Vin3

Hi I was diagnosed with vin3 back in February this year tried cream treatment for 12 weeks which didn’t work just had wide local excision  surgery last Wednesday most of the pre cancer was at the top end  of vulva there was small bit on edge of vagina the surgeon informed me after they also found more inside that they removed so I’m now week post op still feeling very low can not sit up as to painful didn’t have a bowel movement for 6 days which was awful  been taking movicol and now starting having electric shocks in the side of the vulva that was operated on I have read it can be nerve damage I would love to hear from anyone who’s has had this surgery and how long your recovery was.x

  • Hello Lowey35

    I'm sorry to hear that you've recently been through treatment and surgery for VIN. It sounds like it's been particulary difficult since your recent operation and I hope that you have someone you can reach out to contact at the hospital if you have any ongoing concerns. 

    We have some information about VIN on our website, which may be helpful and I can see that  posted a thread recently where she was facing potential surgery for VIN. I don't know if she has had the surgery but hopefully you can connect with each other. 

    We've quite a few posts on the forum where VIN, and different treatments for it, have been mentioned. If you'd like to read through some of those, you can find them using the forum search function at the top of the page to look for the term VIN. 

    If it would help to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I hope that things settle for you soon Lowey35. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator