Hey Sam. I’ve just read your post and wondered what cane out of it? I know it been a while but I’ve got the same problem and no doctor does anything about it. Hope all went well. Tia.

Hey Tia, interested to know if you have stopped bleeding and what help you got?  I’m on my 6th week stopped for 2 days and it came back. I am so down and really had enough. 

Hi All I am going through exact same things you have described. Always had regular periods no issues. Started with some really light periods May last year which were normal for me at all. Begun bleeding in July and bleed for 8 weeks. Finally got into GP but me on tablets to stop it which didn't work. Got in for scan and could see womb lining was very thick over 2 times normal. Bleeding did stop then for 3 months and is now back again worse than ever and been bleeding for 5 weeks at the mo. They've said Smear is fine, No PCOS, No signs of Endometriosis on second scan once bleeding stop and womb lining back to normal again. I feel so weak and exhausted all the time. No hormone issues so i have no idea. I'm quite overweight so i feel like that may have not helped me and just feel guilty about everything. Everything makes me tired. I'm embarassed going to work and feel uncomfortable and unclean all the time because I'm constantly bleeding. I commute to another city for work and nearly everyday I'm bleeding through my pads and tampons before I've got to work. It's awful. Queue also not very understanding Male Boss who queries why I go to the toilet every half an hour infront of everyone... I'm only 29, no kids and dying to have a family and had recently got married prior to this all starting. I can't help thinking that this will stop that ever happening for me or theres some underlying issue here. Back at the GP on 26th Feb - yes that's the next avaliable appointment and they've told me it's not urgent enough for earlier. I'm 30th birthday is day before that appointment and it's just ruined it. I just can't cope with it anymore and i know in contrast to some i haven't had it that long but it's so exhausting and just with no answers it's frustating. 

Bless you your boss sounds like an ****! But maybe you could talk to him in private and tell him how your feeling!! Or even write him a note to explain how you are feeling it's not very professional of him to talk to you about it infront of everyone!! Maybe you could get a same day appointment at your doctors and tell them it's urgent tell them it's making you feel depressed and anxious about going out because you feel embarrassed that you might flood!! I found out that I have thickening of the womb and a polyp so got to wait for an outpatient appointment for a camera to be put in to see exactly what's going on!! I think it's terrible that so many women are going through this! It's a catch 22 because I've told my doctor I want to have another child I already have an 8yr old which I am totally blessed for but it does dishearten me when they tell me I HAVE to go on the pill to stop the bleeding because I won't be able to have a child on the pill and wouldn't be able to carry a child whilst bleeding like this!! Let me know how you get on You get something sorted ASAP xxxx

Hi all.

Surprised to read so many are affected by this.

I am 42 years of age, in good health and have been bleeding for 3 months non stop now.

My issues started in September when I suddenly had miscarriage like symptoms and ended up in A&E (I wasnt pregnant). My cycle has been spot on for the last 23 years so this sudden change was definitely a cause of concern.

My GP, who is fantastic, immediately referred me for an ultrasound and a possible polyp has been identified. I have been  further referred for a hysteroscopy with further investigation in 3 weeks time. Meanwhile I too am feeling rather exhausted and fatigue at the moment so topping up on iron supplements.

Thank you for posting your experiences. It helps to know I am not alone.

Best wishes for you all

I had a stint of bleeding for 7 weeks about 2 years ago it was so bad I couldn't go out of the house for 2 weeks. I take medication for depression and the gyny put it down to a change in meds. This is when I started getting irregular periods. I've had a coil fitted after I had a termination 17 years ago and the pain and bleeding W was horrible. My periods settled down but have now become irregular again, weight gain also. I am not sexually active at the moment but it is worrying if you can't get straight answers. I am due for a smear so I will see what that comes up with 

Hey, that is exactly what happened to me like a couple of months ago I still don't know what was going on but i stopped bleeding in February so I was bleeding for 5 months straight which was honestly disturbing especially at school - I'm 14 years old. So now I'm on iron tablets and I'm anemic which is crazy because my whole life my blood level has been normal then all of a sudden this happens. Hopefully I find out what was going on because I haven't started my period yet.

Same as me but I've been bleeding for about 9 months now and I've been to the doctors multiple times and they thaught it was my implant so they took it out and put me on the pill but I'm still bleeding and this is like 2/3 months down the line I've had tests done but they don't seem to be bothered like I speak to them about it saying that it hurts me some days and I feel like I can't walk it's that bad but they don't know ehat it is they say it will stop and they give me tablets but it didn't work and my bf is getting worries aswell I just don't know what to do. 

Hello sorry to here this just wondered if u got anything sorted I've been bleeding for about nine months and the doctors don't care x

Ive been bleeding nonstop for over 2 years now, and the doctors dont seem to be worried either  im not sure what to do about it anymore, ive not been able to find anyone else who has been bleeding for as long as this. Its ridiculous how ive not been taken more seriously. Ive had a test to see if i have cysts in my ovaries, but other than that ive been told to just wait it out. 

I think this has happened as i was put on rigevidon to stop imitial heavy bleeding on a period, then cerelle, loestrin, cerelle again and the depo prevera shots within the space of under a year, which i know now really shouldnt have been done. I started to experience pain in my private area on the depo prevera and even after coming of ecerything for 7 months the bleeding and pain hasnt stopped. Ive had tests for STIs even with having one faithful partner through it all and come back negative.

If anyone finds anything that helps or has helped with the bleeding please post below as im running out of ideas of what to do.

