waiting, waiting and more waiting

Hello everyone,

I am waiting for the results of an urgent CT scan on my liver due to a large lesion found during an ultrasound. I contacted the hospital that carried out the scan and they confirmed the scan had been reported and sent back to my consultant. I have been trying to contact the consultants secretary for the last week without any joy but managed to speak to her this morning. I am even more stressed now (if thats possible) than I was before I spoke to her.

She confirmed the results had been reported back but that they were on a 'go slow' and that the consultant hadnt looked at the report yet. She said that she would send him a message and ask him to look at the report but that it probably wouldnt be today.

Now dont get me wrong, I know that I am one of many awaiting such results but to be so vague and give me the impression that my results are not important left me speechless.

The cancer they suspected was HCC which if I am correct in my research is a fast, agressive type of cancer and I would have thought they my results would be looked at promptly but it appears not.

If the cancer doesnt kill me then the distress this waiting is causing certainly will.

  • Have they told you how big it is? As that can have a bearing on treatment plan as well as the position if it. Mine was approx 10cm long x 6cm wide x 6cm high, hanging off the front of my liver like a weird appendage.

    It is good that you have had no symptoms, have they done full blood tests as well? The only thing that showed up on my bloods was a raised ALP level at 143, that was what prompted the ultrasound. 

    Try to not worry about surgery & being off work, they will only go down that route if there is no other option. Sometimes it will just be a monitoring process with regular scans and bloods.

    The thing that I tried to stay positive about was, that primary liver cancer is no where near as common as a lot of cancers, in a lot of cases it affects people that already have severe liver disease. I tried to eat healthily & no alcohol, give your liver all the help that it can get. 

    Feel free to as any questions.

    All the best.