Hi All,
I am hoping that some of you maybe able to relate and help me moving forward. To give some background i am a 32yr old women and i have a had PCOS for 11 years. When i was first diagnosed i was handed a leaflet, asked if i was trying for a baby - as i was not, i was shoved out my GPs door. I gained weight as a result of my hormones and so any niggly pain i ever had was always put down to these 2 things - although i was never massively obese. For 9 years i was ignored and was never given any Scans or follow up appointments on my PCOS despite being in regular and constant pain and having random bleeding and other symptoms that was progressive in nature.
Moving on 3 yrs ago my health drastically changed. The pain i was experiencing in my uterus and ovaries was nothing i had experienced before. I raised concerns with my GP who told me to loose weight . Again - No scan . I saw 3 other doctors who said the same thing!!!. Eventually my sister paid for me to have a MRI done privately - and i was referred to the Gynecologist ... little did i know !
i changed doctors and now have a semi-decent one. I was diagnosed with Lymphedema this year and have been on a path to finally getting my PCOS and uterus checked out.
The reason for my post is that i have been referred to see a Gynecologist and have been on the wait list for almost 40wks now ! My symptoms are progressively worse. I was taken off birth control 2 years ago , i did not bleed for 1 year and then I've never really bled but i have been dropping golf ball sized clots which is then followed by a heavy bleed. On all ultrasounds i was sent for after spending time in A&E the lining of my uterus was thick despite clotting and bleeding significantly. This has been the case now on 3 ultrasounds (my new doc is making me have scans every 4-6months while i wait for the Gynea)
I asked my GP if i could have a biopsy done as a medical family friend mentioned Endometrial Hypoplasia, however my GP said that this something i should discuss with the Genealogist - goodness knows when ill even get an appointment with them ! She was not sure if it is something i have as it usually comes in women 50yrs and over and after / going through menopause.
Can i ask whether anyone has had similar symptoms or scenarios which may suggest this is what is happening to me, or any remedies... I'm at the end of tether and don't know if i can continue the way i am. I'm a very patient person, i experienced pain on almost a daily basis and living in fear that like my grandmother and mother i am in early menopause... ( i do not have kids although i would like to have them , i have experienced a miscarriage ) My GP pumps me full of pain killers and asks me to wait :(.
I don't know where to turn or what to do, any help would be amazing. Thank you to anyone who takes their time ready this i am forever grateful. !
