Really concerned... one swollen tonsil and other symptoms.

Hi all,

 

I'm new here…

I don't really know what I am looking for coming on here to chat, as I know none of you will be able to diagnose me… I guess I'm just looking for somewhere to vent and see if anyone can shed any light at all on my situation and what I am experiencing. It'd be great to hear from others who have been in similar circumstances :)

 

I'm 22 years old, and have been suffering for the past 2 months with an array of symptoms, which I believe could be either lymphoma or tonsil cancer. I have no risk factors for tonsil cancer (I don't smoke or drink and I am well under the age bracket) however I do for lymphoma (I had gladular fever when I was 18 and my great aunt has had lymphoma, although I realise this is not an immediate family member)

 

 Firstly, I noticed one day whilst brushing my teeth that my right tonsil was hugely larger than the other. It takes up I would say a third of my throat, and is hard to the touch. At the time, it was not painful and this was the only symptom I had experienced. I had been aware that my tonsil was larger than the other a few months before I started worrying about this so I have no idea how long it has been this way (although the first time I noticed it, it wasn't as big as it is now.) So of course as many do, I took to my best friend/worst enemy Google, and immediately found all sorts of horrible things this could be. Everything pointed at tonsil cancer or lymphoma due to the asymmetry in my tonsils… and so I then went to see my GP straight away.

 

He sent me away for a week to see if it went down on its own… it did not. I went back the week after and he put me on a course of antibiotics which did nothing to take down the swelling apart from making me really sick. He then took some blood tests and all my blood counts came back fine, except I was low on iron and B12 which he has prescribed me a 6 month course of tablets for. He referred me to an ENT however, as he could see how worried I was about this.

 

I do not have private healthcare so this referral was through the NHS, unfortunately after 3 weeks the appointment had still not come through, so I decided I really could not wait any longer and so booked myself in to see a private ENT consultant whom I used to see when I was younger for ear problems. I decided to pay for this. During this 3 week wait, I started to develop some more symptoms. My ears are very painful, and I feel like there is a constant pressure on them and on my neck and jaw (it is hard to explain). It has been quite intense and painful and difficult to ignore. I also keep feeling like my heart is stopping? (I know its not) as though someone is sitting on my chest and I cant catch my breath quickly enough. My GP said this could be due to my low iron however as this is a symptom of anemia. I have no swollen lymph nodes, however I did have one that was quite painful under my arm but that seems to have gone down now...

 

The ENT took a look at my tonsils and asked me lots of questions about my symptoms. He also felt my neck and head for swollen nodes but said they felt normal. He said I did the right thing by going to see him, and that he did not think my tonsils indicated anything sinister but that I should schedule a tonsillectomy just incase. I am due to have my tonsils out in 3 weeks, and they will send them for tests which will take a week to know if it is malignant or not.

 

I am super worried, and this is causing me unbelievable amounts of anxiety and stress. I am constantly miserable and cant help but think the absolute worst, especially now the pressure on my ears and jaw is constantly there, it is a constant reminder of how ill I feel. Whilst I know that realistically, the pressure and soreness in my ears, throat and jaw could be unrelated to my tonsils, I cant help but think that this is definitely cancer. I also realise that I do not have the classic symptoms of any swollen lymph nodes either so I could be overreacting for nothing.

 

I would just really like to hear from anyone who can possibly relate to how anxious Im feeling waiting to find out what is wrong, and anyone who has been in a similar situation. I cant talk to my family or boyfriend about how I feel as they just tell me im being crazy and fob me off. They're not interested at all especially my mum. :(

 

If you made it all the way through this horrifically long post, thank you! I wish you all the best, and thanks in advance for any help. :love:

 

