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No one is listening to my symptoms

EmGem
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I just do not know what I am going to do. 
It feels like no one is listening to me, hearing what I am saying. 
I suffered severe constipation for years, I was gluten free for five years, it didn’t change anything in the later years. So I decided it was not beneficial. 

I have had occasions over the last two years, when , apart from a couple of very strained marbles, I wouldn’t go for between 10 days to 2 weeks, sometimes longer. My abdomen would swell up until I went and then would suffer severe pain until I eventually went, sometimes I had to manually evacuate to get anything. I took movacol everyday. 

in February this year I was in so much gastric pain, swelling that I had to attend ED and saw my GP eventually. 

After this, I came off all my pain killers apart from natural CBD and Diazepam due to spasms. I can take only paracetamol liquid now PRN. Maybe once a day, equal to one tablet.
 I have come off all my Rheumatoid Arthritis medication. my Rheumatologists says he can do nothing else for me until I get a diagnosis, he thinks I have an illness (that may be cancer) that means my bowels have neuralgia. 
I take Oramorph when desperate in case it makes me constipated. 

Since Feb I have had 4 chronic episodes, two of which I should have gone to ED but really what could they do for me. 

I suffer severe fatigue, swelling, spasms and pain, as well as vomiting after eating, if I have too much. I now use a massage and heating unit for use on my stomach, a massage and heating wrap for back, kidney issues, everyday. 

In 1987 I had Polyps removed, one had malignant cells but was cleared after radiotherapy and diagnoses with colitis, which means I should get diarrhoea more than constipation. I take liquorice and movacol, and am going more but the swelling and pain is daily. 

I have had a Doctor tell me I might have MS, but no tests as of yet. 

The question I have is do I have to have blood for Drs to worry?

I am so upset because something is seriously wrong but I have a lot of other health conditions, and Doctors are so quick to say it is them. 

  • Hello EmGem

    I'm so sorry to hear about all the health issues that you've had. It's obviously been a really difficult time for you, and I can understand that it's frustrating when you feel you aren't being heard by the health professionals that you've spoken with. 

    I'm unsure which doctor has suggested you might have MS, but do talk with your GP about the issues and concerns that you're dealing with. It may be that you have a supportive friend or family member who can attend the appointment with you to help you explain to the doctor just how much these symptoms are impacting your life and how distressed you are that you feel no one is listening or taking a lead on trying to get the root cause of your problems. 

    If, after this appointment, you feel that the doctor is still not moving things forward for you, then you could consider making a complaint to the practice manager or health ombudsman. If you need to raise concerns about hospital-based services, then you can consider contacting the local PALS team.  

    Hopefully you have someone who can help support you by attending appointments and advocating so that you feel heard by the health professionals involved in your care. 

    I do hope that you get some answers soon EmGem and that things begin to improve with your health. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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