Been referred to Breast Clinic and freaking out...

Hi all, 

I'm sure there are lots of messages like this one, but I thought I'd post a message anyway as it seems like a good place to vent my worry without unnecessarily alarming other people in my life!

I went to see my GP yesterday as my right breast has been feeling a bit tender lately. My breasts are quite naturally lumpy but recently it's felt like there is an area of my breast which is more solid than the rest. I don't know why, but I kind of expected the GP to say it was nothing and for me to carry on with the rest of my day as usual. Instead as soon as I mentioned slight pain in my right breast her general demeanour went from bright and breezy to serious and concerned. She asked me if I had any family history of breast cancer, and I told her my grandmother had it (she passed away from breast and lung cancer aged 68). I also remembered after my appointment that my mother's cousin had it, although my mum and aunt are fine (at least so far). She examined my breast, and although I hadn't actually mentioned finding any lumps she immediately found the place that I had identified myself. She said she wasn't sure if it was a lump, or just a nodule as my breasts are quite nodular, but she would refer me to a breast clinic for screening. She would recommend all available tests. She said she thought they would want to see me "very quickly". So as you can imagine I left the GP surgery alarmed. I also got a call from the hospital the same day (yesterday) to arrange an appointment - which also alarmed me as I figured they had prioritised me because they suspected it was cancer.

The appointment is for a week on monday. I'm not sure if I can wait that long because psychologically I'm already finding it very tough.

This year is a very big one for me as I'm getting married in three months. The wedding is abroad, everything's already organised, many people have booked their flights and accommodation. Me and my fiance are planning our life together. I can't imagine everything being disrupted by a breast cancer diagnosis. 

More than that, I can't imagine trying to face breast cancer if that is the diagnosis. The GP said I should try not to worry, and that most cases are benign, but I am upset that I was referred so quickly. 

I tried to talk to my Mum about it, especially as my stepdad is a retired doctor, but both of them immediately dismissed it by saying if I have any pain the likelihood is that it's not anything serious. My boyfriend is being very understanding, and saying that if it's serious we can postpone the wedding, we'll do whatever it takes. But I already have a lot going on in my life and I'm struggling to imagine the possibility, however unlikely, of taking breast cancer on as well. 

How do people cope with this? I don't want to mention it to friends as I don't have a diagnosis of anything yet. But at the same time I find it hard to socialise etc as normal with this dread hanging over me.

Sophie x

Parents
  • I have been to see my GP today after 2 weeks of continual pain in my breasts with some nipple discharge. She got me to lay down and informed me they are really lumpy and asked if this is normal for me, which it's not.  I'm adopted but do know my birth mothers mum died of breast cancer which added a few more alarm bells to my head. She told me she will be writing to the breast surgeon to get me an appointment so now I'm worrying. What is the average timescale between referral and appointment?  Am I panicking too early? 
    Emily x

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    Hi Emily,

    A very warm welcome to our forum.

    I am sorry to hear that your GP has felt it necessary to refer you to the breast clinic. Try not to let this worry you, as only 1 person in every 8 referred will get a cancer diagnosis. You don't say what age you are, but many young women also have naturally lumpy breasts.

    You will usually be seen at the clinic within 2 weeks from referral. Panic won't change your outcome, so try to stay calm.  You will find that keeping busy will help to pass the time as your're waiting.

    You may have some tests taken when you are at the clinic and it usually takes 1-2 weeks to get the results of these back. It is not usually until this stage that you can be sure that all is clear.

    Please keep in touch and let us know how you get on. We are always here for you.

    Keeping my fingers crossed for good news.

    Kind regards,

    Jolamine xx

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    Hi Laurah,

    You'll be glad that your appointment is almost here. I shall be thinking of you tomorrow and hope that it all goes well for you.

    Kind regards,

    Jolamine xx

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    Hi Champagneproblems,

    A very warm welcome to our forum. I am sorry to hear about your fears, but you are doing the rght thing in getting your symptoms investigated. Your breasts will look slightly smaller if you've lost some weight.

    This is a difficult time for all of us, as there are so many unknowns. You will feel better once you know what the problem is and you start to address it. The two week referral time is normal, but it can feel like forever when you are waiting to be seen. I am glad to hear that you have finally managed to get the right diagnosis for your mental health problems and, hope that it won't be long before you know where you stand with your breasts.

