Hi
I had 1 colonoscopy - 1 endoscopy and a CT scan - I was told all seemed normal - removal of a very small polyp from my stomach
Then the biopsy stated there were abnormal cells - Neuroendocrine tumour in my right colon - so 3 weeks later had to face another Colonoscopy to ‘recheck’ . All was normal - until it wasn’t - the MDT say as per first procedure - there is Grade 1 Neuroendocrine Tumour/s present
so now I have to have a 3rd Colonoscopy - 2nd Endoscopy- all in just 2 months - I am so traumatised
now my Consultant is saying the Neuroendocrine Tumour is just in the stomach ! So confusing - I am completely dazed
Then he mentioned that might have to have a ‘small amount’ of Chemo or Radiotherapy!
All this and I only went to my GP with ‘fatigue’ symptoms
I feel like my life has changed overnight- has anybody else had this kind of treatment - I seem to be scrolling and researching constantly with differing explanations/ mostly saying Grade 1 meant ‘surveillance’ rather than treatment!
I just don’t want any more procedures- 3 colonoscopies and endoscopies in the space of 8 weeks is frightening
sorry to rant - but I do feel better for it
