Hi everyone
I’m at a point where I don’t feel like I can talk to my partner /friends anymore about this because they are worried and I don’t want to stress anyone out. I became ill at the end of February. I had stroke like symptoms - facial drooping , lost feeling in limbs and tingling etc. My symptoms didn’t fit with a stroke, after countless scans etc and seeing a consultant I’ve been referred to neurology to further investigate. These symptoms have continue leaving me unable to function some days. After a crippling 3 day headache and my body just not working properly I went back to A&E and during a CT scan on my heart they casually mentioned I had a 9cm ovarian terratoma. I was really surprised but asked straight away of this could be the cause of my issues. I’m a 38 yr old for healthy runner, don’t smoke or drink so being ill like this is just not normal at all.
I’ve waited 4 weeks to see a gynaecologist ( my appointment is tomorrow ) and in that 4 weeks have had terrible bloating , severe lower back pain , blood in urine etc. I went to out of hours on Friday just to check I didn’t have an infection . Whilst there I mentioned a very swollen large lymph in my back , my doctor said it wasn’t a lymph and that they would scan. after the scan mtge doctor said I would need to get an ultrasound on this as it didn’t appear to be a cyst as first thought. Surely thos must be related ? I’ve never had anything like this on my life.
I’m preparing myself for the worst news because I’m aware that I am ticking most of the boxes for cancer. I’ve had weeks and weeks of waiting and my anxiety is through the roof I’m at a point where I just need to know. I just want my life back .
Has anyone else had experience of ovarian teratoma causing neurological issues? I’ve done a fair amount of research but just wanted to hear if anyone has any first hand experience and what the outcome of it was.
Thanks for reading x