Hello Gjb, 

I'm sorry to hear about the symptoms you've been experiencing and can understand your need to finding out what it is causing it. If you're concerned about the results that have come back so far maybe you could ask your medical team if it would be possible to have biopsies taken from other locations of your oropharynx? One of our lovely members here on the forum, [@Vatch]‍, has had experience of tongue based cancer and now that I've tagged him in this post hopefully he will be along soon to share his advice and experiences with you.

I hope this helps Gjb and you are able to find out the cause of your symptoms soon.

All the best, 

Steph, Cancer Chat Moderator

Hi Barry,

I am currently going through a nearly identical set of symptoms as you. Started off as right-sided tonsil pain in late June that then became a lump-like feeling (but no palpable or visible lump) and a feeling of muscle tension on that side very much exactly like you describe: "strange tingling sensation under my jaw, like it was going to cramp up, but it never cramped". At first I thought it was an infection and indeed I actually did end up having a kidney infection in August. However, the throat pain persisted and later, I noticed that my right nostril was also partially stuffy and I felt like a lump of phlegm on my right side as well that kept coming up.

Thankfully my GPs took the issue more seriously than yours have and I was given an urgent cancer referral. Saw an ENT in early September but noticed nothing suspicious during the endoscopy. I have also not had any swollen lymph nodes, or neck lumps, although that side of my neck feels a bit swollen (to me at least). ENT did notice phlegm stuck at the back of my throat which was "consistent with reflux".

I had an MRI a week and a half ago and am awaiting results. ENT prescribed a steroid nasal spray and reflux meds. I had a cold this weak and the throat pain has gotten tremendously worse so I do suspect that the culprit is sinus/nasal/reflux related although I won't deny that I'm still a bit stressed out at the possibility it might be cancer. The MRI will have the last word on that. I am somewhat reassured that none of the cases on this forum of throat/tonsil cancer have had initial symptoms like ours.

undergoing similar. was the mri you had of the face and neck? contrast or non contrast

what biopsies? doctors kepe refusing unless something shows. how do i get something to show

Hi I am Aisha I wake up this in the morring with a really sore tough and so through I can hardly move my tough it so sore it's at the top and bottom can any off ues give me advise thanks 

I am also really worried about cancer. 25 and I have been suffering with globus on the right side of my throat on and off for ages. However it's developed into swallowing issues. Feels like the food gets stuck when I swallow on the right side so having to chew and swallow on the left. Almost feels like I have a lump on my tonsil or the base of my tongue on that right side. I am taking Omeprazole as Zantac has been stopped. Really concerned and losing a lot of weight. Terrified it might be cancer. 

hi 

same here 

have you seen any doc or not

Apologies for the late replies, everyone.

Some updates since the last time.

I got a CT scan done in September 2019. Results came back 10 weeks later with no answers.

I got an  MRI done in February 2020. Results came back with no answers either.

So to round up at that point, I had 5 endoscopies, 1 CT and 1 MRI. None of which, had any answers.

June 2020, I was back for another endoscopy but again, nothing was found. As frustrating as this is, it is still kind of reassuring that nothing sinsiter was obvious. So they took blood for the first time in 18 months to see if they can look into it further.

I am now waiting on an appointment to get an ultrasound done. So I will keep you posted if anything changes.

They discussed possibly removing tonsils if it turns out to be a tonsils issue, but they think that might make things worse, especially if it turns out to be nothing to do with tonsils. They are looking into a possibilty of an issue with my saliva gland, which I think might be a possibility.

It's all guessing games still. And this is very frustrating, considering we are now 18 montjs down the line with 0 answers.

Hi Barry , how are you doing now? I hope all turned out ok for you .
I'm going through  the exact same situation and it's honestly scaring me to the max. I'm getting no where fast . 
w x

Hi there. The ultrasound showed nothing at all. Therefore, they weren't able to do any biopsies.

As frustrating as all of this has been, I am still relieved that nothing sinister has been found. But I am still sitting where I was in December 2018. Not knowing what is causing this. I am still at square one.

The ultrasound doctor said I would be contacted again by the doctor that sent me, but still not heard anything yet. I need to see what can be done next. If I don't hear anything in the next 3 to 4 weeks, I will need to contact them again. It always seems to be me doing the running around trying to arrange the next steps. That is very worrying.

The best thing you can do (and the best thing I done) is just not read about or search anything on the internet. I found that hard for the first 6 months. But all the results I found kept giving me panic attacks. I didn't read anything and it keeps me more at ease. The only thing I really read now is this thread to update people in the same situation.

I hope this helps.

Hi Barry

did you get to the bottom of your symptoms as I've been following as I have similar symptoms. Did have feelings of something in throat and now I just get pain most of the time on right side but not when swallowing. Bloods came back clear and now being referred to ent.

Hi Barry

did you get to the bottom of your symptoms as I've been following as I have similar symptoms. Did have feelings of something in throat and now I just get pain most of the time on right side but not when swallowing. Bloods came back clear and now being referred to ent.

Hi there. Still no update since my last post. I got a letter from the doctor who has been overseeing my issue a few months ago.

She said she was going to arrange a check up with me in a few months (which is round about now). So I await an appointment to speak to her to see what to do next.

My condition is still the same. Enlarged tonsil at the right hand side since December 2018. Still the feeling of something stuck and all the other symptons the exact same for almost 2 years now.

Are you still waiting? I'm 3 years waiting for help now x