Scared after seeing on my NHS app the words 'suspected gynaecological cancer'

Hello, 

I went to the Dr about 3 weeks ago after some bleeding in between periods and lower back pain.

Had a blood test done on Tuesday, which came back as abnormal. My CA125 result was 43. I spoke to the Dr and she said she would do a fast track referral for a scan and to see a gynecologist. The scan date has come through for 28th May. 

I am really scared after seeing on my NHS app the words 'suspected gynecological cancer'. I am 42.

Parents
  • Hello Lis83

    I know exactly how you feel. I am still awaiting results and it feels like forever. You imagine any type of cancer going and I've driven myself mad!! It's the words...... Although, I feel best to have it checked than second guessing. I hope all goes well and the scan is ok. Take care. 

  • Thank you so much for replying  sorry you are going through this. 

    Had you had a higher than normal blood test too? What was the scan like?

    Sending positive thoughts ️

  • Was just looking back to see timings. I went down at 4.30pm and was probably out cold 5 mins later! Husband was informed on the phone at around 6.10 that I was being taken up to the ward but I was still drowsy and not awake. The consultant had told me the procedure would take around 30 minutes. They’d given me anti sickness and pain relief before I came round and I was fine and no pain or cramping at all. I only took some paracetamol before bed and then kept dosed up Tuesday but nothing since then. 
    The lady before me at my gynaecologist appointment had had it done during her appointment and was fine awake but my previous ablation complicated things. She seemed to be ok in the waiting room after. I believe you will be given the option of a GA so it’s personal preference x

  • Thank you so much for this!x

  • Thank you. I am now trying to secure an appointment for a coil. Apparently its a 2 week wait. That's made me anxious as I thought it would be done straight away. Sometimes it's good to know, but it can be all too much accessibility to information. They told me off at my appointment. It's so tempting to look at your notes because you want to know!!! I hope you feel ok soon xxxx

  • The thing is the attitude is matter of fact.... Very chilled whilst your trying to process all the procedures, the appointments, emotions, family. Then it just comes all out. Ive now got a sore throat!!! I believe stress related. I hipe they find a way to get your procedure done xxxx

  • I just want to say it was kicking off at work today usually I would take it on, over think. After whats gone on... I was like if this gets too much im off. Totally different outlook especially with what's going on with us all. Xxxxx

  • Oh bless you, hope your sore throat doesn't last long. Thank you. I hope I get an appointment through soon x

  • Absolutely! Puts things in perspective doesn't it. Xx

  • Can I ask did you get a call or letter to  let you know your biopsy results/follow up consultant appointment? It’s been 8 days and I’ve not had anything yet and I’m not sure what to expect. I got a letter copied to my gp yesterday which was from my initial consultation on 21st May just saying I’d been referred for a GA hysteroscopy and biopsy. I’d hoped it was my results! Just finished my antibiotics today that they discharged me with after the procedure due to previous sepsis episodes. It was 2 different types so I’ve been staying close to home as they didn’t agree with me but hoping to get out on some walks this week once my stomach settles as I find it helps with the stressing. Hope you get your appointment soon. 

  • Can I ask did you get a call or letter to  let you know your biopsy results/follow up consultant appointment? It’s been 8 days and I’ve not had anything yet and I’m not sure what to expect. I got a letter copied to my gp yesterday which was from my initial consultation on 21st May just saying I’d been referred for a GA hysteroscopy and biopsy. I’d hoped it was my results! Just finished my antibiotics today that they discharged me with after the procedure due to previous sepsis episodes. It was 2 different types so I’ve been staying close to home as they didn’t agree with me but hoping to get out on some walks this week once my stomach settles as I find it helps with the stressing. Hope you get your appointment soon. 

Reply
  • Can I ask did you get a call or letter to  let you know your biopsy results/follow up consultant appointment? It’s been 8 days and I’ve not had anything yet and I’m not sure what to expect. I got a letter copied to my gp yesterday which was from my initial consultation on 21st May just saying I’d been referred for a GA hysteroscopy and biopsy. I’d hoped it was my results! Just finished my antibiotics today that they discharged me with after the procedure due to previous sepsis episodes. It was 2 different types so I’ve been staying close to home as they didn’t agree with me but hoping to get out on some walks this week once my stomach settles as I find it helps with the stressing. Hope you get your appointment soon. 

Children
  • Someone should have set your expectations about getting the biopsy results.
    This varies from one hospital to another and some tests take longer than others.
    Typically 2 to 4 weeks is normal in my experience and there’s no time difference for receiving good news or bad news - whatever I’ll-informed people may tell you. 
    Best practice is for us to receive the results face to face, so please don’t panic if you get an appointment to see your consultant.

    Good luck!
    Dave

  • Thank you! The nurse said 1-3 weeks but wasn’t sure how I’d be contacted and unfortunately as I said my procedure was late so my consultant didn’t come to see me after which was scheduled to happen so I didn’t get any info at all. Just trying to keep busy!