Hi everyone, hope you are doing well. My main question is the title, but I’ve provided some context for the question below. 

Sorry if this gets messy and confusing, that’s how I’m feeling right now! A lot has been going on with my health recently, and I could really use advice. 

I’m a 33yo woman, I was diagnosed with epilepsy at 20yo and aside from seizures, have been generally well until what’s felt like an onslaught of diagnoses since 2022 (I get confused with the timeline but I’ll do my best!)

2022: Skin issues - eczema, hidradenitis suppurativa, frequent general itchiness/flaking, had me at the GP constantly, which led to my PCOS diagnosis being made by Gynae (think this was long overdue).
I’m under endocrinology and taking Spironolactone/metformin. Scans at diagnosis showed polycystic ovaries, left ovary larger but no other issues.

2023-2024: My GP referred urgently to urology for unexplained blood in urine, and urgent urges to urinate, this was eventually diagnosed as urethral stricture - GP referred out privately, so tests/diagnosis were speedy but they felt my epilepsy was too much of a risk to operate. I’m now back on NHS waiting list, op expected in 2027  I still have incontinence and urgency so until then I just spend a fortune on pads, pulls up and incontinence sheets.

2024-2025: After being controlled for years, my focal seizures came back in a big way. Was sent back to epilepsy monitoring unit for re-scanning and same diagnosis as always - left temporal lobe epilepsy. Meds changed and doing better now.

2025-2026: In Nov 2025 endo picked up high haematocrit in my bloods, which was monitored over 4 months without coming back down. Endo did not confirm they suspected anything but they did test for the JAK2 gene which came back negative.
As of April my RBCs are all back within range, so nothing further happened with that.

Endo were concerned about lack of appetite, bloating, early satiety and weight loss (I’m now 58kg - 20kg lost over last 18m, with 10kg being in the last 6m) so I was referred to Gastro.

Saw Gastro on 16/04 and they were the first to acknowledge I’d been put on the 2week pathway and sent me for an urgent CT of chest-abdo-pelvis. They were also first to mention cancer, though thankfully it was to say they don’t suspect I have it. They explained how changes in bowel habits are expected if I am hardly eating and advised macrogol and to try to add extra calories where possible.

My letter from the CT scan has come back basically all fine. Everything appeared normal (no comments on uterus), only mention is “bulky ovaries”. I guess this is just the polycystic ovaries seen a few years ago??

Thanks to anyone who read all that! I’m feeling so anxious, and have been really unwell for the past 6 months or so - everyone around me seems worried that I have become thin, frail and in constant pain.

My main question is - is this it? If anyone knows/has been on the 2ww pathway, and cancer isn’t found, do you get a final consultation to summarise and confirm everything is okay? I have an endo appointment at the end of June but that feels very far away right now. But I also feel I might be worried about nothing, and really I should be happy. There’s just no closure.

any support would be so greatly appreciated x