    Please keep in touch and let us know how you get on. We are always here for you.
    Kind regards,

    Jolamine xx

  • Hi everyone, just got my appointment letter today for breast clinic after a referral.by my gp, got an estimated 2/3 cm lump in my breast, the wait is 2 weeks, I was ok until I got my appointment and now everything is going through my head, my son had testicular cancer and won the battle but finding out I go to the same.part of hospital as he did is scaring me, how can I switch off and stop worrying, my gp said sit tight, easier said than done x

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    Hi Jane,

    A very warm welcome to our forum., although I'm sorry to hear why you've joined us. The wait to be seen is always a scary time and the waiting time seems to crawl by. This must be especially difficult for you  having to go to the same part of the hospital as your son did. I am delighted to hear that he has won the battle and, I hope that he is doing well.

    We all tend to think the worst at this stage, but fortunately, this seldom comes to pass. Try to remind yourself that not all lumps are cancerous. Some are benign cysts or fibroadenoma. It is worth reminding yourself that only 1 person in every 8 referred to the breast clinic will get a cancer diagnosis. Can you get involved in a project of some kind for the next two weeks, even if it is only doing a jigsaw? Having something to distract yourself from the wait will help to pass the tme. Keep telling yourself that 'it's not cancer until you're told that it is'.

    Please keep in touch and let us now how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi all just wanted to update had my appointment today at the breast clinic I was firstly examined by the specialist nurse then had a mammogram and ultrasound by the doc they told me there was no suspicious findings on either and that I have mixed glandular tissue which is normal so I'm very happy and relieved. 

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    Hi Alster,

    Thank you for updating us all. I am absolutely delighted to hear that, after all that worry, you got the all clear today. I am sure that you feel mightily relieved and I hope that you plan a little celebration over the weekend.

    Kind regards,

    Jolamine xx

  • Hi all, 

    After reading through this thread I wanted to share with others who may be worried.  My first lump was 2 years ago (just before my 40th Birthday), went to Dr's, got referred to all in one clinic and appointment was about 2.5 weeks after referral.  With these clinics they do try to diagnose (even though biopsy results can take about 2 weeks).  I was told that she was pretty sure it was cancer...longest 2 weeks of my life waiting for it to be confirmed - I couldn't even go to work!

    Results came back and it was benign.  I still had to have an operation to have it removed and I remember them saying it was a Phyllode tumour (sorry if spelt wrong), might sound distgusting but I actually got to see it in a test tube before it went for tests. I should add it was about 3.5/4cm in length.

    I've found another lump (same breast, different place), went to Dr's who brought up my notes and said last time it was recorded as a complex Fibroadenoma - I've googled this and they seem small so not really sure.  As expected I've been referred to the all in one clinic again.

    Unfortunately I'm in Wales so a 3 week wait is normal but it's longer due to no Radiologist available for a few weeks.  I've got my appointment now which will be 5 weeks and 2 days since being referred.

    Sorry I've waffled on a bit but for anyone with new lumps I just want to give a little advice...

    don't stress if you are referred as urgent, this is normal.

    don't listen to the professionals opionion on the day - wait until they have all the results in front of them.

    don't stress (or try not to) if your appointment is very fast or takes longer than expected.

    As the stats say, only 1 in 8 will get it and I wish each and every one of you going through this the best.  

    Take care x

     

     


  • Hi EmMaEv,

    Thank you for this reassurance. I am sure that many people reading your post will be reassured by what you say. I am sorry to hear that you have found another lump and have such a lengthy wait to be seen at the breast clinic.

    I am keeping my fingers crossed that you get good news again. Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thanks Jolamine.  I'll let you know how I get on, clinic is a week tomorrow and as it's 1.5hrs away and I have to drive so my mum is going to come with me - last time she drove but she had a knee replacement 6/7 weeks ago so can't but her company will be nice as we always have a laugh and giggle and any excuse to eat out lol.  I had knee surgery 3 weeks ago but not to her extent so I'll be fit to drive thank goodness...We are like 2 peas in a pod and will hobble along together and fill our bellies with laughter and food despite the circumstances :) x

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    Hi EmMaEv,

    It's good to know that you don't have too long to wait. You are brave to attempt to drive so soon after knee surgery of any sort. Like your mum, I've had both knees replaced and, wasn't allowed to drive for 6 weks post-surgery. Still, the company is always good to have and, I hope that you hobble to somewhere nice for a tasty lunch with plenty of laughter and good food.

    Don't forget to let us know how you get on.
    Kind regards,

    Jolamine xx

Reply
  •  

    Hi EmMaEv,

    It's good to know that you don't have too long to wait. You are brave to attempt to drive so soon after knee surgery of any sort. Like your mum, I've had both knees replaced and, wasn't allowed to drive for 6 weks post-surgery. Still, the company is always good to have and, I hope that you hobble to somewhere nice for a tasty lunch with plenty of laughter and good food.

    Don't forget to let us know how you get on.
    Kind regards,

    Jolamine xx

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