Been referred to Breast Clinic and freaking out...

Hi all, 

I'm sure there are lots of messages like this one, but I thought I'd post a message anyway as it seems like a good place to vent my worry without unnecessarily alarming other people in my life!

I went to see my GP yesterday as my right breast has been feeling a bit tender lately. My breasts are quite naturally lumpy but recently it's felt like there is an area of my breast which is more solid than the rest. I don't know why, but I kind of expected the GP to say it was nothing and for me to carry on with the rest of my day as usual. Instead as soon as I mentioned slight pain in my right breast her general demeanour went from bright and breezy to serious and concerned. She asked me if I had any family history of breast cancer, and I told her my grandmother had it (she passed away from breast and lung cancer aged 68). I also remembered after my appointment that my mother's cousin had it, although my mum and aunt are fine (at least so far). She examined my breast, and although I hadn't actually mentioned finding any lumps she immediately found the place that I had identified myself. She said she wasn't sure if it was a lump, or just a nodule as my breasts are quite nodular, but she would refer me to a breast clinic for screening. She would recommend all available tests. She said she thought they would want to see me "very quickly". So as you can imagine I left the GP surgery alarmed. I also got a call from the hospital the same day (yesterday) to arrange an appointment - which also alarmed me as I figured they had prioritised me because they suspected it was cancer.

The appointment is for a week on monday. I'm not sure if I can wait that long because psychologically I'm already finding it very tough.

This year is a very big one for me as I'm getting married in three months. The wedding is abroad, everything's already organised, many people have booked their flights and accommodation. Me and my fiance are planning our life together. I can't imagine everything being disrupted by a breast cancer diagnosis. 

More than that, I can't imagine trying to face breast cancer if that is the diagnosis. The GP said I should try not to worry, and that most cases are benign, but I am upset that I was referred so quickly. 

I tried to talk to my Mum about it, especially as my stepdad is a retired doctor, but both of them immediately dismissed it by saying if I have any pain the likelihood is that it's not anything serious. My boyfriend is being very understanding, and saying that if it's serious we can postpone the wedding, we'll do whatever it takes. But I already have a lot going on in my life and I'm struggling to imagine the possibility, however unlikely, of taking breast cancer on as well. 

How do people cope with this? I don't want to mention it to friends as I don't have a diagnosis of anything yet. But at the same time I find it hard to socialise etc as normal with this dread hanging over me.

Sophie x

  • Hi everyone

    I found a lump in my right breast Saturday night, went to the Nurse today and have been referred on an non urgent referral due to being 26. 
    I have 2 young children and feel sick thinking about the appointment, as you all have experienced I can't stop thinking about the what if's. 
    I'm so glad I found this forum to have similar people to talk to who have been through this. 
    Now the agonising wait begins. 

  •  

    HI Emmal2309,

    A very warm welcome to our forum.

    I am sorry to hear that you hae found a lump, but I'm glad to hear that you have got it seen to quickly. It is a good sign that the nurse has referred you under a non-urgent pathway. If I were you, I'd be a lot more worried if she had insisted on an urgent pathway. Not all breast  lumps are cancerous, especially in younger people. It is a fact that only 1 person in every 8 referred to the breast clinic will get a cancer diagnosis. Many lumps turn out to be benign cysts, fibrous or hormonal changes.

    It is difficult to remain calm at this stage. We all tend to give rein to our imaginations and it is perfectly normal to fear the worst - fortunately this seldom happens. Breast cancer is one of the most treatable types of cancer nowadays. I myself, have had 2 bouts in the past 12 years and I still lead a busy and fulfilling life.

    Try to remind yourself that "it isn't cancer until you're told that it's cancer". Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thanks Jolamine

    You have reassured me a lot, unfortunately under 30 I dont think they do urgent referrals from what the nurse said. I'm hoping I get my appointment date soon even if its weeks away, just so I then have a date I know I'm going to be checked. 
    Will keep you updated 

    Emma


  • Hi Emma,

    Some young people can find it difficult to get a referral at all and really have to push to get one. However, anyone can be referred under the urgent pathway. I hope that you don't have to wait too long before you get an appointment. Do you know what hospital you've been referred to? If it's taking too long, perhaps you could phone them and see where you are on the list. It usually takes two weeks from the date of referral to get an urgent referral, so perhaps you could contact them after 3 weeks?

