I found your question, and was surprised to find no one had tried to respond. I suppose that by now you may know what the status of the diagnosis is. I hope you will be able to cope with the news, and I think because you have chosen the name Phoenix you are probably determined to survive this.

I had a diagnosis of endometrial cancer, but for me the notion of a hysterectomy was not a problem, as I have had my children and they are now grown up. I can imagine the terrible sadness for some of the younger women who appear at the gynae-oncology clinics, and I know I have been fortunate.

When I went back to work a younger collegaue told me that she had been diagnosed with ovarian cancer many years ago, and as a result of treatment could not have children. However, she is the delighted and frequently exhausted mother of a beautiful little girl she has adopted.

I hope your treatment will mean you can still do most of the things you want to in life.

You are in a scarey place with so much unknown. I haven't posted here for years as I am now nearly 7yrs post surgery and doing fine. I still remember the fear.

it sounds like you have had previous medical treatment, and this may make things more complicated for you. However, I think you need to listen to your doctors. There are many ways to treat cancer and I think they will be looking at the one which is likely to give you the best outcome. Survival and quality of life matters. My sister also had womb cancer and more intense treatment: she also is doing well, despite some complications.

some doctors are better at explaining things than others, so you could try asking why they think one treatment is better than another. Sometimes it is good to chat to the nurse as well.

I'm 23 and have been told I may have atypical Hyperplasia. I'm waiting for my biopsy results and will see my consultant. After all the reading I've done I've hardly come across any stories about this in women in their 20's! I haven't had children yet either :( I will be doing all I can to avoid a hysterectomy. My fingers are crossed for you lovely x

I'm 36 and after 18 months of constant bleeding was diagnosed with an endometrial polyp. After consultations I had a hysteroscopy to remove the polyp and was told by the consultant that usually there is nothing sinister in the polpy but they have to send them off for histology. I went back for my results early in July, feeling much better and expecting to be told everything was fine. The complex hyperplaisa with Atypia diagnosis was such a shock, I literally can hardly remember a word the doctor said. I am currently waiting for an MRI scan to check for any spread and will then start discussions re next steps and treatment. The road ahead does feel pretty scary, I have never had children and would love the chance too. 

Hope you find some good treatment options and get your chance to have a family!

Will keep everything crossed for you x

I'm 36 and after 18 months of constant bleeding was diagnosed with an endometrial polyp. After consultations I had a hysteroscopy to remove the polyp and was told by the consultant that usually there is nothing sinister in the polpy but they have to send them off for histology. I went back for my results early in July, feeling much better and expecting to be told everything was fine. The complex hyperplaisa with Atypia diagnosis was such a shock, I literally can hardly remember a word the doctor said. I am currently waiting for an MRI scan to check for any spread and will then start discussions re next steps and treatment. The road ahead does feel pretty scary, I have never had children and would love the chance too. 

Hope you find some good treatment options and get your chance to have a family!

Will keep everything crossed for you x

Hi Vicky

sorry for the late reply I've only just seen this!!

how are you doing? What's the treatment plan for you now?

my consultant is putting me down the Mirena IUD route as I'm too young to be having a hysterectomy especially with no children. And I want them so badly! 

I'm seeing her in 3 weeks for a proper discussion about my results in full and ongoing treatment. 

My fingers are crossed for you also!! X

Hi, I've just been reading through this chat after doing some googling and hope you don't mind me getting in touch. I'm really sorry to hear about your diagnosis. I was wondering how you was getting on now?

I've been diagnosed with complex hyperplasia with atypia after having a hysterascopy in June followed by one in August and then an MRI scan in September. I started taking provera in August and have just been today for another hysteroscopy and biopsys this morning in which she said my lining is still quite thick. I'm terrified for my results and was just wondering if you had more joy with your results. 

Thank you

Emma

Hi @Riley18, 

I just thought I'd share a positive result after this diagnosis, I hope you find this helpful 

I'm from AU and I was diagnosed with compex endometrial hyperplasia with atypia 2 years ago at age 18. I underwent multiple d&c's and hysterscopy's to take biopsies of my lining as it was 20cm thick and had cystic spaces. I had the IUD (mirena/coil) placed while getting a biopsy taken and then had my lining resampled 3 months after - these results hadn't changed and I had another biopsy another 3 months later. This biopsy came back all clear! I'm still recieving treatment (IUD) for the next 5 years (for now - probably longer) and I see my gynaecologist every year. 

It's tough and it's a hard diagnosis to have, I wish you all the best 

Hey Riley.. so I had prostap for 6 months and lost around 4 stone. Had my coil fitted and I am now completely fine. I have a large cyst on my ovaries but other than that my lining thinned down. 
the prostap takes it toll on you though that's for sure. Very sorry to hear about your diagnosis. There isn't nearly enough info out there x

Thank you for replying. It's the first time I've spoke to others that have this and feel abit lost with it. I've been under my consultant for 5 years for trying for a baby, 2 years ago I had a hysteroscopy because my lining was thick but biopsys was fine, so in June when they retested me it was all abit of a shock considering I had normal periods. I'm only 32 and again have no children so suppose I've got to wait and see for these biopsys to see if the provera has worked. Really glad to hear some positive results from this. 

Thanks again

Emma x