Getting concerned about my swollen lymph nodes but still no answers - should I be pushing for further investigation and tests?

Long one so bare with me please:) 

Hi all, about a year ago I started having migraines and ear ache on a daily basis, I've been waiting for an ent appointment since September with no luck  since then it just seems more and more symptoms have been popping up, about 8 months ago I noticed the lymph nodes in my neck were always inflamed, bloodwork came back normal but I had an US anyway in which they weren't concerned because they weren't "big enough to be concerning". In the last year I've been on and off with illnesses which isn't normal for me.

Anywho.. Since early January (2026) I was getting pains in sort of my kidney area which I admit I did ignore because I thought I wasn't drinking enough until roughly 3 weeks ago when the pains came more consistent so I did go doctors who prescribed antibiotics for a UTI. At the same time the pains became more frequent I noticed a purple spotty rash across my abdomen and upper thighs which has been coming and going since then.

This last week and half where the rash is across my stomach it has become painful and tender under the skin. I did go for blood works yesterday which has once again come back normal, but I still don't feel okay within myself. 

I have also found a hard lymph node in my right side groin area with a small ball bearing size lump next to it, I did inform the doctor yesterday who said to watch and wait a month and if it's still there to come back for further investigation.

I could be spiralling with worry at this point but I'm sure all of what I've been experiencing this last 12 months is all linked together, I've heard that cancer doesn't necessarily show up in blood work, I'm trying not to assume the worst but since I have enlarged lymph nodes in my neck already and have recently discovered the one in my groin it's hard not to assume.

Should I be pushing for further investigation and tests? 

  • Hi LoopyJuice, 

    Poor you - having to deal with migraines and ear aches for the past year on a daily basis can't have been easy and it's a long time that you have been waiting for an ENT appointment and it sounds like you have experienced more and more symptoms and you did well to flag the fact that your lymph nodes were always inflamed. It's reassuring that the blood works came back normal though and the ultrasound wasn't concerning but you did well to keep informing the doctor of any new developments you noticed - make sure you also tell them about that purple spotty rash if you haven't done so already and the pain and tenderness under your skin where the rash is. 

    I think it might be worth going back to the doctor's or getting another opinion  especially as you are not feeling reassured and I think it is important that you are able to voice your concerns to the medical experts and let them know how you are feeling, that you think that all these issues you have been experiencing for the last 12 months might all be linked together. Try though not to assume or anticipate the worst as there are other conditions that could be causing these issues and the important thing is that you get to the bottom of what it might be and get a definite diagnosis. So I would suggest you bring up all your worries and concerns when you next talk to a doctor and you could ask whether there are any further investigations or tests that they think you should be having. 

    I hope that you manage to talk to someone soon and that you get some answers and also a proper resolution to these issues. 

    Best wishes, 

    Lucie, Cancer Chat Moderator