terrified waiting for test found large breast lump

Im sitting here just in a dreadful terrified state, thinking what about my kids and my partner,,its my daughters wedding in two days and I just found out I need an urgent mammagram etc I found a large lump saw the GP and her face said it all the lump is big and obvious and I sort of hoped she would say 'lump what lump' but she went right to it and said it was large and needed seeing urgently.

Im scared stiff and its going to be weeks really before I know how bad this is..OH god how can I get through the next few weeks and the wedding acting normal I cant tell the kids certainly not my daughters and ruin the wedding but I have to pull myslef through it all and do my job and look like it is such a happy time when truth is I just keep crying and wanting to screem and run!!!!

what the hell do I do

A X

  • I get just what you mean about the escalator taking you along and not really taking it in.  I dont really feel ill which makes it harder to accept that I have cancer, even writing it here it just seems unreal.

    I find it hard to understand that I have had cancer for who knows how long but didnt have pain or illness as such, I have been having times when I was suddenly exhausted etc but I had put it down to my fibromyalgia which can pop up like that from no where.

     

    How long ago did you have your lumpectomy claire? Do you mind me asking if you can tell me a bit more about how that felt and how it looks now?  If it was very painful etc please dont pull any punches I would rather know, so I can prepare myself mentally.  At the moment I am feeling pretty strong and ready to take it on (fingers crossed this feeling goes on)

    Andrea X

  • Try not to worry until you have had the mammogram and biopsy. My  GP refered me straight away and within three weeks I had an appointment.

    My breast cancer was diagnosed quickly and three operations later all the cells have gone. I'm seeing an oncologist next week to discuss radiotherapy which is final stage of my treatment. 

    Take care xx

  • Hi Andrea , know what your going through, I feel like I'm not on the planet some days, I was diagnosed with breast cancer 2 weeks ago and went for MRI scan last week , the 2 weeks wait is awful for results I go back 9th November and will get surgery fate and treatment plan, until you are dealt with this card and join this forum you don't realise how many ladies are going through the same thing, we have to keep positive and kick this cancers butt, we will both get results next Wednesday so we can go on this rollercoaster together, 

    your new cancer buddy

    Hev

  • Hi Andrea

    You can ask me anything at all, we're all in this together. I think one of the most worrying things to me is the fact I looked and felt fine, but I had this killer disease growing inside of me. I had no symptoms at all either and I have scoured the internet for anything but zilch. A girl I have met is just going through chemo as hers has spread to lymph nodes and she felt fine and even looks good now .... That is one of the questions I am going to be asking oncologist !!

    I will send you a private message with details of op as I know some people prefer to not know whats coming and face it at the time.

    You are sounding strong and positive which is excellent , I was a blubbering wreck at your stage now so well done you. You are doing great.

    Claire

    xxx

  • Hi Andrea , have you had your results yet ?? I,got mine on the 9th November, going in to have tumour removed and some lymph nodes on Monday 21st , then get told what's next , have been told will have to take hormone drug for next few years , I'm going away for a few days next week need to get away from hospitals and normal life , wide awake at 3:15 in the morning , just hoping to get normal sleep pattern back again one day , stop the rollercoaster want to get off
  • went back for my treatment plan yesterday and again I wasnt given it!

    Im now told they want to know if it is lobular or ductal so I need mri and ct before treatment plan is decided on...I just wish they had sent for these scans at two weeks ago when I first had biopsies.

     

    Im desperate to get treatment started and to be scanned to see if it has spread but I feel as though I cant make progress, This is the second time I have turned up being told I would get a tt plan to be told they can not give me one and Im getting nervous now..time seems to be ticking away ... I try not to think about it too much but it is scaring me 

    overall Im keeping pretty positive however not sure why but ....

  • Hi Andrea 

    so sorry to hear that can imagine where ur mind goes at this time !!! Try to stay positive MRI / ct scans are perfectly natural in these circumstances, it takes a better picture of sizes etc & wat op they think is best. It really seems like it takes forever I know but all these tests are why they are so good at wat they do .... no help to you wat so ever at mo, I was freaking at the amount of time everything took. But this time really is the worst bit hun, the waiting is unbearable at times. Keep in mind there will be a team of specialists looking at all results & putting a plan together that will b the most positive for you

     I'm sorry I can't remember if u had lymph nodes that were effected ? This can sometimes mean more tests. Wen u have had scans etc it is very quick I had results of MRI & op 10 days later. There are Nhs guidelines for treatments once u have been diagnosed so they will have to keep within those. 

    Wine, tissues, box sets, tlc & family friend support got me thru this bit it's so hard but stay strong brave lady you really are doing amazing

    Take loads of care of you, thinking of you

    love Claire 

    xx

  • Hi Andrea,

    I too have two daughters and a son! The son is still at school and is the sensitive type. Like you my eldest lives away but we are in constant contact she is a great source of strength to me. We told them and my son collapsed with shock and grief his sisters have been helping him. My eldest flies in tonight to be met by her siblings. I'm still waiting for the results of 3 biopsies but they said it was just to identify what type of cancer it is so they can decide on a treatment plan. I have found that the best comfort for the kids is eachother as they are feeling the same and know eachother best.

    I am finding my mood swings from strong and positive to a crushing feeling of impending doom that I refuse to burden my family with. I can't tell you how good it feels to have someone who doesnt know me but knows how I feel to talk to. Lets take this journey together and stay in touch. 

    My son told me that one of his school friends' mother is a survivor and I talked to her at a school event she has been great so supportive and knowledgeable. She said we are a sisterhood admittedly that no one wants to join but once you are in its good to have the love and support it offers. So I recommend that you contact any survivors you know they will be glad to help.

    All the best to you

    Andrea 

     

  • hi I know this post was 2 years ago ? I’m going through the wait for my first appointment having found a lump on 28th December 2018. I go to the hospital on 14th jan but my mind is flicking from one thing to another. Some days calm and some thinking the worst. Family history of breast cancer and I had a mammogram within the last 12 months which was clear then . Now lump is here and I’m scared

  •  

    Hi Gillian,

    Welcome to our forum, although I'm sorry for the reason that you're here.

    Waiting for your first appointment and then for the results of tests is always a scary time. The best thing to do to try and distract yourself from the wait is to keep yourself as busy as possible and, to avoid consulting Dr Google, as this will only scare you further.

    The emotions you describe are perfectly normal. Most of us seem to think that we have a worst case scenario, but fortunately, this is seldom the case. Of every 10 people referred to the breast clinic, only 1 will be diagnosed with cancer, so here's hoping that you are one of the lucky 9!  There are a number of other reasons for lumps in your breast.

    I too have a strong history of breast cancer and, was diagnosed myself 9 years ago. Like you, I had a mammogram earlier that year and, was told that all was clear. My second cancer was diagnosed the year after I had my lumpectomy. This time I had a double mastectomy.

    I hope that all goes well for you on 14th and, that you do not find anything untoward.

    Please let us know how you get on and, remember that we are always here for you.

    Kind regards,

    Jolamine xx