Gynaecological cancer symptoms ongoing

Hi all my name is Christine I was last year tested poked and prodded as we all are to see if I had endometrial cancer it turned out I had severe dyskariosis so in I went for them to cut it out turned out they couldn’t so had to have it done under anaesthetic the outcome was the removal of a fair amount of my cervix but I was told all was good then the results came back from the bit they took away and I was told there was still con 2 in the fringes but that this is normal and not to worry the bleeding for which I was originally concerned with didn’t stop my doctor kept an eye on me and told me it was all fine I had my check of cure and was told all clear despite still bleeding my HRT was changed I was given a higher dose then higher still my progesterone was also increased time and again my bleeding didn’t stop so this week on Monday felt I’ll at work flooded my pad and once again down my legs it went anyway another app with the doctor but it got changed last minute and had to see someone else by now. I’m taking 100mg of oestrogen and 300mg of progesterone a very high dose of both now this new doctor didn’t like the history or the symptoms I’ve been bleeding now for just over a year to say I’m knackered is an understatement but she has recommended me for 2w cancer investigation saw her on teusday had transvaginal scan yesterday and blood tests today I had a mammogram today as she said the levels I was taking are too high but at the scan they couldn’t see the lining of the womb so it’s now inconclusive the lady who did the scan said she thinks there is an obstruction and that’s why she can’t see it ???? Has anyone else ever had an inconclusive scan if so what did it turn out to be ??  I guess I just want someone to talk to really who is maybe a both further forward than our knows anything I guess I’m just worried if it is cancer it’s had a year to grow untamed as such !!! 

  • Hello Christine, 

    What a stressful year you have had going through all these tests for endometrial cancer and having to go through the removal of a large part of your cervix. It's good though that this new doctor is being so thorough and you shouldn't have to put up with this prolonged heavy bleeding. Even though it can be a bit scary to be told you have been put through a 2 week cancer investigation, the reality is that these urgent referrals are a way to investigate your symptoms faster but it doesn't necessarily mean it is cancer and there are so many other conditions that could explain these issues. 

    I can imagine being told there was a possible obstruction has made you worried and the words 'inconclusive' may have increased your feelings of anxiety linked to the uncertainty as to what is going on. Have they told you more about what the next steps might be after these inconclusive results and whether they will be able to scan you again or what they will do about this obstruction they have found?

    This must be quite an anxious time for you and I wanted to give you our nurses number if you wanted to talk things through with them - you can call them on 0808 800 4040 Monday to Friday from 9am to 5pm. 

    Hopefully you will get to hear from others on here who have been through this process of investigations for similar symptoms before - it helps sometimes to talk to someone who is or has been in the same boat. 

    Keeping everything crossed for you that you won't have to wait too long to have a full resolution and clarity on what is causing these symptoms so that you can resolve them and have effective treatment to stop this bleeding. 

    Best wishes, 

    Lucie, Cancer Chat Moderator