Lletz without knowing what for….

2003 2013 mild dyskaryosis, (smears every 3m) 

kids 2014 & 17

2021 & 2024 Smear = normal, suspected ectropion, bleeding during and after sex 

April 2024 asked for treatment, they referred me for colposcopy, (referral took 12 months)

29 April 2025 all ectropion of cervic confirmed and agreed could have cauterisation of the cervix,

Summary letter sent to me (I never received this letter and past history medication symptoms were missing aka noted incorrectly) 

14 August 2025 - colposcopy carried out  along with cauterisation, however they then said there a growth on the neck of the womb, looks like it could be warts too a pinch biopsy, and sent me on my way with fingers crossed for STI here in 4-6 weeks. 

14th August - gynaecology to drs letter 

referral indication:suspicious symptom's (non urgent) - no cytology -HPV tested- No

Appointment type follow up for colposcopy 

Colposcopic opinion - speculum suspicions looking cervical growth.

Colposcopic opinion of vaginal - normal 

Procedures preformed:

HPV No

cytology - sample taken awaiting results

biopsy - cervical biopsy taken 

treatment - no treatment 

Swabs taken - no 

recommendation - wait histology 

   to doctors 

19th August 2025 call came letter followed (would of gone to mdt yesterday but bank holiday so will be next week)

“Histology from your cervix has shown features of Human papillomavirus. It may be a low risk type of human papillomavirus which has given the bulky appearance to the cervix. The differential diagnosis which is suggested in the histology report maybe a bit more sinister change.
To review the results of your biopsy and to have the best course of action for yourself I have referred your details to gynae oncology multidisciplinary team meeting. I will update you with the outcome of the team discussion. Please wait to hear from us.

27 August 2025 I called back to speak about symptoms but was told to wait until results 

AM 2 September 2025 - emailed spoke to hospital/ gynaecology where by the letter dated 29th April came to light. I immediately went back via email all the discrepancies and listed my symptoms, pelvis pain, lower back, tired, frequent urination, diarrhoea, medication and family history (3 generations of cancer )

2nd September 2025 (call came letter followed)  I tried to discuss symptoms and email she did not know about my email or my symptoms but told me to speak to my GP.

letter that followed call - ”as you are aware the team has advised deeper biopsies from your cervix which is Lletz, this is to ensure that there is no underlying cancer in the neck of the womb.

3rd September contacted hospital and doctors got cytology, histology and MDT summary RESPONSE -I have to make a request to the subject access team. 

4th September 2025 called doctors to discuss all of the above, as I was upset and stressed “I am being assessed/treated on records which are incorrect, what is going on, this needs to be rectified and updated, I can’t live like this I’ve got the runs everyday I’m tired, I broke, I cried (ugly cried) she told me all of this is not what I should be concentration on and then said she opened the hospital records with the mdt summary notes and she said “,it suggests, possibility warts or something else, appearance tend to favour viral warts/benign, The Lletz is a deeper biopsy/bigger tissue sample which could remove focus here is not in this, but getting the lletz carried out, the fact You’ve emailed  details to colposcopy is good as they will now have a record, but even if you were seen as an outpatient the important thing here is to find out” 

11th September lletz appointment  

Hell it’s all very quick (we’ll obviously not the 12 month referral) 

if you’ve read all this, thanks you (I feel a bit better just typing it away) 

what do I do?

what is going on? 

I’ve had a lletz leaflet which talks about grading, CIN 1/2/3 dyskaryosis,  I haven’t had any info, provided, results etc, 

How can I make an informed decision without knowing all the details.

How can you do Lletz with cytology MAY be low HPV and histology MAY be sinister. Well which is it? What was reported/said in MDT….