The anxiety is off the chart - ca125 results have come back at 63

Hi All

I am literally losing my mind here with anxiety and what feels like a certainty that I am dying.

I am 48 years old and went for a routine smear two weeks ago. I bled afterwards and the pain was awful. However that part is nothing new as I always found them horrific.

It prompted the nurse to suggest I make a GP appointment and get bloods, which I did. The GP also referred me for a trans vaginal ultrasound. That appointment is this week and in the meantime my CA125 has come back at 63. I got around an hour's sleep last night as my heart was pounding with anxiety and I had myself dead, embalmed and buried!! 

I have extreme anxiety anyway and health anxiety. 

Other than my period going from every 28 days to every 21 days the past three years, I have no symptoms.

I did get a TVUS around two years ago as I had heavy periods, and they said I had fibroids and a cyst. I never had a raised CA125 before though.

I am TERRIFIED of dying anyway and since I got into my 40s, I can't get past the fear and terror that one day I will go and be either put in the ground or burnt, and I can't accept that I will be dead forever, and never will come back. I know that sounds crazy :(

I am sick with anxiety and every twinge in my bones has me convinced I have cancer and the cancer has spread.

I also had a weird burning intermittent groin/thigh pain. Nothing that wasn't manageable and it has gone now but it came and went over the past two months.

Has anybody else been in this situation? I am living with raw terror.

x

  • Hi Anxiouswreck78,

    Welcome to Cancer Chat. It sounds like you are struggling and I'm sorry to hear that you're finding things tough.

    It's good to hear you don't have long to wait for your appointment and I hope it's then not long to wait for any results and to get the information you need. If you have any questions about any symptoms or what to expect at any point, write these down so you can keep them to one side and then ask them at your appointment(s).

    I'm not sure if you're currently receiving any support for how you're feeling or not. There is some useful information and further resources on the NHS Every Mind Matters page, which may be helpful. It may be useful to speak to someone about how you're feeling, if you're not already.

    We are also here for support on the forum and I hope that it can be useful for you, and that you get some more replies to your post soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi

    Please try not to be scared, I know this is easier said than done when you have health anxiety. Your anxiety sounds very debilitating and I would suggest trying to get help for this. If you can self refer to talking therapies I would do, I've used them before and it really helped me. 

    With regards to the raised CA125 that is only moderately raised and my doctor told me that fibroids can actually cause this. I had a TVUS and they found a cyst but it is just being monitored for the time being. I would really try not to worry at all, if you've had no other symptoms then it is very highly unlikely to be cancer. The CA125 test is not a definitive 'cancer test' it is used as a measure along with other tests and as I mentioned other things can cause it to rise.

    Good luck with everything but please please try not to worry yourself so much ️ xxx