would a doctor say you have cancer before biopsy results ?

Hi there

My Mum is currently in hospital. She has been there for two weeks. She has blood clots on both lungs and pain in her stomach, enlarged Lymph nodes in lungs and stomach. They did an Endoscopy on her stomach a week ago and tissue was taken for biopsy. They said the biopsy results would be back in two weeks time. Two days after the endoscopy, two doctors have told my Mum they 'think' she has either Lymphatic cancer or stomach cancer. How can they say this to someone without biopsy results ? Has anybody else had this happen to them ? She is going for a PET scan next tuesday.

Thanks for any advice 

  • Hi Millie,

    I have had 2 bouts of breast cancer in the past 10 years. I have also had 3 suspected melanoma, which all fortunately turned out to be benign.

    I am sorry that you are having this extra wait, but you are best to know exactly what you are dealing with before you commence treatment.. 

    I hope that your CT appointment comes through soon and that you don't have too long to wait for your outstanding biopsy results.

    Kind regards,

    Jolamine xx

  • This has just happened to me. I went in on Tuesday for a sigmoidoscopy expecting to be told what IBD I had, I was told I had bowel cancer and would have an operation within 2 weeks. Unfortunately because I didn’t think this was an option, I went alone. Luckily I found out on Tuesday and already had my CT scan yesterday (Friday), so hopefully will hear soon.

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    Hi Wenders,

    Welcome to the forum.

    I am so sorry to hear about your bowel cancer diagnosis. With all this happening so quickly, it is no wonder that you feel as you do. If you were expecting an IBD diagnosis, you must feel shell-shocked to have been given a cancer diagnosis. I am glad to hear that you also had you CT scan yesterday and are now ready for surgery within the next 2 weeks.

    I hope that your appointment for surgery comes through soon. Please keep us updated on how you get on. We are always here for you.

    Kind regards,
    Jolamine

  • Hi Jolamine,

    Thankfully I am having the operation on Monday, so things have moved really quickly.

    wendy

     

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    Hi Wenders,

    I am glad to hear that you now have your appointment through for Monday.

    I hope that it all goes well for you and, I shall be thinking of you on Monday.

    Don't forget to let us know how you get on.

    Kind regards,

    Jolamine xx

  • Hi,

    I came across this post as I was searching to the answer of this very question.  Found a lump in left breast Monday, GP that afternoon, referral and next day at a cancellation with the consultant. 

    The rest is a bit of a blur to be honest. Mammogram, scan, biopsy, another mammogram and then back to the consultant who told me (no probably mentioned) that I have breast cancer!  Wta*?!   How can this be? I was convinced it was a cyst!  He mentioned MRI (booked for 1wks time) then back to him on the Thursday 2-days after the MRI.  He spoke of an operation, removal of some lymph nodes (standard practice?? Is it??), radiotherapy ... all before my blood and biopsy results

    This post has helped me to realise that yes, they do this day in and day out, of course they know what they feel and see each day, especially if not 'unusual' in anyway, but could he be wrong?

    I'm still in a state of shock to be honest and feel sick to my stomach. My husband who is so glass half empty was prepared for what came out of the consultants mouth, and so has been a rock in the past 24hr whirlwind.

    Tried to go to work as if a normal day, didn't go to plan so cancelled a few meetings and left a few hours early as not my normal self and so just said feeling unwell and would be fine my tomorrow.  

    My 28yr old son just started a new job yesterday and so not sure how or what to tell him. He's always been quite adamant not hide anything from him, and no matter how small to tell him so things aren't a shock to him. Is now the time to tell him? So soon and before the biopsy results?

    I really would appreciate any insights - Kassi x
     

     

  •  

    Hi Kassi,

    A very warm welcome to our forum, although I'm sorry to hear about what has led you to join us. You will find that doctors don't hide anything when it comes to cancer. I was first diagnosed 11 years ago and, I was told by my consultant on my first visit that he was pretty certain that it was breast cancer. Sadly, he was right. My mother had died of secondary breast cancer and, I thought that I was prepared for such news, but when push came to shove, I certainly wasn't. I well remember how worried I was waiting for my mammogram, ultrasound and biopsy results. 

    I was diagnosed with a grade 1 Pure Mucinous Breast Cancer and was informed that I was fortunate as this is one of the less aggressive types of cancer and, therefore less likely to spread. Less than six months later I discovered a larger lump in my other breast. Again the surgeon thought that this might be cancerous, but thankfully, when the biopsy results came back, it was benign.

    Almost a year to the day of my first surgery, I discovered another lump in my original breast, My surgeon again told me that he was pretty sure that this was cancerous  and unfortunately, he was right again. I am now undergoing further testing. Fortunately, I already know that it is not secondary, as I have already had a bone scan. I am due to have a CT scan tomorrow, just to check that I don't have another primary.

    This just highlights what you have already discovered,that although they deal with so many cases, that they can usually tell patients in advance of the test results being returned, they can also sometimes be wrong. Removing a few lymph nodes at the time of surgery is routine practice to ensure that the cancer has not started to spread outwith the breast. 

    Whilst the cancerous tissue is removed and sent to pathology after surgery to ensure that your surgeon has achieved clear margins around the tumour, radiotherapy usually follows. This mops up any loose cells in the area of your surgery and should prevent any spread.

    I know just how scary it is waiting to find out, so I am glad to hear that your husband is being so supportive. I had 2 teenage children whenI was first diagnosed and found that they too were a great support as soon as I told them. I am sure that your son will be too. It is never the news that we want to tell our loved ones, but the sooner you tell him the better. If you don't, he is likely to guess and then feel upset at being excluded.

    Everything happens so fast at this stage that you don't feel in control, but this will settle down once you start treatment.

    Please keep in touch and let us know when you get your results. Have you been told when these will be back? We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you Jolamine for taking the time to reply to me and sharing your insights which are very helpful. You've been on such a journey I can't even begin to imagine! My nerves feel shot now I just can't imagine! 

    I had a video call with my son last night and felt such a fraud as I can't tell him any other way than in person. My quandary is do I tell him alone or with his girlfriend in the same room. My husband says alone and he will till tell his girlfriend at the time I am telling my son. 

    My husband keeps asking how do I feel?  I know he means well but there is no straight answer - shocked, scared, numb, in denial.

    Kassi x

     

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    Hi Kassi,

    I would agree with your husband. I expect that your son would appreciate being told on his own and, you could always leave him to tell his girlfriend. If you can try to put a positive spin on things when you're telling him. an 'I can and will get through this attitude' from you will elicit a much more positive response from anyone you tell. It is still ok to admit to all the other emotions you mention too, as there are so many unknowns at the moment.

    I dreaded those 'How do you feel questions', no matter how well intentioned they were. I always wanted to respond 'how the h**k do you think I feel?'

    Believe it or not, it will get easier to cope with all this once you get a definite diagnosis and start treatment to fight it.

    I hope that your results come through soon.

    Kind regards,

    Jolamine xx

  • Hi everyone, 

     

    Thank you for sharing your experiences. For those who have been diagnosed this year (with all the challenges of covid) , did the MDT genuinely respond within 14 days of the biopsy? How did you find out about when your care would be discussed by the MDT?

    Is it worth chasing the nursing team to make sure there's a date and time in the diary?

    The surgical team believes my mum has stage 4 pancreatic cancer. Time is clearly of the essence to make sure there's no further spread as its inoperable. 

    We're on day 9 and haven't had any contact since she was discharged by the surgeon. 

    Thank you