My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Sending thoughts to all of you struggling with anxiety over this.

    I am 56 and had a smear on 23 December.  I am peri-menopausal, last period August 2020 (several months without one) although had started a low carb/high fat diet and this can affect oestrogen so not uncommon for this to happen.  No other irregular bleeding or spotting. The nurse said that she could see a small polyp on my cervix and that I would be contacted to have it removed.  I googled and they are quite common.

    Today I got a call from my local hospital offering me a colposcopy this Saturday.  They couldn't tell me what the result of my smear was but advised me to contact my doctor. I did and the receptionist said that the doctor hadn't yet looked at the results and to call again tomorrow.  I am now imagining that I am a CIN2 or CIN3.  Can anyone send me any thoughts or reassurances? Would a colposcopy be required purely for a polyp?  I expect not, and not so quickly.... x

  • Kat12 thank you for the follow up, I had a smear on Thursday and even though I haven't had the results I've already received a referral letter to colposcopy for next week. I have a polyp coming out of my birth canal and have to have it removed. So I called my sister who lives in Ireland and shes at the colposcopy clinic on Tuesday as she had an abnormal smear with HPV present. So both of us are now worrying about each other! 

    It's really helpful when people post follow ups and actually describe the process but can I ask, were you back at work the same day? I wonder will my procedure be different as the doctor is going to have to get into my birth canal. I haven't a clue what to expect and its sending my anxiety through the roof xx

  • Hi Fluffy74,

     

    I hope you dont mind me asking but how did you get on? You are the first person in this thread I've seen with a situation the same as mine. I had a smear on Thursday and have a polyp in my birth canal and just 2 days later (yesterday) I got a referral letter. My smear results may not even be back by the time I have the colposcopy and how does the polyp get removed? Is it a different procedure to removing abnormal cells? I really hope you are ok and your mind has been put to rest xx

  • Hi Emer, i don't mind at all.

    I had my appointment yesterday and had a local anaesthetic, two biopsies taken and the polyp removed.  They basically twist the polyp off at the root.  The consultant said it was about 1cm in length and offered to show it to me but I declined!  I didn't feel it.  I also didn't feel the biopsies: you are asked to cough at the point that they take it.

    From everything the consultant said, I think I have some CGIN cells ie cells inside the cervical canal.  I had vinegar and iodine applied so that the abnormal cells are highlighted and the biopsies taken from that area. 

    The worst thing was the point at which the speculum was inserted and opened which I found really uncomfortable.  Obviously the speculum is also in there for quite a bit longer that a smear as there were a few things to do.  I could feel the vinegar and then the iodine being applied but only because they felt cold: apparently the vinegar can sting very slightly but I didn't feel that sensation.

    The biopsies and polyp have to be sent off to be tested, results back in 4 - 6 weeks.

    The consultant also wants to do a womb scan as I had had a period in August but nothing before that for around a year.  I thought the period was because I started a low carb high diet in that month and apparently this can interfere with eostrogen and bring on a period (but I may be wrong).  Anyway, the period in August has meant I will need to have a womb scan.  If there is treatment needed after the biopsies/polyp, they will do the womb scan (2mm camera into the womb) and the treatment at the same time, all under general anaesthetic.

    How was the experience? - I would be lying if I said it was pleasant.  I think I had underestimated the emotional impact of the proceedure and I did get tearful mid process.  However, even the removel of the polyp was painless: as I said, the worst bit was inserting the speculum.  I could not have asked for better or more empathetic care.  The consultant and the nurse who assisted (both women) were really lovely, everything was explained, it was taken at a pace I was comfortable, and at the end I was offered water and the nurse made me a cup of tea and took it to the waiting room with some biscuits.  I cannot fault the care or the approach.  Also, when I was visibly a bit shakey mid process, they asked if they should call my husband in from the waiting room.  There was nothing in the letter calling me to the appointment that said I couldn't bring someone for support and I am so glad (because it was Saturday) that I was able to bring my husband.  I didn't get him bought into the consultant room but it was really lovely to have him there for support when I came out and had the cup of tea.