Danni xx

Parents
  • Hi Danni ...... and welcome to the forum.  I am sorry to hear about all your worries and that you are not getting any family support during such a difficult time.  There are many people here who will understand how scary this waiting time is - when you dont know a diagnosis and are awaiting surgery and results, it is probably the worst time of all.  Be assured that you have definitely done the right thing by getting seen swiftly - it sounds reassuring that the consultant was not overly concerned but also felt you were correct to see him.  I really hope all goes well for you Danni and that the results are negative - but never take chances with your health, too many people do!  Please keep in touch and let us know how things go for you and come and have a rant etc whenever you need support.  Also remember that the nurses on the forum are here Mon-Fri (free-phone) if you need any information or reassurance - they are brilliant.  Max x

  • Hi Max,

    Thank you so much for taking the time out of your day to reply to me, I really appreciate it. It's nice to know that others have been through this waiting period I guess. Thanks for the info about the nurses, I think i will definitely give them a call. My anxieties are also heightened by the fact I will be going for surgery for tonsillectomy soon... I'm not looking forward to that. But I'm weirdly excited to hear news whether it be good or bad, as at least i will know for definite what the outcome will be.

     

    I will be sure to stay in touch through the process and will update over the next few weeks.:)

     

    Take care.

    Dani xx

  • To the other people worried/in the dark after reading this forum... Tldr: Similar symptoms to OP (described in paragraph directly below) turned out to be QUINSY apparently caused by a streptococcus infection following tonsilitis. If you suspect you have something similar, please go to your GP now, pain is subsiding very quickly. I developed similar symptoms to those described by the OP: large swollen tonsil on one side, constant painful tonsil/behind ear/jaw getting gradually worse over time, even more painful when swallowing, restricted jaw, swelling of neck (lymph node) on problematic side, fatigue, fever etc.

    Timeline: I contracted Tonsilitis on Christmas Day, which ran its course and was almost 100% recovered by New Year's Eve, then woke up on New Years Day with a mild version of the symptoms I mentioned above. This progressively got worse until today (6th Jan) I saw my GP who suspected it was QUINSY. Referred to ENT doctor in A&E who arrived at the same diagnosis then drained the giant puss ball in my tonsil and gave me 10 days of Penicillin and a few days worth of Codeine. Now making recovery progress.

    To all with similar symptoms, go to GP and suggest Quinsy if their treatment results in no recovery. Hope this helps a few people. Best wishes to all. Have a great 2017. Ed

  • My 6yr old has the same problem with hers and moans that they are very painful we are currently waiting for them to be removed but longer she's waiting the more food she is going off and losing weight which she has a problem with anyways she finds it hard to swallow water just complaining all the time including stomach pains her dr refuses to do any more swab tests for infection so I dont even know if the Infection has gone all this over someone passing scarlet fever November 2015 though I couldn't be more greatful as I realise that there could be something more worse and if she was healthy all the time we wouldn't find it and it being worse than it actually is, I am very anxious about the results but life is life and no one can change it unfortunately.

  • Hi, I've been following this thread for a while because I've had the same symptoms, one sided throat pain with enlarged tonsil. After antibiotics and nasal steroids didn't work I was giving a priority hospital referral. My ent consultant did an endoscopy through my nose which was rather uncomfortable due to inflammation. He said he couldn't see anything that looked cancerous (I think they know by looking, they see cancer all the time) but as my right tonsil was large he wanted to take it out to be 100℅. So two weeks later I had my tonsils out, my goodness it isn't an easy recovery for an adult, ask your GP for more pain relief if you need it, I did just so I could eat and drink. Anyway I'm two weeks from that now and had my histology results yesterday and the tests show I was chronic inflammation. So hopefully I will all settle down now. I just wanted to post because not many people put good outcomes online and I was worried unnecessarily thinking I had cancer. Anyone with similar symptoms please push to get properly check but try not to worry.
  • Hi All,hope you are all doing well. I came across this thread after googling swollen tonsils. I don't suffer with them and I don't think I've ever had tonsillitis but over the last five weeks my throats has started to feel a bit weird! When I lay down I feel like I'm not swallowing properly which has led to me starting to panic. I tried to ignore it telling myself it's congestion but It's now 2am and it feels the worst it's been so have been doing a bit of self investigation, I think one of the little blighters is swollen. My throat feels dry despite drinking loads in fact it feels like I have something stuck in my throat.  I don't seem to have any other symptoms just the feeling of not being able to swallow, my question to you all is... does this sound familiar with anyone? 

