My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Hi. I received my letter with the same results yesterday (28th Jan) but my gp has no info in regards to my colposcopy appt. Plus, they said that probably someoned will contact me in a few MONTHS time. I am fricking out a bit. The letter does not mention anything either. Did someone called/emailed you? 

  • I had my letter with results on Wednesday. Had a text message on Thursday morning with colposcopy appointment for 04/02/21 and then the letter with full details from the hospital was waiting when I got home from work.

    I hope you hear something much sooner than a few months. The waiting can often be the worse part 

  • Right. Let's hope they will text me with my appt details soon.  Yes it is so nerve-racking. And the timing is horrible. We have just decided with my partner to start trying for a baby.

    Thank you so much for replyng. It helps knowing I am not the only who's going through it.

     

    Hope everything goes well with your examination!

  • Definitely not the only one.  Please let me know how you get on. I'll message after Tuesday if you like and then you know what to expect a little x

  • Amazing news! So so pleased for you. Sounds like the staff were brilliant putting you at ease. Now you're under amazing monitored care. Good luck for the future. Kat x

  • Hi Adviceplease123 and Stavy, 

    Just come info that might help you both. Abnormalities are rated 1-3 depending on severity, but all require a colposcopy if found in your smear. This is because a colposcopy is a more in depth investigation than your normal smear but a similar procedure.

    If you are found with the lowest grade abnormalities, this is referred to as CIN1 and you will just go in for a routine colposcopy appointment. This may mean waiting a few weeks/months for your appointment. This is because CIN1 abnormalities are a common thing and something your body typically fights off. Think of it like the "abnormality" of a cold sore caused by the herpes virus - your body will fight it off. After your colposcopy, typically you won't be given any treatment and will be invited for another colposcopy in 6-12 months to be monitored. 

    However, if your smear comes back as suspected CIN2 or CIN3, you will receive an "emergency" appointment. The rules are you must be seen within 2 weeks of them processing your result. Sadly for a lot of people they receive this call before they (and quite often their GP) receive their results which can cause a huge amount of panic. This is exactly what I experienced. If you are under 30 and have CIN2, you will be treated similar to CIN1 findings. However, if you are over 30 or have CIN3, you will be offered treatment. This is usually a procedure called LLETZ.

    Just remember, no matter if you have CIN1, 2 or 3, this is not cancer. These are abnormal cells that signify changes in your cervix. HPV can be the cause of these changes, which is also the cause cervical cancer. Just be thankful that something has been detected and you can be monitored and treated. After all, so many women put off their smears and can be walking around with these abnormalities and no idea.

    Hope this helps. Kat x

  • I've got a colposcopy appointment for Tuesday and I'm pretty anxious, mainly for the biopsies and possibly coil removal. Only had my coil fitted just over a year ago which was unbelievably painful, I don't think I'm mentally prepared to have it removed yet - has anyone had this done in their appointment?

    I know a lot of people have said that they make you cough when they take a biopsy, this may sound really odd but I can't cough on cue? Will this make it more painful? 
     

    thanks for all your reassurance on this forum it's really helped! 

  • Hi Ram,

    Unfortunately  I can't comment on the coil removal as I have not had one fitted before.  However I did have a few biopsy's taken during my colopscopy, I wasn't asked to cough at all and if I'm honest I didn't really feel them take them. From my personal experience I'd say I didn't really find it painful at all but more uncomfortable, particularly as my legs got a bad case of the shakes from the adrenaline whilst they were stopping any bleeding following the byopsys (this again is standard and means staying in the chair for a few minutes why they apply a solution to stop any bleeding once you've left). 
     

    I hope this reassures you a bit, although everyone's situation is different try not to worry. Make sure you do let them know if you are experiencing too much pain throughout as I'm sure there are ways they can make you more comfortable. 
    All the best for tuesday! Xx 

  • 21 17:57

    Hey ladies I've been reading this thread for a while and you all seem so supportive of each other wich is wonderful love too see women supporting other women so I'd love just get some advice really.

    So bassicly on the 29 October 2020 I had a smear test didnt thick to much of it nurser said everything looked as it should down then but obviously there looking at cells but didn't seem.atall concerned wich made me feel at ease. Fast forward to somewhere around the 20th November and I get a call from a hospital not in my town saying they had a appoiment for me the following week for.a coclcospy I was in shock I instantly started crying asking her loads of questions she couldn't answer I was in.shock because I didn't no.my results.from.smear so contacted.gp who explained I had high-grade abnormal cells even though she said this is usually not cancer I was still thinking the worst so get to my colcopsy appoiment and the doctor explains my results will be heard at a MDT meeting but only because everyone with the same.reaults as.me.will be heard there and asks.a.few.questions about how many kids I have and stuff she then gets.me on the chair and puts in.the spectrum and is having a look and dabbing all the liquids on and she's down there there having a good look to look up and say I can't see no bad cells but because my smear also.said glandular naploise that she recommemd.the llttz anyway as precaution  wich I agreed to.she also took swabs and biopsy she then said this happens were they cant see nothing but not usually with my results so we would see wjat biopsy would say anyway biopsy came back and said cin 2 and 3 and to just have TOC smear at gp in 6 months so I was like okay fine then a week late I have a letter.from.the MDT meeting saying results said CIN 3 and no evidence of glandular involvement and that cin3 has been completely removed but they recommemend I have another colcospy in 6 months and also TOC and another biopsy I domt under stand why they need another biopsy if anyone has advice I would be so great full and I'm sorry for the long 

  • Hey Ram, 

    I've have never had the coil, so also comment on it or removal. I've had four biopsies - two in each of my two out of three colposcopies. I've never been asked to cough either. I'd also agree that it doesn't hurt, just a strange uncomfortable pinch that's over in a second. You will naturally psych yourself up for your appointment and afterwards wonder what all of the stressing was for. Just focus on the fact you're in the best care. Hope this helps ease your mind. Kat x