I am in a similar situation and didn't want to read and run. I also had a CA -125 result of 85 three weeks ago. Since then I've had ultrasound scans and they found my right ovary is enlarged, I have fluid in my abdomen and my bowel is attached to my uterus. I am having a CT scan next week and will see the consultant the following week. Sadly my Mum died of ovarian cancer when she was 30, so they think it's that. I think it's endometriosis personally, as I experience excruciating pain on the day before my period and first two day of it. Apart from that, I'm pain free. I am 43 and have two children (they are adults now).

It's a worrying time. I wish you the best of luck

Thank you so much for replying.

After looking at ‘doctor google’ my symptoms suggest uterine fibroids and endometriosis. The only thing that’s mildly putting my mind at ease is the fact that Iv suffered with these symptoms for ever. Even before my eldest daughter (19) was born. 
I wish you all the luck in the world for your scan next week, I hope it all goes well. 
much love x

Hi Faye,

I typed all my results into 'chat gpt' and it kept saying endometriosis, so I'm sticking with that. I don't want to go down the rabbit hole. I'd prefer them to do a hysterectomy if they still think it's ovarian cancer in two weeks time. I feel fortunate that I have already had my children, so I don't need to preserve my fertility. I just want to remain healthy and live my life with them. 

I think the waiting for an answer is the worst part, especially as I feel fine until my period comes.

Try not to worry as the majority of people are fine. The CA -125 level can also be raised due to endometriosis or if you were on your period when you had the blood test.

Laura x

Yeah same here, I don’t want any more children so depending on my results on Tuesday, I’d be happy for them to preform a hysterectomy….i know I’m getting way ahead of myself but i have found myself in a rabbit hole the past few days and have literally gone over every possible scenario in my mind. 
I’m not a very patient person so this waiting is driving me mad! Though, I am very thankful that my scans are for Tuesday after only getting the blood results through on Thursday last week. Iv read that some people have had to wait two weeks, to then have it postponed due to strikes. 
Keep me posted on your CT scan updates (if you can) 

take care, 

Faye x

I know what you mean, when my GP phoned and said "...I think you may have ovarian cancer" I went into shock. I started shaking and crying. My immediate thought was that I don't want to leave my children behind like my Mum did. It was awful. I feel more positive now, even though the registrar was worried at my appointment this week, as he explained my ultrasound scan results. There's not a lot I can do now apart from go to work as usual, enjoy my time with my children and try and manifest a positive outcome.

I will let you know what the consultant says on the 25th March. They should have a plan by then and will have the CT scan results in front of them.

When you have the scan on Tuesday, don't worry if it takes ages, they will take their time and have a good look. The sonographer will also be unable to tell you what they see either as your GP will need to let you know, then refer you to the hospital if necessary.

Sending you good vibes 

Laura x