Thyroid nodules / cancer

Hello ,

I have just had an incidental finding of a 4.8cm nodule which has been graded u4. The thyroid gland itself is also enlarged and there is also another nodule which is u2. I have been placed on the urgent cancer pathway. Had my first appointment yesterday which was ….. I don’t know. Another referral on the two week pathway for a biopsy. I was told initially due to the size they would take it out. 

has anyone had any experience with this ? Just very overwhelmed. 

tha k you :) 

  • Just to add it is symptomatic and I have also lost almost 4 stone for no reason … 

  • Hi. I had thyroid cancer 6 years ago. It's...well, not exactly what you might be imagining when you hear the word "cancer". They don't generally use ongoing treatments like chemotherapy or radiotherapy and it has a very high survival rate, with the most common forms having survival rates well into the 90s, percentage wise. For young people, under about 50, I think the survival rate of the most common form exceeds 99%.

    So it is likely to be basically just a case of having your thyroid removed. This does mean you will need to be on medication for the rest of your life to replace what your thyroid does but most people do fine with that.

    And of course, all of that is assuming it is cancer, which it may not be.

  • Thank you so much for your reply. It’s just overwhelming and scary. It has been 2 weeks now. My first appointment was last week which was my initial appointment with thenENT team. I know have the biopsy on Thursday this week. Then it’s another wait. I understand the process is not quick but it’s so scary. I had a scan which showed a 4.8cm u4 nodule on the left and a u2 on the right , with my thyroid gland enlarged. My understanding was that anything over 4cm should come out anyway, and biopsy results are pretty inconclusive? I know I should stop ready things online - but I can’t help it. 

    I hope you are fully recovered now and doing well. 

  • Hi,

    I had a similar diagnosis to yourself in March and was put on the Fast track. I was a bit taken aback at first but once the NHS machine swung into action I had several appointments for tests and scans over the next month. That sounds like a long time,but I found it oddly reassuring that things were moving along. The worst thing is the waiting…it’s always the waiting lol.A big thing for me was my lack of knowledge about the process and if I have one piece of advice it’s if you have questions ask them,don’t be afraid of looking silly,they’re the experts and Dr Google while sometimes helpful is often a tangled web of misinformation and scare stories. I had half my thyroid removed 6 weeks ago and after a one night stay in hospital and some pretty impressive bruising was pretty much ok within a week to ten days. I had my follow up today with the consultant,it’s been a very long six week waiting and wondering (Don’t be afraid to chase people up if you feel the need,yeah they’re busy but a little push hasn’t harmed in my case) Very long story short my biopsy came back as “malignant” so the other half of my thyroid is coming out to be followed by the iodine therapy. Scary word “malignant and it’s back to the waiting game for me,more surgery whenever that may be but at least having had it once second time will just be another scar for the collection. I know all of it is  little scary,but while it’s unpleasant the prognosis the vast majority of tiimes is good and the treatment is just the means to an end. Keep your chin up,try to have a sense of humour however hard that might seem and ask those questions. I’m assuming my treatment is in advance of yours so I’ll update as I go along then at least you’ll be hearing it from someone experiencing the same thing.  Good luck on your journey

  • Thanks so much for your reply! I’m due in hospital on Monday for surgery to remove half of my thyroid. They initially said 2 weeks of waiting …. 6 weeks is a lot !! I hope you’re doing ok. Best of luck to you