing that your son has been diagnosed with any type of cancer. I am sure that you will cope well with telling the family tomorrow. Somehow or other, we always seem to find the extra strength to cope with situations such as this. Tell them honestly, so that you can all talk about this openly between one another. You will find it helpful to be able to talk openly to one another.

I am glad to hear that your son is being so brave, but am sure that he will also be scared. I sincerely hope that his doctors can find a treatment that will help him. Please update us on his progress.

We are always here for you.

Kind regards,

Jolamine xx

Thank you for your kind words Chrissie. 

Thank you. X

Hi CareBear,

Have you managed to break this awful news to the rest of the family yet?

Kind regards,

jolamine xx

Yes, my sister is being amazing. My sons had his first round of chemo and tolerated it ok. His next round starts tomorrow. It’s a very intense treatment plan that lasts for 12 months. Our world has been turned upside down. We are being positive and taking each stage at a time. I’m self employed and still working around his treatment, I feel guilty for doing this however we are trying to keep everything as normal as we can. My sons bloods were good on Wednesday and he took his girlfriend to the cinema. His friend came up from uni last night and they all went out to play pool. My son even had a beer. I think this is good mentally as I am so focusing on all our mental healths at this difficult time. Friends are being really helpful. I have my melt downs, however I think it’s just a case of getting used to a new normal. I am also in contact with another mum who’s son also has Ewing sarcoma and is the same age as my son. They are both having treatment at the same hospital and we met last week. Her son is 8 months into his treatment.

thank you you for asking