  • Hi I'm glad you have posted this, I've also been following the thread. I have an enlarged left tonsil, cough and hoarse voice. It was treated as reflux for 4 months then my return visit to ENT consultant noticed my left tonsil was very large. I was prescribed with antibiotics and sent home to see if the tonsil responded to antibiotics, I'm still coughing and my voice is still very hoarse, it has been 4 weeks of waiting and now I have to wait for an appointment to go back. The surgeon said it would need to come out if it was still inflamed. Looking at it myself, as you do, it looks much bigger and I have started to have a strange pain at the back of my throat to one side, I always need to drink water to stop the irritation and I am constantly swallowing, which doesn't hurt at all !!! I bait the constant waiting, just want to feel normal again and speak with my normal voice again!!!!

  • I've had an enlarged left tonsil for years. No pain and no other symptoms. With last could, GP was concernwd and referred me to Ent. Had appointment today and was surprised lymphoma came up, although they mentioned it is unlikely. More surprised that tonsilectomy was suggested instead of a biopsy but agreed and am scheduled to have the procedure next thursday. Apprehensive but more relaxed after reading this post, thanks for sharing.

  • Gosh, that must have been a shock, but at least you are being seen quickly, I wish you well and hopefully you will have a speedy recovery. Did you have any lumps or bumps or any other symptoms, tiredness, pain or itching in your throat?? 

    Good luck with your operation xx

  • Hi 

     

    what was the outcome with the biopsy? My boyfriend has to have the same thing little worries 

  • Hi Cadigo,

     

    how did your tonsilectomy go?

    did you find out your results of the tonsils they sent off.  Hope you are feeling better now.  Best regards Nas

  • Hi there, 
    I was wondering if anyone was able to help give me any advice. 
    I am an 18 year old girl and I had swollen tonsils for a week before my trip away to see family. Luckily it went on time naturally and I remained okay for majority of my trip. Unfortunately, on boxing day I woke up with an extremely infected throat with only one tonsil affected. I took some pain killers, numbing spray and lozenges to sooth my throat till I got home where I was able to seek a doctor and get prescribed some antibiotics. I have taken the full of course but during my course the infection swapped to the other side of my throat and tonsil, I am suffering hugely with this as I am struggling to eat and drink and it is just tiring,  having been in bed or in pain for almost a month. It looks like the infection on both my tonsils has finally gone but both are still huge and swollen and I am still in pain to swallow. Please bear in mind I have also suffered horrible earache too!  I think I am going to see a doctor tomorrow to see if he can prescribe me anything more for swelling. It seems that they have never gone down since the last time I suffered tonsillitis. 

    If anyone has had similar to this please share me your story as I am so panicked that I may have chronic tonsilitis and the last thing I want is to get them removed

    Many thanks Chloe x

Reply
  • Hi there, 
    I was wondering if anyone was able to help give me any advice. 
    I am an 18 year old girl and I had swollen tonsils for a week before my trip away to see family. Luckily it went on time naturally and I remained okay for majority of my trip. Unfortunately, on boxing day I woke up with an extremely infected throat with only one tonsil affected. I took some pain killers, numbing spray and lozenges to sooth my throat till I got home where I was able to seek a doctor and get prescribed some antibiotics. I have taken the full of course but during my course the infection swapped to the other side of my throat and tonsil, I am suffering hugely with this as I am struggling to eat and drink and it is just tiring,  having been in bed or in pain for almost a month. It looks like the infection on both my tonsils has finally gone but both are still huge and swollen and I am still in pain to swallow. Please bear in mind I have also suffered horrible earache too!  I think I am going to see a doctor tomorrow to see if he can prescribe me anything more for swelling. It seems that they have never gone down since the last time I suffered tonsillitis. 

    If anyone has had similar to this please share me your story as I am so panicked that I may have chronic tonsilitis and the last thing I want is to get them removed

    Many thanks Chloe x

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