Hi Everyone
My six year old nephew was diagnosed with Crohns Disease last year. He has been on/off a feeding tube since his diagnosis and is currently on one and will be for the foreseeable. He is still able to eat but due to autism/AFRID his diet is very limited so he gets his nutrition from the feeding tube.
He also receives infusion treatment at the hospital on a frequent basis, along with blood tests etc. My brother (his uncle) also has a diagnosis of Crohns Disease.
Recently, since about the start of January, he has developed large lumps at the side of his neck and they are sometimes subsiding but then will re-emerge.
My sister is very concerned it could be malignant as she has been told by her child's health team that Crohn's Disease medication carries a higher risk of cancer, I imagine this is even higher in paediatric cases.
He is awaiting an emergency ultrasound on his neck, he was seen at hospital on Monday for treatment and for blood work. The bloods were reassuring but my sister has been told to cease any at home CD medication and only the feeding tube/infusion is his current treatment.
The feeding tube is via his nose, they are awaiting him to have a PEG tube, he also is on a waiting list for a tonsillectomy due to frequent episodes of tonsilitis throughout his young life.
Obviously I cannot expect persons on these forums to be experts on CD/IBDs but I am just wondering if anyone has had a similar experience with neck lumps? I have read that up to 90% of the time, lumps on neck are benign masses but due to the presence of CD we are both just worried that this could be malignant. I understand that often Chemotherapy drugs are used in the management of CD/IBDs.
Thank You
