Hello Nasmuch, and a very warm welcome to Cancer Chat!

I wanted to stop by to suggest that you give our information nurses a call so that you can chat through your results and ask any questions you have: 0808 800 4040. They're here till 5pm today, then back again from 9am on Monday. 

Hopefully, someone who has had similar tests will be along soon to share their experiences here but, in the meantime, do feel free to give the nurse team a call. They'll be happy to talk. 

With best wishes,

Helen

Cancer Chat Moderator

HI

CA125 is not the most accurate test as it can be raised by inflammation too.  The rang is 0-31 so your first test wa slightly raised but you ultrasound was normal which is good.

I was 42 when diagnosed and I had clear cell which does not evaluate the ca125 but my large tumour was picked up on ultrasound.

let us know how you get on or join our excellent group on Facebook called ovarian cancer uk.  

A

Just checking in with how you are as I am finding myself in a very similar situation. My CA125 result was raised and I have been for my scans today which were clear, the radiologist has recommended a gynae referral. Not sure what to expect or what they are looking for. I get severe pain and at some stage can feel a tennis ball sized swelling low down on the right hand side when I'm laid down in bed or sitting on a chair so I can feel my lower abdomen. I had a partial hysterectomy 7 years ago. Feeling really worried.

Hi nasmuch,

i’ve Only just looked at this post and was wondering if you ca125 had gone into the normal range yet.

i myself am 38 and have had a raised ca125 sine September last year, having several blood tests ranging from 81-55 . I’ve 3 sounds which show nothing and now they want look at my other organs and I’m feeling pretty tense as you can imagine.

i guess I was just wondering if you had been given any medical reassurances i hadn’t heard yet.

Hi Casey10

A ca125 can be raised for other things like inflammation in the pelvic area, if you have had ultrasound then you should be ok from what I seen in other ladies with ovarian cancer.  

Are they planning to do a CTScan as if you have it with constrast it will pick up most things.

stay positive 

A

Hi I’m rather late to this post and realise you probably have an answer by now to your concerns.

i was diagnosed with Ovarian Cancer in June 2018, my CA125 was 772! I was convinced that it was in multiple organs. 

My symptoms were classic, I just didn’t know that at the time, tired, needing to pee a lot, bloated, loss of appetite and pressure  in my lower abdomen, I had put that down to getting old at 59

Turns out my tumour although the size of a cantaloupe melon (yes I had to track one down to see how big that is) wasn’t attached to anything else, so all successfully removed. I have blood tests every 3 months and so far fingers crossed the highest it’s been since is 13

Hi there,

May I ask how things went as I find myself in a similar situation. Raised CA 125 of 85 but clear ultrasound. Have just found out I have a 9 week wait till I see the gynea. So feeling nervous about the wait. Thanks for your help 

Hi, 

I’m not sure but think a raised CA125 can also be due to an inflammation. Hopefully that’s what this turns out to be.

my tumour was picked up on an ultrasound and after another gynae appointment 4 weeks later I had a ct scan which confirmed ovarian cancer. 

I wasn’t in pain, just an aching in my lower abdomen, I’m sure others have different experiences. 

Altogether the wait from diagnosis to surgery was about 9 weeks . It was completely removed and blood tests are back in the normal range.

hope this is what you wanted to know, whatever it is stay positive, it makes all the difference. 

Hi all,

Good to hear some postive news, my Mum was digonsied with Ovarian Cancer 3 weeks ago, all a big shock for the family, we are told its 5cm big and they want to do a Hysterectomy to remove the cancer, as you can imagine we are all thinking the worse so to hear some of your stories has made me feel a little better today, the strange thing is with my Mum her Bloods have have come back normal 3 times, we are waiting for a date for the op so hopefully that will be soon.

Please look after yourselfs ladies and thanks for sharing you stories x