My First Colposcopy after Abnormal Smear - Don't Worry!!

Hello,

I felt I should write something here on this forum regarding my first Colposcopy. There never seems to be a follow up when somebody has had a colposcopy and I would like to share my experience with you.

It all started when I had my very first abnormal smear result. My previous 2 smear tests had been normal.

My first reaction was panic! I started to google cervical cancer and was left in a state of anxiety. I was convinced that this was it for me.

It didn't help that my abnormal smear was showing high grade dyskaryosis, the words "high grade" were very upsetting.

After 2 weeks of waiting and worrying my colposcopy appointement had arrived. I was a bag of nerves whilst in the waiting room. All I could think is this is really going to hurt and scared that the Dr was going to tell me I had the big C!


When my name was called I thought "this is it, my fate will be decided now". The Dr sat down with me and the first thing he said was, "you do not have cancer". In my mind I was thinking, you haven't even had a look yet, how do you know?

Basically, an abnormal smear comes about from a change in the cells of your cervix. It does not mean you have cancer. It can take up to 20 years for cancer to develop and that's only IF the cervical cancer is activated.

The Dr explained alot to me and made me feel at ease. Next it was the colposcopy......

My advise is to wear a long lose fitting skirt like I did, otherwise you'll have to walk from the little changing room to the chair with you little tush hanging out!

I had to sit in a big chair that had to bits either side to put my legs on. All you need to think is how many women have colposcopy's everyday and what the Dr is seeing is no more than what he or she sees everyday. That is what they are qualified in.

The nurse then helps you get comfortable and stays right by your side all the way through it.

When you are ready, the Dr puts the same kind of speculum inside you that is used for your smear test, then there is a kind of funny looking set of binoculars thing that sits on the outside of you vagina, they do not go inside. The Dr then opens you up.

THIS DOES NOT HURT - It may feel a bit uncomfortable but it doesn't hurt. It feels no different to the smear.

I didn't need any treatment so I cannot comment on that but I did however need a biopsy - which again didn't hurt. I was told to do a huge cough on the count of 3 and that was it, biopsy done.

I would recommend looking at the screen to the side of you, of your cervix so you can see what the Dr is seeing, he/she can then explain to you the condition of your cervix.

This all took less than 15 minutes.

You should take a sanitary towel with you as afterwards there can be some blood or discharge.

For the rest of that day I had period cramps which is normal. They can last 2 to 3 days - everybody is different. You will also have a brown coloured discharge. This can last 3-4 days - again everybody is different.

So to conclude - The worry comes from not knowing. If this is all new to you then worry is at the top of your list but now I have had it done once, I know what to expect if it happens again in the future and I KNOW it isn't half as bad as you expect it to be.

I hope this has helped a few women out there and if you have any questions please contact me and I'll try to answer them for you.

Thank you.

  • Thank you! Your right was biopsy did not hurt I was surprised! I asked for the area to be numbed and he said that would hurt more than the biopsy lol 

    for anyone reading this thread the most painful part for me was the speculum going in which was the same for the smear! I was in there all in all around 20 mins and I asked a lot of questions. The process itself took 5 mins! I was so relieved for it all to be over with. I had a male dr who was really nice and 2 lovely nurses who was there for support through out. I was told there was a few abnormal cells and a biopsy was being taken. Results take around 6 weeks I have to wait for results however he said not to worry he thinks it looks ok. I'm so relieved to have gone, I am the biggest wimp ever I cried as soon as I walked into the room however I feel like a huge weight has been lifted off my shoulders ever since. Ladies get booked in, phone and ask for a cancellations I promise you it's just like a smear! 
     

     I googled everything you can imagine in preparation, listened to podcasts about it, watched YouTube videos of people telling stories about their experience however this thread really helped me - Thank you to everyone who took time to write on here xxx

  • So good that you got it done. It really is so simple and so worth it in compared to not getting it done and having the worry on your shoulders. My results took around 3 weeks and 4 days to come through, so hopefully yours will be similar. All the luck in the world. 

