Atypical moles - precancerous - very worried

Hi all

Im 40F - I had a baby almost four years ago. 
I’ve kept an eye on my moles and they very slowly changed. My mum was diagnosed with 1b melanoma back in the summer and this has shaken me. Recently, I spotted a mole on the back of my leg. It’s changed shaped and looked a little smudged on one side. My gp was useless and didn’t want to refer me. I went to a private clinic who looked through a dermatoscope and said I have either a mild/severly a typical nevus. I had this removed at the private clinic last week with a WLE. The results should be back next week. 
I have two more moles - one on my belly that’s grown a little and has changed shape slightly. I have a strange formation of tiny moles on my leg. They’ve always been there. The moles are looking a little blurred. 
I had the private dermatologist look at them yesterday. He seems to think they are precancerous. One of my tummy looks slightly assymetric and the one on my left looks unusual. Both have new pigment. I am happy to pay to have them removed. He said with my pending nhs referral, that I should wait another three weeks. He said that they are not malignant melanoma and showed me images of melanoma and mine look nothing like it. 
I’m so upset. How accurate is the dermoscope? I have serious health anxiety and I don’t know how I am going to cope for the next few weeks. 

  • Hey Ozzycarp, 

    I noticed you haven't had a reply just yet so I wanted to quickly stop by to reassure you that your post has been seen.

    Waiting for results and coming across more moles that may be pre-cancerous must be very stressful but our community are here for you Ozzycarp and hopefully some of our members who have been in a similar situation will share their experiences and advice with you soon.

    I can't answer your question about dermascopes but our team of cancer nurses may be able to help. If you'd like to speak to them about this, and talk through any other worries or concerns you have about your moles, you can give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and they will do all they can to answer your questions and put your mind at ease whilst you wait.

    In the meantime, we're sending you all our support and we'll have our fingers crossed for a good outcome.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Ozzycarp,

    The dermascope isn't used as a diagnosis tool but as an investigative/triage tool. The images they provide help the consultant decide if the cells look normal, therefore benign, and the patient can be discharged. If the cells are unusual or definitely appear cancerous, the consultant will arrange removal so that they can definitively diagnose whether it's precancerous (dysplastic/atypical) or malignant. A removal for biopsy is the only diagnostic tool used for melanoma.

    Anyone with a dysplastic mole is always at risk of having another - a patient with melanoma is always at risk at having another melanoma or a dysplastic mole. The good thing is that, if they are dysplastic, they've been caught early. The patient can then keep an eye on any other moles so that they can be caught early, which is what you are doing.

    Until you know what your pending results show, your consultant is quite right to ask you to wait. If they are correct and the results show the mole was precancerous, there is no urgency to get your other moles removed as the chances are they will also be precancerous or benign. Get the results & then see the dermatologist at the NHS referral for the other moles that are concerning you. A wait of 3 weeks isn't going to make the outcome any worse, please believe me. 

    I hope your mum is doing fine. It's extra worrying when a close relative has melanoma but the chances of it being genetic is 10%. I have a brother, niece & nephew who have had dysplastic moles but I'm the only one who has melanoma. The positive to take from this is that, because of your mum's melanoma, you are now skin aware and are being proactive, so the chances of finding anything early is much higher.

    Good luck with your results & your NHS appointment. Please let us know how you get on,

    Angie (Stage 3 melanoma patient since 2009)