Thyroid issues and lump

Hello, I am 31 years old and in the past 2 months I have had a swelling/lump appear on the front of my neck, the day I noticed this I was particularly fatigued and really struggled all day and then noticed it in the evening when getting ready for bed and knew something was wrong. 

I had it looked at by my doctor but it’s been very long, not very rushed at all, took around a month to get a blood test done

My TSH levels were higher than normal so “subclinical hypothyroidism” was mentioned but my antibodies are normal suggesting it’s not autoimmune which is what I expected. 

GP referred me to ENT for an ultrasound (this Friday) but I met with him beforehand to see if I needed an ultrasound, he said “I don’t know why you’re worried it’s not cancer” after only looking at my throat with his eyes, but then said he might need to biopsy during the ultrasound (??) he also said that there’s a high chance I’m not going to be medicated for the thyroid issue (I literally am in constant pain since the day it showed up and don’t know how I will have a functioning life like this) 

so now I feel like I’m being lied to by my doctors because everyone is saying it’s not cancer but also looking up the causes is only pointing to it 

I feel like I’m going insane and I’m giving up on life because it just feels like I’m going to die soon anyway 

  • Hello SakuraAnxiety and welcome to the forum.

    I'm sorry to hear about your symptoms and for the stress and worry they are causing.

    Although it may not seem like it, you did the right thing by getting this checked out and hopefully the ultrasound you'll be having at the ENT department will be able to give you some much needed answers and peace of mind.

    I hope this guide we have on how to cope with waiting for news will be useful in the meantime, as well as these tips the NHS have on managing anxiety.

    So many of our members know how tough it is to be in this situation SakuraAnxiety, so you are not alone, and hopefully you will receive some support and advice from our community soon.

    If it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very understanding and will do all they can to support you at this time.

    Kind regards,

    Steph, Cancer Chat Moderator

  • The odds are it isn't cancer. Only about 5% of thyroid lumps are cancer. The rest are benign and there is usually no way of telling which is which without a biopsy. And the doctors have no reason to lie. If they say it's probably not cancer, then...it's probably not cancer.

    Also, even if it is cancer, and the odds are VERY much against it, you're still not going to die. i had thryoid cancer 6 years ago and for the most common forms of thyroid cancer, the survival rate is close to 100%, especially for those under about 50. I've joked that the biggest threat it was to my life was that I got such a shock hearing the word "malignancy" that I could have walked under a car. I've read studies on it and...there were two separate ones that ended with "we also wanted to study the effect of whatever we were studying (I think one was radio-iodine therapy, can't remember what the other was) on death rates but we had to drop that because we couldn't find enough people who died of it to make stats."

    I mean, any chance of any form of cancer is terrifying, but the odds of death for you are very low indeed. Worst case scenario, you need your thyroid removed. Which yes, is a serious operation and some people have problems getting their thyroid levels right after it (I didn't and from what I've heard, most don't but something like one in six do). I was off work for a month in total and then just...got on with my life.

    I will also say that I had that lump on my thyroid for probably at least five years before I was diagnosed and was never fatigued. It's probably more likely that the fatigue is related to the possible hypothyroidism than to any risk of cancer.