My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Thank you so much for replying.

    I've always kept up with my smears and they were all normal. I didn't even know i had hpv. guess this is why it was a shock hearing some cells are high grade severe. I went into quite a panic. 

    Thank you for shedding some light on what to expect. I just sit here considering every niggle or ache I have is now because of it. Seems like an over reaction its just i find it so hard to switch off. I've been working in palliative care recently so I expect that hasnt helped my thought processes with this. 

    Thanks again. Xp

  • Glad I can try to help you in any way as it's a time you feel so alone and so vulnerable. Yes, naturally you expect the worst and nothing will keep your brain from having those thoughts, but once you've had it done in Tuesday you'll wonder why you were stressing so much. The unknown is so so scary.

     

    My first smear was all normal and the second one at 27 1/2 came back high grade (CIN2) with HPV. I'd not had any sexual activity in the 2 years previous so was baffled as to why I had HPV. You automatically think it's something dirty, but 80% of women have it at some point in their lives. Apparently some women can have the virus dormant for years and can only flare up when their immune system declines. I think was my case as I had a really stressful bereavement the year before, which had really affected me. Some women can also pass HPV onto their daughters through childbirth, so you could have the dormant virus since birth.

     

    You'll probably never know where you got HPV from, but your body is so powerful and likely to fight it off. My third colposcopy this year was last week and CIN2 appears to have reduced to CIN1 although I'm waiting for my biopsy results to have this confirmed. These results will also confirm whether I am still HPV positive or not. 

     

    Wishing you all the luck on Tuesday xx

  • Hi K-elf,

     

    Sorry to hear your going through this. I also had a letter to say I have HPV but currently borderline cell changes. My colposcopy appointment isn't until end of Dec but I 100% relate to how you a feeling regarding expecting the worst when You get to the appointment! I think it's natural that our minds go that way, I have found these forums and hearing other people's experiences has really helped though and has made me feel a bit more reassured about what they might find. 
    Just wanted to say as well I've been doing exactly the same everytime I get an ache or pain. I just assume it's all related and something more sinister is going on, but the brain is an amazing thing so I'm putting it down to the stress and anxiety causing these niggles more than the result of my smear test. 
    I hope your appointment goes well and be reassured how your feeling is 100% natural. 

  • Thank you so much for your response. 

    The mind is so powerful isn't it. I'm glad I'm getting in soon however I am worried that the speed of the appointment means the worst. There's really no pleasing me In these cases as I would be worried if I had to wait weeks too.

    Hoping yours goes well and again I appreciate the support x 

  • Any suspected CIN2 or CIN3 have to be seen within 2 weeks of them getting your results, which is the reason for the speedy appointment. Hope this helps to ease the mind xx

  • Hello!

    I'm new here!

    I got my results back in august, I had my colposcopy like 2 weeks ago. I have mid changes, the biopsy will say more after 2 more weeks, but I'm not worried.

    What I'm worried about I have white discharge inside my vagina and I don't know what is that. My local gp took a sample and they said I don't have any infection or yeast. Sometimes before the pee I feel... I'm not saying pain but it's feels like a little uncomfortable. When you feel something is not okay.

    Can it be because of the hpv?

    When it's started I had the same symptoms (I'm having it from july), still the test says nothing.

    I'm really worried.

    Thanks for the help!

  • Hi starlight, welcome to the feed.

    I'm not that clued up on that area, but some key things that might help others to help you out. What consistency is the discharge? Is it thick and clumpy? Fluid like? Etc. Also, how old are you?

    So many amazing women on here, so hopefully someone will be able to help you out :)

    Kat xx

  • Hello~
    It's good to read that I'm not alone with this. Thank you!

    I'm 28, and I'm worried since July. The discharge is like when you have yeast (whiteish), but the test says I don't have one (nor infection) - still I have this from the beginning. (I went to my gp, because I believed it's yeast but it turned out it's hpv.)

    I'm really nervous about this. Me and my boyfriend decided we gonna try with a baby next year (first one!), and I really hope this is not gonna stop us.

    Thanks for the kind words!

  • Hi all,

    I am an anxious mess. I have read through here to try and bring me down from the ceiling. 

    Basically in a nutshell, went to GP in January found lump on cervix said it was a polyp anyhow referred me to gynae. 

    Covid caused a delay. I had a telephone appointment in April to be told he needs to see me. Which he did, in October...

    He said I needed to have a colposcopy. After losing my referral, having no record of appointment going back and forth I complained and have a colposcopy booked for a week today. 

    I am petrified. Not of the colposcopy really but of the unknown. Of the C word. I'm beside myself. 

    How long did people wait for the results of their biopsies? 

    L x

  • Hey there,

    Nothing's worse than a suspecting patient who's worried about the worst case scenarios, writes a scary post about them and then vanishes without any updates, and then the rest of the people on the panic forum think they're dead :)

    I signed up for private healthcare, to get my colposcopy done sooner, so I didn't have to wait till the end of December, as that was killing me slowly (I'm an anxious person, I got so stressed that I gave myself a conjunctivitis and various other aches and pains in the space of two weeks!). 

    I had my colposcopy today. My smear test result in November said I had low-grade dyskaryosis, also known as CIN1, got scheduled in for the colposcopy 30th of December, managed to get one sooner (9 December). Today's result: get another smear test in a year's time.

    I was a little tense and moved quite a bit but the doc was gentle, I could see a very small blood drop on the screen (doc said it can happen when you touch the cervix), they did a iodine test and said she'd rather not subject me to a biopsy because whilst she could see the HPV had been changing some things down there, it wasn't meaningful enough to justify a biopsy. Also said the cervix looked quite normal - note that the iodine test (also called a Schiller test) is when they coat the cervix in a iodine solution, this solution stains healthy cells brown, while abnormal cells maintain their typical white or yellow color. My cervix absorbed the whole thing and turned brown, which apparently is what you want to see during this procedure. 

    My suggestion to everyone in a similar situation: work hard on your immunity to flush this stupid virus out of your system and look after yourselves. I'm taking multivitamins, Omega 3, propolis, polen, trying to eat healthy, I'll join the gym too, stay positive (i.e. less stress).

    And go with a list of questions to your docs, to ease your mind.

    Take care!