Really concerned... one swollen tonsil and other symptoms.

Hi all,

 

I'm new here…

I don't really know what I am looking for coming on here to chat, as I know none of you will be able to diagnose me… I guess I'm just looking for somewhere to vent and see if anyone can shed any light at all on my situation and what I am experiencing. It'd be great to hear from others who have been in similar circumstances :)

 

I'm 22 years old, and have been suffering for the past 2 months with an array of symptoms, which I believe could be either lymphoma or tonsil cancer. I have no risk factors for tonsil cancer (I don't smoke or drink and I am well under the age bracket) however I do for lymphoma (I had gladular fever when I was 18 and my great aunt has had lymphoma, although I realise this is not an immediate family member)

 

 Firstly, I noticed one day whilst brushing my teeth that my right tonsil was hugely larger than the other. It takes up I would say a third of my throat, and is hard to the touch. At the time, it was not painful and this was the only symptom I had experienced. I had been aware that my tonsil was larger than the other a few months before I started worrying about this so I have no idea how long it has been this way (although the first time I noticed it, it wasn't as big as it is now.) So of course as many do, I took to my best friend/worst enemy Google, and immediately found all sorts of horrible things this could be. Everything pointed at tonsil cancer or lymphoma due to the asymmetry in my tonsils… and so I then went to see my GP straight away.

 

He sent me away for a week to see if it went down on its own… it did not. I went back the week after and he put me on a course of antibiotics which did nothing to take down the swelling apart from making me really sick. He then took some blood tests and all my blood counts came back fine, except I was low on iron and B12 which he has prescribed me a 6 month course of tablets for. He referred me to an ENT however, as he could see how worried I was about this.

 

I do not have private healthcare so this referral was through the NHS, unfortunately after 3 weeks the appointment had still not come through, so I decided I really could not wait any longer and so booked myself in to see a private ENT consultant whom I used to see when I was younger for ear problems. I decided to pay for this. During this 3 week wait, I started to develop some more symptoms. My ears are very painful, and I feel like there is a constant pressure on them and on my neck and jaw (it is hard to explain). It has been quite intense and painful and difficult to ignore. I also keep feeling like my heart is stopping? (I know its not) as though someone is sitting on my chest and I cant catch my breath quickly enough. My GP said this could be due to my low iron however as this is a symptom of anemia. I have no swollen lymph nodes, however I did have one that was quite painful under my arm but that seems to have gone down now...

 

The ENT took a look at my tonsils and asked me lots of questions about my symptoms. He also felt my neck and head for swollen nodes but said they felt normal. He said I did the right thing by going to see him, and that he did not think my tonsils indicated anything sinister but that I should schedule a tonsillectomy just incase. I am due to have my tonsils out in 3 weeks, and they will send them for tests which will take a week to know if it is malignant or not.

 

I am super worried, and this is causing me unbelievable amounts of anxiety and stress. I am constantly miserable and cant help but think the absolute worst, especially now the pressure on my ears and jaw is constantly there, it is a constant reminder of how ill I feel. Whilst I know that realistically, the pressure and soreness in my ears, throat and jaw could be unrelated to my tonsils, I cant help but think that this is definitely cancer. I also realise that I do not have the classic symptoms of any swollen lymph nodes either so I could be overreacting for nothing.

 

I would just really like to hear from anyone who can possibly relate to how anxious Im feeling waiting to find out what is wrong, and anyone who has been in a similar situation. I cant talk to my family or boyfriend about how I feel as they just tell me im being crazy and fob me off. They're not interested at all especially my mum. :(

 

If you made it all the way through this horrifically long post, thank you! I wish you all the best, and thanks in advance for any help. :love:

 

Danni xx

  • Hi Mooseyem, I was actually searching for something natural to calm down my tonsil when I came across this thread - I’ve got a similar history to yours but I think I’m a bit older as my children are 16,14 and 12. When they were little, my childhood tonsillitis came back a lot because I was so knackered, and I had 3 qunisies. I was finally offered a tonsillectomy but I was put off because there was so much scarring they said it would be immensely painful. I must admit I am having second thoughts because my throat’s been really painful during this time. I hope your appointment goes well and they put your mind at rest. I think water and rest really do work but also if I tie a cotton (or even better silk if you have it) scarf round my neck especially at night it seems to raise the temperature a little bit and help fight the infection. Good luck.

