liver lesion and other lumps

Hi

I'm here because I'm waiting to hear back after an MDT about an 8½cm liver lesion. Actually the lesion was originally spotted a few years ago when it was a bit smaller and I was getting ready for an unrelated surgery to remove a 14½cm cyst on my ovary. I was discharged in 2023 from the HPB team as the liver lesion was stable, although it was around 4cm at that time.

So fast forward to now, a recent blood result triggered another ultrasound and MRI, and this time the liver lesion is 8½cm and my consultant said they are 'very worried' and it has to be removed.

I feel like i'm in limbo. The surgery is going to happen, but i have no idea about timescales and I have no idea if i'm supposed to be worried or not. I feel guilty that it might be nothing and i'm wasting everyone's time, but then i feel guilty that it might be something and i might not be taking it seriously enough.

I am a single parent to two children, having lost my husband when they were babies, so I feel guilty that i'll need to ask for help from friends for a few weeks after my surgery, and maybe beyond, depending what comes from this. I can't make plans yet, because I don't know what the timings will be but because i will be heavily relying on friends, which i am really uncomfortable about (but so grateful to have friends who are willing to help out).

On top of that I have a history of fibroids and my current fibroids are now pretty huge, to the point where i'm being nudged in the direction of  a hysterectomy - something which I never wanted but is even less appetising considering I'll be having a big surgery for the liver thing.

Does anyone with experience of this sort of thing have any sense of how long it tends to take to go from MDT to booking a date for surgery?

Parents
  • My surgery was scheduled for yesterday, and I arrived at 7am. I was told I was second on the list and I had various medical professionals come in and explain things, signed a bunch of consent forms, took some pre-op medication, etc.

    Then just before 4pm (9 hours later) I was told that the previous patient's surgery had severely overrun and there were no longer enough hours to do my surgery. 

    With that, I was sent off to make my own way home and told that someone would get back to me with a new date within the next 28 days. 

    I don't really have words to express how I'm feeling. But I'm practical terms, this is a logistical nightmare. First of all it cost £40 to get home by Uber. There are no direct transport links between the hospital and my home, and even if I had used public transport it would have cost at least £15 and taken more than 3 hours. 

    I have two dependent children and am a widowed single parent, so I have had to arrange for my mother to travel up from her home to stay with my children and help me out post-surgery. I have also enlisted help from local friends - including one who got up at the crack of dawn to take me to the hospital yesterday. 

    I had stopped working, and was waiting for my sick note to send to my boss, but now I'm stuck in limbo land with no sick note and the last thing I want to do right now is go back to work whilst in limbo waiting for a new date. My mental health is taking a nosedive right now. They might make me convert this time to annual leave until my new surgery date is confirmed. 

    I feel so lost and frustrated. By the way this is the second time I've had surgery cancelled on the day of. Last time was four years ago, but at a different hospital where they kindly paid for my journey home, and also rescheduled quickly because they understood my logistical difficulties as a single parent. Work was less complicated as I was self employed and had a couple of part time employees who could help out.

Reply
  • My surgery was scheduled for yesterday, and I arrived at 7am. I was told I was second on the list and I had various medical professionals come in and explain things, signed a bunch of consent forms, took some pre-op medication, etc.

    Then just before 4pm (9 hours later) I was told that the previous patient's surgery had severely overrun and there were no longer enough hours to do my surgery. 

    With that, I was sent off to make my own way home and told that someone would get back to me with a new date within the next 28 days. 

    I don't really have words to express how I'm feeling. But I'm practical terms, this is a logistical nightmare. First of all it cost £40 to get home by Uber. There are no direct transport links between the hospital and my home, and even if I had used public transport it would have cost at least £15 and taken more than 3 hours. 

    I have two dependent children and am a widowed single parent, so I have had to arrange for my mother to travel up from her home to stay with my children and help me out post-surgery. I have also enlisted help from local friends - including one who got up at the crack of dawn to take me to the hospital yesterday. 

    I had stopped working, and was waiting for my sick note to send to my boss, but now I'm stuck in limbo land with no sick note and the last thing I want to do right now is go back to work whilst in limbo waiting for a new date. My mental health is taking a nosedive right now. They might make me convert this time to annual leave until my new surgery date is confirmed. 

    I feel so lost and frustrated. By the way this is the second time I've had surgery cancelled on the day of. Last time was four years ago, but at a different hospital where they kindly paid for my journey home, and also rescheduled quickly because they understood my logistical difficulties as a single parent. Work was less complicated as I was self employed and had a couple of part time employees who could help out.

Children
  • Hello Seabass,

    this is not what you need when facing such a big upheaval in your life l feel your pain in your words,Having faced my own problems previously l understand the raft of issues that accompanies your diagnosis.

    l can empathise with your current circumstances, but further to that if it is of help,private message me with your contact details via a friend request on this site and l will refund you that £40 Uber fare

    Stay positive because that's the one thing you need on your side,

    David

  • You're too kind, thank you so much for being so positive and helping me stay grounded through this!