Hello everyone,

I've had a read through this thread after experiencing symptoms myself and I just want to say how sorry I am that you have to all go through this, it sucks and I know you're all strong, we'll make it through this somehow. 
 

I was reading this thread because as I said, I've been having symptoms too, very similar to what is being mentioned here. Noisy stomach gurgles unrelated to hunger, sometimes diarrhea, sometimes constipation, pain across the stomach area but mostly on my left lower side. I had a stool sample done, came back clear. Blood test done, only came back with an unrelated folic acid deficiency. They diagnosed me with IBS as my mother has it too (mum was diagnosed in 2017 and had colonoscopy, sigmoidoscopy and endoscopy) but I'm pretty sure it's not hereditary and I know how many people are misdiagnosed with it so I persist to worry. I'm 16 as this has been going on since April 2020. I'm due for another blood test soon for my folate deficiency, but I was thinking of using that time on the phone to speak to the doctor about my concerns and possibly ask for a colonoscopy. Yet I fear I'm going to be turned down because of COVID. My parents are not worried at all, and my mum gets angry at me when I ask to contact the doctor since her phone number is still the line of contact the doctors have for me because of my age. Just very scared at this point and worried it's something worse.

Hope all are doing well,

~Ellie 

Hi all,

I randomly came across this thread and it's the first time I've even seen people have the same symptoms as me. Really happy it's not just me, whenever I explain this to the GP it's like she's never heard of it. The whole rumbling / noisy stomach thing has been at me for over a year and still nobody has any clue what it is. There's no pain whatsoever, just very very inconvenient and keeps me up for hours at night.
 

I had an endoscopy last year and they found a hiatus hernia but I'm pretty sure that's unrelated. Also last month I had a colonoscopy and annoyingly, nothing found there.

IBS seems to be common with people here and maybe it could be that (?) but GP never mentioned it. After the colonoscopy I'm back to square one but I'm glad I found other people in a similar boat. 
 

Also to Ellie ^ it's a bit reassuring I'm not the only young person with this. I'm 19 now but had all sorts of weird stomach things since 16, hopefully it doesn't turn out to be a long term thing! (Maybe it's similar in UK, but the colonoscopy still went ahead in my Irish hospital by the way!)

Keep well,

Adam

Hi Adam,

I just want to say it's the same here, the fact that I'm not the only young person going through this is super reassuring! I hope you're keeping well and that you've managed to get closer to an answer somehow.

As for me, my blood test to check my folate levels came back completely fine, so I was back to square one too and it was really frustrating. That was until I went to the toilet one morning and noticed blood in my stool and knew I had to call the GP again. They got me to do another stool sample, and while it didn't show blood and it isn't a definitive answer, it came back positive for inflammation. I'm due to have another blood and stool test in a few weeks, but the doctor has let me know that now it is unlikely that this is IBS. This is a different GP from the one that told me I had IBS, as this one said it was completely wrong of them to diagnose me with it in the first place!

I'm still having pains, diarrhoea, occasionally blood, but it's slowly becoming my new normal so I'm just having to get used to it for now. The GP has told me that this is most likely IBD (Crohn's disease or ulcerative colitis), but hasn't ruled out diverticulosis, endometriosis, or something worse (god forbid). If anyone is worried about their journey with the same symptoms, I'll keep posted on mine to let you know what it is. I hope everyone is doing okay here! You too, Adam! :)

I hope you're all well,

Ellie

Hello,

I am 34 M, 

In May I was waking up gasping for air, I believe it's called sleep aponea? So I went to the A&E on the advice of NHS111, my shoddy  hospital put me in with the covid patients. Since then I have had gut noises and they are becoming harder to get rid off, my GP is calling it IBS, thankfully they have referred me to CT scan, which I took yesterday. It's been three months since the first noises started. My advice to anybody with similar is to stay calm, get a referal and dont rush off down to A&E if it isnt an accident or an emergency, they wont help. Eat well, sleep and drink plenty of water. I will let you know the outcome if I can.

Keepcalm

Ellie,

You are 16, there are a lot of dangerous articles on the internet that look helpful, trust your parents to make the right choices for your health. 

Keepcalm

Hi 

I really hope everyone is well! 

I have had so many of these symptoms - started back in Feb and have been consistent; i had b llods in feb they were normal so to docs referred me to Gastro - they werent concerned as i am only 35.

This last month i have been really poorly blood in stools, nausea, pain in stomach etc & they upated my referral to urgent; however the clinic said i do not meet the key markers for concern due to my age so it can be up to another 26 weeks wait..... im worried and fed up.

I guess the fact that the Drs arent concerned should be comforting but they have ruled out haemmaroids so i guess it has to be something - scary times!!

Thank you so much for your post.

I'm in exactly the same situation. I've had blood in my stool multiple times over the last few years, but as I am prone to having piles, this is what the doctor is putting it down to. It's horrible knowing that I have something wrong with me and not having a clue what it is. The hardest part is the doctor makes it out as there's nothing wrong with me and same as you, I'm told it's most likely IBS?! My stool changes from day to day and that worries me when it comes to stool samples! I believe I need to take a stool sample everyday for a week, this way they get to see it all.

I'd really appreciate it if you kept me in the loop as to how you get on and I will do the same. 

Like you say, it's good to know we're not in it by ourselves! I've felt so alone up until now!

Thank you

Paul. 

Hi adam,

Just wondering if the noisy stomach/gurgling ever went away as ive been having the same issue for just over a month now awaiting to see if i need the camera but had alot of tests without answers. Mine is like a feeling of gas bubbles popping withing my stomach and seems to be constant when lying on back. Does this sound similiar ? 

Hi adam,

Just wondering if the noisy stomach/gurgling ever went away as ive been having the same issue for just over a month now awaiting to see if i need the camera but had alot of tests without answers. Mine is like a feeling of gas bubbles popping withing my stomach and seems to be constant when lying on back. Does this sound similiar ?