My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hi, I received a text message today and all it said was " changes on smear. please expect an appointment with colposcopy to manage this" 

    ive had pain in my back and stomach. But I have just had a lumbar puncture for another unrelated illness I have. But as you can imagine I'm now freaking out and have talked my self into the fact I have C. I called my doctors. They were no help. They read my text message back to me. That's all! So I have this one text and no clue what's going on! Do you think I will receive a letter too? I'm a mess right now! 

  • Hi, I had the exact same thing today! Just a text from my doctors saying mild abnormal cells found expect a follow up appointment . I know exactly how you're feeling, all over the place! I just keep trying to tell myself this is what these screenings are for, to stop the C word! Feel free to reach out to me if you want to talk to someone who's going through the same thing! Try not to worry too much, easier said then done I know. Thinking of you! 

  • Can I ask what your results was? Everything okay? I just had the same letter saying the same things today. I know everyone's different but I'm really scared it's my first one. Only 24 :'(

  • Hi [@nicola1986][@Cdebond]‍ and [@wardy1]

    The initial contact and not knowing is something I'll never forget as your mind goes off and expects the worst. Given that you all only received a text, this may suggest CIN1 has been found. This is the least serious and most common form of abnormality. If you are contacted to book an emergency appointment (within 2 weeks of them testing your sample), that is typically CIN2 or above.

    Please be assured, CIN1, 2 or 3 is NOT cancer, its an abnormality, which if isn't monitored or treated could potentially become cancer. As I said, CIN1 is the most common. For women under 30, this is very common as your body is still changing and you will be monitored until it resolves itself, gets worse and then you are offered treatment or doesn't get better with time.

    For myself, I was given a phone call for emergency appointment at 27 and as it was over Christmas time with nobody to contact, scoured the Internet. The Internet is a very scary place - some sources informative and reassuring, others that will convince you you've got a death sentence. I'm due for my 4th colposcopy on Tuesday after being monitored every few months for a year and a half.

    Depending on where you live, testing is done differently, however all areas are now moving to HPV positive testing, so you may have this also. HPV affects 80% of women at some point in their life. You may have caught it from sex or it may have been dormant in your body for a long time and flared up with stress for example. The latter is what I'm certain was my case. There are over 100 different forms of HPV and only the minority cause cancer. HPV is not something to be seen as dirty, so don't put yourself down. Only 20% of women don't have it remember! 

    The procedure itself is very similar to a smear, although your legs are in stirrups and speculum is put in. They will then spray inside with an iodine spray (first time was just cold, second time was a very slight sting). The professional doing it has seen it all, so don't be embarrassed. Biggest bit of advice is breathe and keep your bum on the chair - tensing can make it uncomfortable when it doesn't need to be. Typically the first colposcopy they will take biopsies. Small biopsies you can't feel a thing, larger ones are like a unexpected pinch - as soon as you feel it it's over. For my first colposcopy they took two small and one large biopsies, but everyone is different. You may have bleeding and period pains after, or you may not. My first one I had neither and carried on to work - last one I travelled to work expecting to be the same and got sent home doubled up with cramps (I don't usually suffer with period pains, so wasn't used to that).

    Results normally come through within 4-6 weeks, but depends on your area. Thankfully my abnormalities are improving and have downgraded from CIN2 to CIN1, so everything crossed for Tuesday.

    The women who are in the clinic will be amazing and look after you, and remember you're in the best place. We're at a smear testing low on uptake, so there will be many women out there that have no idea they're walking around with abnormal cells. If you have any questions whatsoever, lots of supportive ladies on here will be more than happy to help. Kat x

  • Thankyou this has helped so much xxx

  • Thank you, this has really put my mind to rest x

  • Thank you for replying. I finally got a letter today and it's made me panic even more to be honest! I've been told there is a presence of high risk type hpv and high grade dyskaryosis ( severe) I am terrified! I'm sorry you're going through this too! And wish i could give you some reassurance xx

  • [@wardy1]‍  [@Cdebond]‍  Glad I could offer some reassurance. If I can help answering any questions, I'll do what I can

     

    [@nicola1986]‍ Hi Nicola, so you'll be in the same boat as a lot of us; you're CIN2 or CIN3 and should receive a phone call for an emergency appointment. From what you say, it's more likely that you're CIN3. I'm guessing you're 34/35, so it's likely they will do the colposcopy as normal, take biopsies and offer you LLETZ treatment. Likely they'll invite you for the treatment very shortly after your colposcopy. LLETZ is a procedure in which your cervix is numbed with general anesthesic (although you can be given local if an outpatient admittance). They then remove all of abnormalities by burning them with a laser. Although I've not had the procedure myself, I've read a lot about it. The procedure itself you are numbed for, so won't feel it, however following the procedure you will be very sensitive and have period pain like cramping. I'm sure some of the ladies on here who have had the procedure will be able to advise you further. Kat x

  • Thank you for your reply. Having the procedure done isn't so much of a worry. I kinda just crack on In situations. I have lumbar punctures every 9 months for another illness. It's being terrified of dying. It's one of my biggest fears. I'm probably over reacting. However I can't stop these panic attacks coming. I have an appointment in a weeks time. Thank you for replying 

  • You're being monitored now and that's the best position you can put yourself in. The best of luck with your colposcopy. Let us know how you get on and if there is anything any of us can help you with. Kat x