This is a long story, so do bear with me .
This is weighing heavily on my mind, and may be something or nothing - I hope you don’t mind me sharing .
Recently ( in the last month) I have had to undergo numerous invasive biopsies and tests - some very unpleasant, all started because of post menopausal bleeding - that started 6 months ago. I was on the fast track cancer pathway . An initial biopsy taken during hysteroscopy thank fully proved benign,, however at the time the uterine lining was noted to look suspicious and vascular. Because the biopsy was benign I was signed off. The bleeding however continued . I went to my GP two months later to look at how this could be treated. She referred me back to the hospital, who then said they wouldn’t see me , but would if it continued in 6 months. She then referred me to the private hospital under the NHS as she was concerned .
I under went a transvaginal infrasound - because the consultant was a little concerned this was then followed up with an MRI .
The most surprising and unexpected discovery were suspicious enlarged linguinal lymph nodes around 2.8 cm and quite round. Because of this the consultant arranged a meeting with the MDT at the local NHS hospital I saw the original Gynaecologist - who was brilliant . They called me in for an urgent lymph node biopsy, and another hysteroscopy again urgently . I had these - and was awaiting results.
I had the second hysteroscopy at a treatment centre the consultant there went through my history, and I mentioned the lymph node biopsy - he checked on the results, and asked me if I had been contacted yet . I looked at his computer screen and saw the words Follicular Lymphoma ( I didn’t have a clue about it) .but couldn’t read anything else . I asked him if he could tell me what the results were and he said no, that it was being sent off for more tests. But that I would definitely be contacted i got an appointment letter for the 10th , the following day recieved another letter cancelling my appointment at the hospital on the 10th and giving me a new one on the 3rd, I rang the appointments to say that I couldn’t as I will be in Paris for a few days, so speaking to the appointment clerk I remade an appointment for the 17th.
The next day this past Wednesday I got a phone call from gynaecology oncology ( ) to ask if I could come in on Tuesday 3rd as they wanted to see me sooner. I had an internal meltdown at the word oncology - and told them I was away. ( They were very nice )- but that I could still come on the 10th if that was still open. Wednesday afternoon was a mess. I spoke to my partner and said though it may not be anything I felt really anxious - he suggested we cancel Paris, I then thought that I would ring back and ask them how urgent it was , and would a week make a difference- as we could cancel the trip. Lots of toing and froing, and the lovely nurse rang me back in the end and spoke to the team and consultant and said it was ok to leave it a week.
Sorry this is such a stream of thoughts and anxiety. I know that it may not be anything and that they may have just they found an earlier gap, or that misread and maybe it said ‘does not have’ before the words follicular Lymphoma . Or that I may need more tests. But this is weighing heavily on my mind. As I would expect them not to ring /‘and not to be oncology and if they had to reshedule would it not usually be a later appointment?
I am over thinking, but would love some feed back on this, something to calm me down . I wish I knew the facts - then I can deal with it, but not knowing and having to wait another 10 days is challenging.
Thank you so much for your thoughts.