    There is a special chair for the process, not a bed like in the doctor's surgery.  There are also stirrups but the reality of this is that they are metal foot rests for you to place your feet on which actually makes it much more comfortable than a doctor's surgery.

    One more thing: they tell you when the anaesthetic is applied that you may feel your heart racing.  I didn't get that sensation, but about five minutes after it was applied I felt my legs shaking, a bit like you shake when you have had a shock or really bad news.  Apparently this is also a common side effect.

    Would I do it again tomorrow?  Absolutely.  I didn't enjoy it and found it an emotional rollercoster but there was no signifcant pain and the process is to head off potential problems in the future.  I am pleased I am in the system and I am being dealt with.

    I should have added, it was a Saturday so I wasn't working but if I had been, I am confident that physically I could have gone from hospital straight to work x

  • Thank you so much for that detailed reply, it has really helped! You were so brave, I'm finding the emotional side hard to handle especially as my sister told me today shes having a colposcopy on Tuesday as she had an abnormal smear and has symptoms too, a very bad smell after sex thats very noticeable. So now I'm worrying about her too. My polyp is actually in my birth canal so they cant see the stalk to twist it off so I'm not sure how they will do it. I didnt think to ask any questions at my smear, I was just so shocked they saw something and the nurse made me bleed too so even seeing the blood in the pot that gets sent off freaked me out and I couldnt think of any questions at the time! 

    Really glad to hear your husband was able to wait in the waiting room, I'm gonna bring my husband too unless I'm specifically told I cant.

     

    Your post has been really really helpful in preparing me, I appreciate it especially as your probably a bit freaked out yourself. I have everything crossed for you. Please let me know how you get on xx

  • This post is so helpful i was 21 when I had mine done. 13 years ago and I remember being told oh its nothing to worry bout. But it was hard not to. I fount it very uncomfortable and slightly painful after. I was never told why my results were abnormal until a routine heart hospital appointment about 5 years ago when the consultant told me that I had cancerous cells removed at 21. I was shocked to here that. But since having the treatment done I had a few abnormal smears but mainly they have been fine. I think its great that you have explain your experience as this can be very daunting for us women to go through.

  • Hi Emer, 

    Glad your worst fears were ruled out. I went back to work after both biopsies I've had. The first I was completely fine, other than that horrible pressure you have in your stomach when you need to pass wind, but can't (apologies). The last one I had I went into work and as soon as I walked in the building, I knew I shouldn't have been there. I was doubled over in pain. People who had no idea I came in late made a comment that I looked pale and if I was okay. Luckily my boss is amazing and knows about the whole situation (I had an actual breakdown in her office when I first found out). When I went to her, she told me to go home immediately and would sort for my work to be covered and even messaged later to check on me. I luckily don't suffer with period pains, but I can imagine what I was having was a really bad case of them. Severe cramping in the stomach at any slight movement and just needing to curl into a ball with a hot water bottle.

    Anyway, I'm not sure entirely, but certain your procedure is going to be more intense than the biopsies. I'd suggest you take it easy and good luck Thursday!

    Try not to stress about your sister - again, she's getting the best treatment too, but it's nice that you both have someone to speak to. It just shows how common HPV is!

    Thinking of you both. 

    Kat x

  • Colposcopy results came Back CLEAR

    I'm so happy had anxiety attack walked out then walked back in and went through with it.

     

    Thank you for everyones support 

     

    Smear again in a year

  • Amazing news - Congratulations on the result!!!!! I hope you're so proud of yourself going through with it after a panic attack. Suffering with panic attacks myself, so know how much mental strength that would have taken for you to do, and so worth it for you to have those results and a complete release of all that built up anxiety.

    Kat x

  • Thank you so much, you have really helped me!! Hope you are keeping safe and well. And I'm so jealous. No period pains?!!! Xx