  • Thanks. I did see the ENT consultant. He said it probably isn't anything sinister but he has been wrong in the past so he's decided to biopsy it. I should have gone in last week but due to covid they cancelled it. I'm due in on 14th so double fingers crossed it goes ahead and when it's biopsied it's OK. To be honest I feel OK, I've had this over my head for nearly 7 weeks now. Just the waiting is annoying. 

  • hello everyone 

    whilst googling I came across this forum and it has reassured me in a sense. I do suffer with health anxiety but get brushed off a lot with this. Here's my story. 
     

    I have one swollen tonsil on the right, dentist said a week ago they both look swollen, but I know the right is clearly bigger than the left, she said it looks like I have a mild case of tonsillitis. If I open my mouth and look u can see the difference, if I stick my tongue out they look similar. They both look red. Pain that comes and goes mildly on the left side(smaller tonsil) lump in neck left side(awaiting ultrasound) white tongue, weird tongue sensation. Question I have is when you say u struggle to swallow is this when eating or drinking? I find I’m ok when eating and drinking but I think I have got into the habit of just swallowing and I’m sure it feels like there is a lump in my throat? My anxiety is going mad! Any advice or reassurance would be appreciated. Obviously with everything Iv read on stupid google it's cancer so this forum is helping xx

  • Glad people are feeling less anxious by reading this thread. I think the important thing is to get things like this investigated, but more often than not tonsils can have lots of scar tissue on them from previous infections which makes them stay enlarged. Best wishes everyone for good outcomes.

  • Hi!

    I've had similar symptoms to you! When I eat and drink it's fine, feels like a bit of a relief if anything but when I swallow feels like a hard ball of phlegm in my throat, which is pretty much constant! I also get a clicking sensation when I swallow too. I've got discomfort in my tongue too, some days it feels like I've scaleded it on a cup of tea.

    I've been to the doctors so many times in the last 3 months, my doctors are currently seeing patients and they've all looked in my throat and said things seem to be normal. I'm waiting for my ENT appointment to come through and I've also got an oral mouth appointment at the hospital to check my tongue.

    Like you I've had horrendous anxiety over it and I've literally read every article on Google and convinced myself of the worst.  I'm 28 with an 8 month old and I'm driving myself insane with worry! Not sleeping, crying all the time so this forum has been a great help to know other people have had the same feelings because everyone else I talk to looks at me like I'm mad! 
     

    Hope everything is okay with you! Horrible feeling like this in what are already tough times! 

  • Hello Abbie, sorry to hear you are going through something similar. I have had the dentist/doctor and pharmacist looking and all said looks normal. Atleast you have an ENT referral. I was hoping for one but everyone seems to think I'm ok. I do keep being told that's it's all normal or anxiety! Or acid reflux! Which to be fair I do suffer with. 
    Your not alone hun I am the same read everything on google possible and still same outcome! I had my ultrasound today on my neck and still none the wiser have to wait 5-7 days for results, scared is an understatement. Hugs xx

  • Have you asked if they can refer you? I don't think they would refuse if you did? Yeah I've been told the same but the acid reflux medication doesn't help. The only thing that slightly helps me is drinking hot water.

    Got my fingers crossed with you that your results are all fine!! I feel like I'm driving my family and friends insane by talking about it but it's all I think about, if you need anyone to talk to always happy to chat! 
     

    Hope you manage to get a good nights sleep xx

  • No I haven't, I'm trying to be good and listen to them... this isn't the first time I have thought Iv had cancer... the doctor I'm seeing now she referred me for my last problem without me asking so I'm thinking if she was really concerned she would refer me again right? She knows me too well with my anxiety. Oh I haven't even had meds for acid reflux just got to get on with it lol. Pants it's not working for you. I hope your appointments come through soon too!! And puts your mind at ease hun. 
    thankyou, me too! Oh I know what you mean I know for sure I'm frustrating family, friends and even people on these forums!! 
     

    im here for you too if you need a chat or just to rant off. You too! Xx

  • Oh well done! Yeah 100% she would! I did read somewhere it could be globus sensation, which is basically anxiety and there's exercises you can try for that so might be worth giving those a go? 
     

    Thanks love, me too! Can't deal with the anxiety of waiting for appointments it's crippling! Xx

     

  • I know lol pat on the back and all that jazz lol. Yes your right it could be. 
     

    fingers crossed it won't be too long for you. Make sure you keep me Updated. Will be thinking of you xx