I have had enlarged painless groin lymph nodes for 10 months. I have been suffering with severe drenching sweats, itching, bloating, fatigue, breathlessness and weight loss. I was having 6 weekly ultrasounds. At the last scan in May, the lymph nodes had tripled in size and mass. I was then referred to a haematologist via the 2 week cancer pathway. I have had bloods which came back as satisfactory, a PET CT scan and a biopsy. I had a consultation yesterday where my consultant told me we are still awaiting the full biopsy results for the full picture. All she told me was the lymph nodes had tested as reactive to the first stage of testing. I will have another appointment in 3 weeks.

Alongside this, 8 weeks ago I developed a large lump in my throat next to my trachea. They think this may be thyroid related. I don’t think it’s in any relation to the groin nodes as I’ve had these for months.

I am so confused and in a constant state of panic. I know I am unwell in myself. Has anyone experienced similar and what was your outcome?  

Thanks in advance