  • I received the dreaded phone call from the nurse at my clinic this morning to say my smear test results have come back abnormal and that the hospital would be in touch about a referral. Scared is an understatement as I was told I would get the results sent out in a letter. The phone call has now made me worried that it is something serious. The wait now for the letter from the hospital is going to be awful and then the wait for the actual appointment will be unbearable. I have myself worried sick as I seem to have a lot of the symptoms of cancer :-(

  • The fact you have to wait for a referral is an indication you may have CIN1. How old are you may I ask? CIN1 is common in later 20s and early 30s, so although it's easier said than done, try not to stress yourself. Give the clinic or your GP a ring and find out what abnormalities they found. If it is suspected CIN2 or above, they have to see you within 2 weeks, so you usually get an emergency appointment on the first phone call.

     

    Don't panic about the procedure. It's so so simple and virtually painless. See the thread above where myself and a few other women have spoken about each stage we've been through.

     

    You will be okay. They tell you not to search the Internet about the condition, but it really helped for me. Especially the links below.

     

    www.google.com/url

    www.google.com/url

  • Thanks for the reply. I'm 35 and a nervous wreck at the best of times. Hope you don't mind me asking but how did you initially find out about your abnormal results and how long was it until you got your colposcopy? 

    I have read the thread and thanks to you all for sharing your experiences as now I'm not as worried about the colposcopy, it's just the results that scare me. 

  • I got a phone call out the blue the day after boxing day asking for me to book in for an emergency colposcopy and needed to be seen ASAP. I had no idea what was going on as I'd not had any results and obviously just went into a state of panic hearing the word 'emergency'. It was later on on a Friday, so nobody I could call to find out what the hell was going on. Had to wait until the Monday to be able to phone and even then, most people were off work until the New Year, so I honestly understand the nightmare you're going through. It took until around 4th Jan before my letter came in the post with my smear results. They suspected I had CIN2 and HPV positive.

    I had my colposcopy on 7th Jan. Most pages online say a loop will be done following a colposcopy for those with CIN2 and CIN3 to remove abnormal cells, however, if you're in your late 20s or early 30s and have CIN2, they prefer to just do the biopsies and monitor you every 6 months as your body can naturally fight those abnormality. My biopsies came back 2 weeks ago and I'm CIN1 and HPV positive, so not as abnormal as they initially thought. Have to go for another colposcopy in June and for as long as I have those abnormalities and HPV, I'll be going to the clinic every 6 months for monitoring. 

    It's best to be safe than sorry!

    If there are any questions you've got that can put your mind at rest, I'm here to help. 

  • The wait must have been awful for you. 

    Glad your results have come back less abnormal and I hope all will be back to normal with you again soon.

    You have definitely calmed me down a bit with your reply. Thank you so much for your help .

     

  • Hi,

    I just wanted to share my experience as well as I had my first colposcopy yesterday. I received my smear results earlier last month: HPV positive and low grade dyskaryosis. I spent the past 5 weeks in such a state of ansiety and Google didn't help. I did too think I had symptoms and getting over stressed checking if I had discharges, any pain, etc.

    On my colposcopy the doctor said he couldn't see any abnormalities, just signs of the HPV infection and didn't find any abnormal cells so I didn't need biopsy.

    I understand very well your anxiety but what really helped me to get through this was to look at the statistics: the chances for abnormal cells to develop to cancer are very low and all the treatments help to avoid even the chance that that can happen. See it as a way to stay healthy rather than you being sick because you are not! You are a healthy woman, remember that!

    I hope this helps :) 

  • Google has me convinced that I'm sick, worst thing I could have done was to look it up. Glad to hear you had no abnormalities. I never even thought to look at statistics, typical me I just went straight to thinking the worst and checked my symptoms. Thank you for your positive words, yes I haven't been diagnosed with anything so I shouldn't be stressing though that's easier said than done. Hopefully I'll not have to wait too long until I get an appointment and hopefully all this stress and worrying has been for nothing.

  • Please keep us posted on how it goes.

    I read this chat before my doctor appointment and you don't actually see lots of people telling you what happens after the visit as if they get good results they forget about it.

    I found out so much about HPV since I had the smear test result: it is very common to have HPV and mild dyscaryosis. It doesn't mean you have cancer, you are far from it. 
    Eat well, reduce your alcohol intake, take vit c, drink tea with fresh turmeric and, most importantly, enjoy life and spend time with your loved ones!