My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hey, I completely understand how you feel, I suffer from bad anxiety which I can normally control but this has knocked me completely. I've been with my partner for 12 years, my first smear was clear and the recent has come back abnormal with hpv. 

    its been 3 weeks since I had the colposcopy and my results came back as CIN 3 last week. I was due to have LLETZ Thursday just gone but I will have the treatment in 2 weeks time under general anaesthetic due to how the cells are located on my cervix.
    My friend who had booked her smear test because of my results also came back with HPV but no abnormal cells. A few ladies I have spoken to have said that they have had to have treatment because of abnormal cells which has eased my anxiety a little. I feel so much better now than I did a few weeks ago. You will be okay xx

  • Thankyou for your reply I had a better sleep last night but I'm so sad this morning can't believe I'm going through this but it's reassuring to hear others are 

    funny thing is we was planning another baby now I've already had to accept that might not be the case now it's like my whole life has changed in a day I don't understand why I've got this HPV it's obviously been in my body for years and years because me and parter haven't cheated on each other and we be together nearly 12 years so it's scary to think it's probably stronger enough now to do damage I've got it in my head that it's cancer and I no I shouldnt but I have my kids are my everything and I just can't keep looking at there faces knowing I'm going though this I'm not coping already today I'm so scared for this appointment and just want everything to be okay I want to know I'm my kids are going to have there mum whilst they grow up xxx

  • Hi, i am the same as you - just got hpv diagnosis and abnormal cells but been in a 5 year relationship so must have had it a long time. I think that is what is most upsetting, that i am in the small percentage of people who havn't been able to shift it. (although i don't understand about whether it can lie dormant and how that all works)

     

    Hope things will be okay with you - most likely they will, but it's so hard not to worry isn't it x

  • Hey I feel like I need to reply because it really helps when your in a dark place so after my messages on here I went for my Colposcopy appointment which was fine not painful or uncomfortable nurses are brilliant at making you feel at ease as I was balling my eyes out in waiting area 

    they could see the adnormal cells and she told me it doesn't look any worst than what my smear results said so she took a biopsy which didn't hurt and booked me in for the loop treatment 

    ive had that treatment done now and I'm healing really well honestly fort it was going to be 10 times worst but it was over before I knew it having a period couple of days after has to be the worst part 

    they didn't get results from my biopsy's so I don't actually no what CIN I am they sent what they burnt off for testing so I'm sort of a bag of nerves waiting for them but I'm a lot better in my self first week after I got my smear results I was not in a good place being a mum of little ones really hit me hard 

    how are you when did you get your results? Hope your okay and I know how you must be feeling I've been with my partner nearly 12 years and this was my third smear other two were normal so it is scary to think it's laid dormant for all them years hear if you need to chat xx

  • I'm 27 and have a 5 year old and 4 year old and I only had my first smear a few weeks ago it came back I've HPV and abnormal cells. I'm terrified and this helped calm me down all I could think was what if I'm not here to see my boys grow into men. Thank god you are fine and hopefully I will be too ️

  • Hello!

    Just adding to this thread as I know there are soooo many people who go through this and do all the googling and end up worrying.

    I went for my first ever smear aged 25, they mislabelled the sample and I had to go back a few months later for another one. This one went through successfully and just over a month later I got the letter saying 'borderline changes' and positive for HPV. Obviously I was a bit worried worried, as we all are, and just spent about 3 days endlessly scrolling online. My appointment was 4 weeks after I received the letter.

    Went to the hospital to have it done, pretty much same procedure as smear, just lasts a bit longer and a bit more uncomfortable but not really painful. There was a screen next to me so I could see what was going on inside. Ended up that I had a tiny amount of hpv and she said nothing to worry about, didn't need to do a biopsy and I will have another smear test in 12 months time to see if it's gone. 

    Hope you're all ok and please try not to worry. xxx

     

  • Hi, thanks for sharing. I got my letter last week and have been told I won't have my colposcopy until Nov. I have had a week of worry and your post has made me feel a bit better so thanks.

    I have booked myself if for a private today as I just cannot wait until Nov I will be an absolute wreck if I have to wait a month.

    Mine said border line changes but last year I was detected HPV in my smear also but nothing detected so in my mind it's got worse.

    Hace called the GP but not very helpful. Also spoke with the  nurse who did my smear and she said for me not to worry but guess it's easier said than done. I have 2 kids and can't think of losing them!!!!

    Thanks for your post xx

  • Hi vpazos81 

    please try not to worry about it, all it means is they have detected changes and need to have a look!, I was a mess when I got my letter but it was nothing, even though they did the colposcopy there and then and removed all my abnormal cells!........I'm waiting for my 6 month check up smear in December but I hadn't thought about it all for a while until a colleague went for hers after me talking about mine and hers came back hpv positive and low grade abnormal cells and also hearing from you.....the worst thoughts go through your mind but that's why we have to go to our smear appointments......to check for any changes.......I'll never miss another one I know that much!......if my check up smear comes back as CiN3 again I'll just have to go through the whole procedure again and that's about it, I don't worry or stress anymore and you shouldn't either, it's really not as bad as you think xxx

  • Hi, received my letter yesterday to say recent smear was abnormal and I will have a letter in the next few weeks to go for colposcopy, last smear was clear, can't help panicking!! 

  • FormerMember
    FormerMember in reply to Jo74

    Hi, just wondering if I can reassure you a bit.

    I've had yearly smears for the last 3 years as my body couldn't get rid of hpv. Been for a colposcopy, though I did have to wait 3 months for the appointment. It was quite a stressful time waiting but have to remember these are professionals and they know what they are doing. My smear this year came back positive for hpv and borderline cell changes.

    Fast forward to colposcopy which I had nearly 3 weeks ago, nurse doing the procedure sat me down before the appointment and explained everything to me. They ended up taking 2 biopsies. The biopsies are uncomfortable but over very quickly. All the nurses were absolutely fantastic and lovely and made sure I was at ease. I'm just waiting for the results from the biopsy now to find out what happens next. 

     

    I hope you are okay, try not to panic the actual colposcopy itself doesn't hurt, as the camera doesn't actually go inside your body, they still use a speculum like with a smear. The stuff they use to detect cell changes which causes them to turn white can sting a little but really not bad. I know the waiting can feel like forever but just take each day as it comes and know that you will be looked after during the colposcopy examination :)