My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hi EmiKate,

    It's only natural to panick about these things, which is why most of us found ourselves on this forum. 
    You've just got to try and remember that cervical screenings are preventative  to pick up on cell changes before they turn into anything bad (which usually takes years and years). I'm not sure how old you are? But it's very common for ladies under 30 to get minor cell changes and for the body to get rid of them by itself. So please try not to worry :) 

    I hope your appointment goes well on Wednesday and that you come away feeling a bit more better about the situation. If it is just low cell changes then normally they won't do anything more other than monitor it more regularly than the usual 3 years (but may take a biopsy just to be sure). Let us know how you get on. 

  • I'm 37 I'm actually dizzy with the anxiety I can't cope, I'm so scared, thanks for replying. 

  • Just wondered fluffy how you are now x

  • How did you get on?

    im 39 and have just had my smear back saying borderline changes and HPV.

    all smears before this have been normal and ive had them every three years all my life.

    its such a shock.

    i know theyve only just started testing for hpv which indicates ive always had it or have for a long time for it to have started changing my cells.

    cells were normal 3 years ago.

    i have my colposcopy on wed. terrified of the c word and also a lifetime of being prodded and poking and waiting for bad news x

  • Hi, how was your colposcopy? I have mine tomorrow and I can't eat or stop worrying :(

     

  • I have mine on wed. I feel the same x

  • Sorry I haven't been back.  I had a cone biopsy and hysteroscopy two weeks ago today.  I got a call from the hospital this Wednesday to come in to see the consultant the next day (yesterday) so I knew it wasn't going to be good news.  The womb biopsy was clear but the cervix biopsy shows cancer at grade 1A2. ie 5mm  This was on the edge of the biposy taken so it is possible that the cancer has gone outside the tissue sample but still no more that a 1B1 (below 4cm).  I am assuming they can be confident that the length is no more that 4cm because of it's width.  These are glandular changes not cellular and the cells are well differentiated which is a good sign.

    I now have to have a CT and MRI and that will determine treatment although I will definitely have a hysterectomy of sorts.

    I was tearful yesterday and awake in the night thinking of it but trying to focus on the positive of being diagnosed and in the system for rapid treatment.

  • Been reading this whole thread for a while and I'm so thankful seeing most of the posts are positive.

     

    I am completely shocked today when I received my colonoscopy appointment by post in 4 weeks time. I had my smear done around 1 month ago and I didn't receive any result or phone call from GP so I called my GP and asked if there's anything wrong? The receptionist only told me my result came back abnormal...and she booked me a phone consultation with nurse tomorrow to review my result. I'm 32 had one son and my smear test 3 years ago was normal. So after seeing your post I'm feeling less stressed. Thank you 

  • Hi Chi.w,

    We're all here to help, so any questions, we'll do our best to answer them. From what you've said, it's almost certain you will have CIN1, possibly with or without HPV, depending on the testing you've had (different locations have different procedures). Remember HPV is SO SO COMMON!!!! 80% of women have it at some point in their lives and think of it as something dirty. So many have it living dormant in their bodies which can flare up after episodes of stress, etc.

    With you only being 32, it's likely they will do a biopsy on your first colposcopy and monitor you rather than immediately offer any treatment. The colposcopy is very similar to the procedure of your smear, however legs go in stirrup - I'm sure you'll be alright given that you've had a baby. Biopsies are like a pinch sensation. Small ones do not hurt in the slightest, larger ones are a quick uncomfortable feeling, but I wouldn't say "hurt".

    My first colposcopy with biopsies was fine and went straight to work with no side affects. Last one was fine during the procedure and then intense period like pains where I had to go home from work early. So you won't know how you'll be for the rest of the day.

    Hope this helps

  • Hi everyone hope you are well. Just wanted to touch base after finding out my partner has genital warts!!! Iv read everywhere it's the same / symptom of HPV. I was told I had HPV last year after an abnormal smear, however I have been in a long term relationship with my partner for 6 years and now worried he has been unfaithful. I don't have any warts and he has had them for a few years. Has anyone else experienced this after finding our you have HPV? 
     

    any help would be much appreciated as I'm now questioning my relationship :-( 

     

    thanks