Hello Expat. I hope you went out today and spent time with your friends from work,   I just want to say that i am recovering from tongue cancer I am not or never have been a drinker or smoker so when " they say" it is a smoker/drinkers cancer they are wrong...I was told that i was in the wrong catagory didnt tick the boxes so we will send for you again in 10 to 12 weeks but absolutly nothing to worry about returned 12 weeks later had an understudy take a biopsy  by this time i had earache as well told no nothing to do with tougne go see your doctor again about your ear its nothing to do with your tongue and again you have nothing to worry about this is NOT cancer we will have results in 3 weeks time. returned to be told we will take another biopsy as we didnt take enough so another one taken.. returned 3 weeks later no its not cancer but it could turn nasty if not treated  we will bring you back and remove it my husband said no  she has been through enough and the earache every day my wife has been coming to you since May it is now September Oh that long...ok go have a cup of tea come back I will remove it in half an hour. Brought back 3 weeks later to be told sorry it is cancer we will bring you in and operate might have to do skin graft. the point im making here is to be told you dont smoke/drink your not in the right catagory is crazy and the earache was caused by the cancer it is the same nerve from ear to tongue this cancer is more common now than ever I dont mean to frighten you Expat but if you are diagnosed with this remember you will get through it its tough but you will get through it...keep your family and friends close as we all need someone to help us when things get tough...and this chatline is a great help too...god bless D.

Hi Expat,

I put some respones to your questions. 

Results wise, I got my results quickly, my consultant sped up the results and I had them within a week of biospy. 

I don't think it would make a difference if you give up bad habbits before a biopsy. But regardless of the result, you should try to give them up anyway if you can.

I had to have time off work for the biospy half a day, so I told them I was having it but nothing more until I got the result.

Cancer does not have to relate to anything we have done, sometimes it just happens. I was 23, hardly drunk and did not smoke. That being said however, now I am recovered, I have the odd drink. You can't live in fear, more so when in the 20's/30's.

Please keep us updated, good luck.

Hi Klopptastic,

I had my biopsy for White spot on side of my tongue on 29th April, my follow up appointment was booked for 4th of June, they called me within 7 days as the results were abnormal & in for op 7 days after that. You can see my progress on previous pages. I too didn't have any major issues with the biopsy but the initial swelling straight after the op scared the hell out of me but subsided within hours felt like I'd bit my tongue for a few days but normal pain relief definitely helped. It's been 6 weeks or so since my op, I'm in this Fri for my follow up appointment, hope all goes well for you keep us all posted.

Hi Stokemale

Good to see you posting.

I was thinking just last week that your follow up appt must not be far away. Heres hoping it goes well for you.

Come back and let us know how you fared on Fri wont you.

Take care & keep well.x

Hi Stokemale,

I'm keeping my fingers crossed for you on Friday and hope that you get favourable results.

Kind regards,

Jolamine

Morning all,

Thanks for your thoughts, I feel really good in myself & have tried to put all negative thoughts to the back of my mind, I think the old saying is true 'time is a healer initially I thought my world was going to collapse but as time has gone by things have got better. My wound healed really well to the point it's barely visible, I still have a small amount of numbness as a daily reminder but it doesn't bother me. I'm keeping my fingers crossed for Friday also & taking each appointment 1 step at a time, take care all x

Hiya Clara and Stokemale. No soreness at all today. It is almost as if yesterday didn't happen. Very odd. Drinking coffee, eating what I want, no pain WHATSOEVER from tongue.It is now exactly as it was when this all started. Worrying me slightly because I was inwardly bracing for the natural pain of a wound and stitches but nothing at all.

I think my follow up appointment has been auto generated for Sep 10th as had text today confirming it. On holidays then though so asked for different date.

Will keep you updated either way as I do think it's important people see the good news as well as the bad especially on forums like this. Hopefully mine will be good.

Dear Clara.  hello  how are you keeping I havent been on the form for so long...so much been going on regarding my sister..I see you have said that you may need more biops...I am sorry to read this clara...I have always thought about you wondering how you have been getting on..but you just assume the worsed is passing and we all get on with staying strong and getting over this dammed illness..I pray you are well. Kindest Regards your friend Dee.

Hi Dee

I am so sorry for missing your post.

This is my second attempt at replying. I just got near the end and it disappered and went to page 7 of this thread.So i will make this one shorter.

Yes new lumps appeared. I go to hospital quite soon so will see what they make of it. Specialist nurse was insistant that I see GP but he was a locum and his thoughts were bits of bone??

I hope your sister is Ok.

Keep well  speak soon. xx

Hi all,

I forgot to post following my appointment the other Friday as I flew out to Turkey for 2 weeks that night, currently still there but just lounging around & thought it'd be good time to catch up.

Saw consultant for my 6 week check following op. & he was really happy with how wound healing, I was a bit taken shocked when he told me he would see how things develop over next 3 months then get me booked in for another op! I kind of expected that as cells had progressed into healthy tissue something would happen 1 day but not so soon. He did kind of joke with me that they wouldn't be so brutal next time to lighten the mood which I suppose is a good thing, so 3 month wait then see what happens, take care, catch you all soon.

Hi Stokemale,

Many thanks for your update. This sounds like good news to get just before you went off on holiday. I hope that you are enjoying Turkey and having a nice relaxing time.

I can understand your concern about having to return in 3 months and possibly having further surgery then. Hopefully all will still be good and there will be no need for surgery.

In the meantime, do your best to forget all about this and live for each day. Don't dwell on what might happen, which is something you can't control. Instead enjoy life and family time.

Don't forget to update us when you have your review.

Kind regards, 

Jolamine xx

Just a quick update about my lesion. It swelled up again last week and became sore again just like it first did, but has now calmed down again.

I had received an appointment at the Maxo Facial on Sept 24 for an appointment to discuss the results, and have been phoning the GP regularly for any results, with no joy. 6 weeks now since the biopsy so I am confident its nothing major, no news is good news and all you know,  but today I received ANOTHER  appointment letter for Max/Fac in another hospital so now I'm a bit confused.

I think I'll give the hospital  a ring next week.

Thanks for edit Jenna. ,Didnt realise you couldnt name hospitals.

Just a quick update about my lesion. It swelled up again last week and became sore again just like it first did, but has now calmed down again.

I had received an appointment at the Maxo Facial on Sept 24 for an appointment to discuss the results, and have been phoning the GP regularly for any results, with no joy. 6 weeks now since the biopsy so I am confident its nothing major, no news is good news and all you know,  but today I received ANOTHER  appointment letter for Max/Fac in another hospital so now I'm a bit confused.

I think I'll give the hospital  a ring next week.

Thanks for edit Jenna. ,Didnt realise you couldnt name hospitals.

Hi Klopptastic,

I agree with you. It's time to phone the hospital and see what's happening and why you have 2 different appointments.

Kind regards,

Jolamine xx