Hi Lauren, did you ever find out the cause?? 
 

im 23 years old with a 3 year old son. My periods have been all over the place for the last year and half. I'm on no contraception either so can't blame that. From September last year up until Christmas last year I didn't get a period, and then I finally got one at Christmas time which lasted 4 weeks+. I then had a normal period February & March but from then I didn't bleed until June 2020 and I've been bleeding on and off ever since. I had a blood test & internal scan last year which all come back normal. I've now got a doctors appointment on Friday to get my cervix looked at. I can't stop worrying I just feel so sad all the time x 

Hi Courtney 

im really sorry your having the same problems as me unfortunately I still don't know what's going on!! The gynaecologist told me that I either have to stay on the pill to stop the bleeding or continue bleeding! Which really upset me because I wanted to have another child.  aparantly there is nothing wrong with my uterus apart from thickening of the lining, I've had no explanation whatsoever for the bleeding and I'm still worried because I'm taking desogesteral (mini pill) just to mask the bleeding! I was supposed to get a call from the doctors yesterday but they didn't call! They don't really seem to care. I'm really sorry I haven't got an answer for you but just try to relax i will keep in touch with you, if you manage to find out anything please let me know if you don't mind.

keep your chin up

Hi Courtney 

im really sorry your having the same problems as me unfortunately I still don't know what's going on!! The gynaecologist told me that I either have to stay on the pill to stop the bleeding or continue bleeding! Which really upset me because I wanted to have another child.  aparantly there is nothing wrong with my uterus apart from thickening of the lining, I've had no explanation whatsoever for the bleeding and I'm still worried because I'm taking desogesteral (mini pill) just to mask the bleeding! I was supposed to get a call from the doctors yesterday but they didn't call! They don't really seem to care. I'm really sorry I haven't got an answer for you but just try to relax i will keep in touch with you, if you manage to find out anything please let me know if you don't mind.

keep your chin up

Oh no, I'm so sorry! I suppose they don't really have a clue what's happening with you either I'm guessing. It's all such a worry! I have a doctors appointment tomorrow to get my cervix looked at, I'm dreading it will let you know what gets said. I hope you get some answers soon. It's not nice of them to just leave you to it. 
 

im in a girl group on Facebook called Girlpower, it has 18k members in if you'd like to join! I've found it's helped me feel abit relieved when I've posted my worries. X 

I know it's rubbish I do feel like they have just left me to it I really hope you get some answers soon and hopefully find out what's happening. I'll have a look for that group on fb thank you that would be great, probably easier to get in touch on there if need be, thanks very much

I am 54 and have been bleeding continuously for 16 weeks. It began while I had the a marina coil fitted ( I had one in for 12 years , the last was coming up to the fifth year point).  The coil had stopped my periods completely so I had not had bleeding for the years I had it in. 

I began bleeding in June despite the coil still being fitted and the dr referred me to a gynaecologist. I couldn't tolerate the trans vaginal scan but the dr said he needed to do a husteriscopy which was agony.  They didn't see anything wrong and my womb lining had not thickened. They removed the coil and said I may get a little bleeding for a few days and if I had not gone through menopause a period. It was also thought that I had vaginal atrophy so he said he would prescribe some vagifem pessaries. 
 

Unfortunately, my bleeding continued and worsened.  With the exceptions of a day here and there, it has been relentless and debilitating for 16 weeks. I have been at my wits end as it impacts on everything I do.   The dr arranged to try another trans vaginal scan which I was able to tolerate after being in the vagifem for a while. That showed a possible fibroma on my right ovary the size of a golf ball. They  seem sure it is nothing serious but have requested an MRI scan as they want to investigate further. I am still waiting for that. 
 

I have had cervical smears, all clear, blood tests and do far all clear although they want me to have them Ca125 one again.  Because the bleeding is so bad they have now suggested I go back in for another hysteriscopy, another attempt at a biopsy which last time they couldn't get sufficient tissue for and to have the marina coil refitted all under a general anaesthetic this time. I go in for that in two weeks time.

i gave Gad a letter from my consultant though saying that my uterus lining is 1.7mm and extremely thin. As it is do thin I am at a loss to understand how I can be bleeding so much and do constantly. Another consultant who rang me previously said he thought I had endometrial atrophy and that the marina oil can prevent thickening of the lining as it is progesterone. I can't help thinking that putting a progesterone coil back in will not cure what is going on so I am not sure what to do or say about that. It is obvious that my lining is already very thin. 
 

another complication is that for the last two years have been in Lois thinners owing to an embolism.  I had no problems with anything until end of June this year so I also can't understand why that would have caused this.  
 

I would be pleased to hear from anyone who has had any similar problems?  
 

Hi there

Did u ever get to the root of the bleeding?

Regards mareee

Hi Maree,

Sadly yes but only after an A&E admission three months later and many negligent misdiagnosis. It turned out I had a rare and aggressive ovarian carcinosarcoma. I have since had two major surgeries, one for recurrence on my spleen picked up 7 months after finishing frontline treatment. More chemo this year but it grew back while on it so I am now incurable. Trying more treatment but not sure that is working and I am currently in hospital again.  Trying to stay positive and fortunate to have support from my family but it has been a difficult ride. If anyone else reads this my message is never let any health professional dismiss bleeding, always force them them to check your ovaries.   The hospital I was at were terrible, despite my best efforts snd my gps I was treated very badly.  They even dismissed ultra sound snd tv scan my dr got which showed a 5.2cm mass in my ovary. They said it was nothing.  I am transferred all my care to a much bigger teaching hospital who picked up the pieces and have treated me well. Bleeding is not just related to uterine cancer but very much to ovarian.  Also, although the first hospital never did a test, my CA 125 was not a marker and even now it remains at less than 5.  So if anyone is worried make sure you get an mri or a Ct scan. 
I hope you are well Maree and thank you for asking after me. 
xx