Hiya Clara and Stokemale. No soreness at all today. It is almost as if yesterday didn't happen. Very odd. Drinking coffee, eating what I want, no pain WHATSOEVER from tongue.It is now exactly as it was when this all started. Worrying me slightly because I was inwardly bracing for the natural pain of a wound and stitches but nothing at all.

I think my follow up appointment has been auto generated for Sep 10th as had text today confirming it. On holidays then though so asked for different date.

Will keep you updated either way as I do think it's important people see the good news as well as the bad especially on forums like this. Hopefully mine will be good.

Dear Clara.  hello  how are you keeping I havent been on the form for so long...so much been going on regarding my sister..I see you have said that you may need more biops...I am sorry to read this clara...I have always thought about you wondering how you have been getting on..but you just assume the worsed is passing and we all get on with staying strong and getting over this dammed illness..I pray you are well. Kindest Regards your friend Dee.

Hi Dee

I am so sorry for missing your post.

This is my second attempt at replying. I just got near the end and it disappered and went to page 7 of this thread.So i will make this one shorter.

Yes new lumps appeared. I go to hospital quite soon so will see what they make of it. Specialist nurse was insistant that I see GP but he was a locum and his thoughts were bits of bone??

I hope your sister is Ok.

Keep well  speak soon. xx

Hi all,

I forgot to post following my appointment the other Friday as I flew out to Turkey for 2 weeks that night, currently still there but just lounging around & thought it'd be good time to catch up.

Saw consultant for my 6 week check following op. & he was really happy with how wound healing, I was a bit taken shocked when he told me he would see how things develop over next 3 months then get me booked in for another op! I kind of expected that as cells had progressed into healthy tissue something would happen 1 day but not so soon. He did kind of joke with me that they wouldn't be so brutal next time to lighten the mood which I suppose is a good thing, so 3 month wait then see what happens, take care, catch you all soon.

Hi Stokemale,

Many thanks for your update. This sounds like good news to get just before you went off on holiday. I hope that you are enjoying Turkey and having a nice relaxing time.

I can understand your concern about having to return in 3 months and possibly having further surgery then. Hopefully all will still be good and there will be no need for surgery.

In the meantime, do your best to forget all about this and live for each day. Don't dwell on what might happen, which is something you can't control. Instead enjoy life and family time.

Don't forget to update us when you have your review.

Kind regards, 

Jolamine xx

Just a quick update about my lesion. It swelled up again last week and became sore again just like it first did, but has now calmed down again.

I had received an appointment at the Maxo Facial on Sept 24 for an appointment to discuss the results, and have been phoning the GP regularly for any results, with no joy. 6 weeks now since the biopsy so I am confident its nothing major, no news is good news and all you know,  but today I received ANOTHER  appointment letter for Max/Fac in another hospital so now I'm a bit confused.

I think I'll give the hospital  a ring next week.

Thanks for edit Jenna. ,Didnt realise you couldnt name hospitals.

Hi Klopptastic,

I agree with you. It's time to phone the hospital and see what's happening and why you have 2 different appointments.

Kind regards,

Jolamine xx

Hi expat,

just wanted to know that all is fine with you and what happens to the pitch which was diagnosed as leukoplakia and have you had it removed or it vanished own it's own if it had vanished then how long it took to be venished thanks .

Hi 

Within 2 weeks of the biopsy I was in for surgery as diagnosed with severe dysplasia, took bit more of my tongue than expected but it healed well with no adverse effects. They took samples of the tissue removed & I was told they hadn't removed a clear margin of tissue so I expect a return one day, I have had a few checks in the meantime off my own back but they seem to be happy with no concerns, I have my next check up 5th Jan as a I had an ulcer on the tongue for 5 weeks which seems to have cleared up but I now have another small white patch on the scar tissue, probably nothing but I prefer piece of mind, so 2 years post surgery all is good, I try to put it all to the back of my mind but expect a return 1 day! 

Hi,

tha ms for your reply, I have patches in both sides of my cheek and Gp told me it seems like lichen planus but patches are getting bigger and I am too much worried I have history of dipped tobacco amd cieggrette on and off .I am only 33 years old .do you think I should be concerned about my patches these patches are inside my cheeks since least week of September .