Insitu bladder cancer tumour

Eight weeks after peeing heavy blood and clots they found insitu bladder cancer five days ago. Told it needed Turbt in fourteen days I had a pre op assessment same day and to fill in huge online form - I struggle with technology. Next day they ask me to fill in form again and come in for assessment next tues - imho they're rescheduling the assessment date.

initially told on phone - they called me - there would now be no Turbt due to my heart medication I was told informally by a sister in the same dept that was rubbish. There is chaos in the system and I'm afraid of making trouble for myself if I remonstrate with anyone.

does anyone have advice - this is is after two and a half years Prostate Cancer treatment with great results.

im pretty despondent at 78 feel I'm a low priority.

  • Hi Severn,

    Welcome to Cancer Chat. I hope you are getting on as OK as can be - it sounds like there is some confusion here and I can imagine this must be quite frustrating.

    It sounds like you have an appointment tomorrow. This should be an opportunity to find out more about next steps and to get some clarity about things. Do make a note of any questions you have ahead of this.

    It's of course important you know what to expect, so do keep asking questions.

    In the meantime, we're always here for support whenever you may need it - and hopefully you'll get more replies to your post soon. You are also welcome to give our nurses a call if you'd like to talk things through. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator