Possible uterine sarcoma - I'll be having an appointment with oncology tomorrow to find out more. Has anyone else been through this?

Hi all. Just looking for somewhere to voice all the turmoil in my head.

Bit of back story;

I have been dealing with fibroids and endo for over 16 yrs. Nov 2025 I finally got someone to listen, due to my belly looking as though I was pregnant, and had a full MRI.

I was measuring as though I was 6 months pregnant and the MRI showed how big my uterus had grown (up against my ribs and lungs) but also showed what is a possible uterine sarcoma. Biopsy would be done but up to 6 week wait.

I had a total hysterectomy 5 weeks ago through a vertical incision rather than like a c section, and have been recovering well. Finally received a message Friday just gone for an appointment tomorrow (Monday) with oncology which I presume will be the results.... not exactly sure what I'm looking for here in writing this as no one can give me reassurance but the results themselves.

I think maybe im just looking for people who have been through something similar, good and bad news.

I'll also be sure to update this after my appointment

  • Hi Clarebear84 and welcome to the forum.

    I noticed you no-one has got back to you just yet so I wanted to stop by and reassure you that your post has been seen.

    How did you get on with your oncology appointment the other day? I hope any questions or concerns you had were addressed and answered but if you have anything else playing on your mind you can talk things through with one of our cancer nurses. They're available Monday - Friday between 9a.m - 5p.m on 0808 800 4040 and they will do all they can to help.

    Hopefully some of our members will be along soon to offer their support and share their experiences with you as well.

    In the meantime, I hope your recovery continues to go well and if you did receive your results yesterday, that you were given good news.

    Kind regards,

    Steph, Cancer Chat Moderator