    I look forward to hearing how you get on.

    Kind regards,

    Jolamine xx

  • Hiya Sophie

    its seems our situations are quite similar..I went to doctors last week with same symptoms but I felt a couple of lumps in my left breast myself..drs said she doesn't seem to feel anything to worrying but she said nevertheless she would like me to be referred to breast clinic..I got a call from hospital the day after giving me an appt for a mammogram on 4th feb..I know exactly how you feel aswel..my anxiety is all over..I can't stop thinking about a diagnosis if there is one and I feel bad for my kids..it is worrying when they send you to hospital as an urgent..I was thinking the same..just waiting around now until my appt day..I hope all goes well with your appt an I wish you health and happiness

  • Hello everyone. 
     

    sorry to jump onto this post, I read through the entire thread and everyone seems so helpful and even better is that everyone understands what we are all going through here. 
     

    I am 27 almost 28. For the last couple of months I've had spots all over my right breast and collarbone pain, I ignored it and just thought I'd strained it and my breast was irritated by like washing powder or something. Then on Sunday my right breast felt weird and I had noticed that my nipple had completely inverted and this had never happened before, my breast is also looking a lot bigger. I made an appointment with my gp and she saw me immediately. She said my nipple definitely looked weird and felt a mass in my right breast, there's also a purple spot under my breast too, which I hadn't noticed with the rash. The pain is now through my collarbone, armpit and breast, but idk if my anxiety is making it worse. 
     

    due to covid and living in London the soonest I can be seen is February 24th! I don't know how I'm going to last another month of worrying! 

  •  

    Hi Graceybaby,


    A very warm welcome to our forum. I am so sorry to hear about your symptoms and the worry that they are causing you. It is unfortunate that you  are having to wait so long to be seen, as this is always an anxious time. It might be worth phoning your consultant's secretary to say that you are happy to accept any cancellations that arise, as this sometimes gets you seen a bit sooner.

    It is unusual to have breast pain with breast cancer, so here's hoping that this rash is more of an allergic reaction to something. Not all breast lumps are cancerous. Many are benign cysts, hormonal or fibrous changes. The younger you are, the less likely you are to have cancer. It is also a fact that out of every 8 people who attend the breast clinic, only 1 will get a cancer diagnosis.

    Anxiety at this stage, can often make our symptoms appear worse. I do hope that you manage to get an earlier appointment. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hello, 

    Thank-you so much for getting back to me and easing my worries! It turned out the pains were just anxiety. I've started doing yoga and long walks to help keep my mind off of it. I think the unknown is always the scariest part. I've checked in with the hospitals and was told the other London hospitals all have the same waiting time and if a cancellation comes up they will give me a call! So fingers crossed! 
     

    I hope you have a lovely weekend and I will let you know if anything happens 

     

    Grace xx 

  •  

    Hi Graceybaby,

    I am glad to hear that you have checked out availability at other hospitals and that they will call you if a cancellation comes up.

    I shall be waiting and hoping that you are successful in bringing this date forward.

    Kind regards,

    Jolamine xx

  • Hi all, I have posted on a few threads on here and just found this one. I have been referred to the breast clinic and my appointment is tomorrow morning. My anxiety has increased the closer my appointment gets and today I am really panicking!

    I am 35 and found a hard area/lump that was tender at the beginning of the month that at first felt like a blocked duct (I had loads when I was breastfeeding but haven't fed for over 2 years) and I contacted the GP as it didn't go. I had a slightly raised temperature at the time and didn't feel 100% so the GP gave me antibiotics to rule out mastitis. The lump was still there so she wanted to refer me. It has possibly got smaller and softer over time and i think changed with my cycle, and the GP doesn't think it is anything sinister. In her opinion she thinks it's a cyst or possible fibroadenoma, but that doesn't help my anxieties! I have since found another lump elsewhere in the same breast, this one does feel like the characteristics I have read of a cyst, smooth, round, moveable and tender etc but I am still freaking out. My Mum had cysts a few times so I hope it's the same for me. I since have lost my Mum to cancer as well (not breast) so I think this is making my anxiety even worse knowing it can happen to me. Is anyone else going soon to the clinic or been recently and can give me any tips on how to keep calm? My IBS is playing up through the stress of it all and I'm struggling to sleep. 

     

    I will update on here after my appointment but just dreading it so much x