Hi,

Sorry to hear that you have a new diagnosis.

I have had 2 laser surgeries to the right lateral side of my tongue, first op was because I had 2 ulcers, the biopsy showed moderate dysplasia but the results after my op showed mild dysplasia.

It is possible to get 2 different gradings from a sample, which is what I have read too so bear that in mind.

When I found out I could have an op I chose that because I felt it would give me peace of mind to have it removed.

First op in 2022 and I had my second op in Feb this year. Just got my results and they were fine, I am on 3 monthly appointments at the moment but will revert back to 6 monthly appointments soon I hope.

I would say the 2 weeks post op are the most difficult for eating, talking, drinking and keeping your mouth extra clean to avoid infection. I was given an anaesthetic mouthwash which numbed my tongue and it was great. I managed any pain well with paracetamol and ibuprofen, so it is doable.

Because yours is in a different place you may have different difficulties than me but I would always opt to get the dysplasia removed since surgery now is better, to try and avoid a neck dissection op further down the line.

I understand what it feels like to have to make a decision, how it affects you mentally and it changes what was carefree times, although I absolutely relish joy and try to live in the moment as much as I can.

Here if you need any support.

Take care,

Sue x

Hi,

Sorry to hear that you have a new diagnosis.

I have had 2 laser surgeries to the right lateral side of my tongue, first op was because I had 2 ulcers, the biopsy showed moderate dysplasia but the results after my op showed mild dysplasia.

It is possible to get 2 different gradings from a sample, which is what I have read too so bear that in mind.

When I found out I could have an op I chose that because I felt it would give me peace of mind to have it removed.

First op in 2022 and I had my second op in Feb this year. Just got my results and they were fine, I am on 3 monthly appointments at the moment but will revert back to 6 monthly appointments soon I hope.

I would say the 2 weeks post op are the most difficult for eating, talking, drinking and keeping your mouth extra clean to avoid infection. I was given an anaesthetic mouthwash which numbed my tongue and it was great. I managed any pain well with paracetamol and ibuprofen, so it is doable.

Because yours is in a different place you may have different difficulties than me but I would always opt to get the dysplasia removed since surgery now is better, to try and avoid a neck dissection op further down the line.

I understand what it feels like to have to make a decision, how it affects you mentally and it changes what was carefree times, although I absolutely relish joy and try to live in the moment as much as I can.

Here if you need any support.

Take care,

Sue x