terrified - waiting for a colonoscopy

I have had no real symptoms or was not aware I did. I went to the doctors with pain in my foot – tendonitis. They arranged for blood, FIT, and urine tests almost because I was there and took my blood pressure, which was low. I have lost weight, but not unintentionally – I have been trying to lose weight, so I was putting less pressure on my foot. (Generally this has not been that successful, but it is going much better with all this anxiety). Guess it will be easy tomorrow with the prep!

Tests came back – low vitamin D and positive for blood in stool. I have had low blood pressure and low vitamin D for years but never had a positive FIT test. I was tested once for H. pylori (a few years ago now), but that was negative, and they never said they found blood then, but they did find a hernia in my endoscopy test. I have Factor V Leiden and am/was on blood thinners (I don't like them because they cause bruising, and I don't always take them). The doctor said because of the tendonitis in the foot and needing to RICE, I should restart taking them the week before I handed in the stool sample for testing. I stopped taking them after results a week later! I was concerned about the amount of bruising, and I would have to stop them for the procedure anyway. 

Of course, since I was told I needed the colonoscopy, I am considering everything as a negative symptom. I am absolutely petrified. I have the laxative day tomorrow, which I am also dreading, and the procedure is on Wednesday. The anxiety I am sure is making things worse, but all this came totally out of the blue. Can anyone give me some reassurance? I know that is a big ask! For those who may not know what Factor V is, it is a blood clotting disorder that is a genetic condition. and makes my blood more likely to clot (thrombophilia), so of course having the colonoscopy has a risk in itself. They discovered that when I had a DVT several years ago now. (and that was really scary as well). I am not young – I am 71 and am trying to convince myself 'what will be will be', but not at all successfully. All I want to do is cry. Typically today is a bank holiday as well, and the weather is fantastic but I really can't put this behind me and sit in the sun to increase my vitamin D levels. I have not told my son as I don't want him to worry before Wednesday (he is taking me to the hospital). 

  • I'm so sorry you're worried and it's understandable. I'm afraid I'm not able to help but I'd advise you to talk to one of the nurses tomorrow. They're not available today due to the holiday but you can contac them on 0808 800 4040 when they're available between 9 and 5. I hope you're able to speak to them before you go to the hospital tomorrow. Take care and I hope you can get out to sit in the sun. Gill xx

  • I just did a search and found that MacMillan seem to be running a chat today. If you go to https://www.macmillan.org.uk/cancer-information-and-support/get-help/macmillan-support-line/cancer-information-nurse-specialist there's a chat link there. Or you can phone them on 08088080000. I hope that helps. Good luck. Gill xx

  • Thank you for your reply. Prep was not nice; it didn't taste too bad, but I was up on and off the toilet all night, and I was still passing fluid even after I got to the hospital, which was over 12 hours after taking the first dose. Took ages to take effect. Then I had to wait over 3 hours for the op which did not help with anxiety or dehydration, to be honest. I have to pick the hottest day of year. Anyway, the colonoscopy itself was not too bad, although it seems I was given two lots of sedatives, according to the notes. I have diverticulitis, it seems, but nothing else untoward, which is good but puzzling as I have had no symptoms at all, other than the blood in the stool. It also seems to be just in one place as well. The only other thing is the apixaban, so I suppose there will have to be more tests. It could also be related to my vitamin D deficiency, apparently. Anyway, once again, thank you for your reply. I appreciated your support.

  • You're welcome and I'm glad it wasn't too bad. Waiting must have been awful though, especially when you're hot and uncomfortable. I hope they can sort this out for you and find out what's going on. Take care and we're here if you need to talk. Gill xx